Looking forward to European PF Patient Summit 2024 and catching up with colleagues & friends EU-PFF Fesca SRUK | Scleroderma & Raynaud's UK

Great to be here at #BSR24 with our RAIRDA colleagues SRUK | Scleroderma & Raynaud's UK LUPUSUK 💙 Vasculitis UK - In memory of John Mills MBE 💙💚 @Sjogren’sUK Please come and visit our stands

Great session on getting to grips with the basics of AI at #BSR24 and how it can be deployed in rheumatology

Really important that patients and the wider public understand the huge benefits but also the potential challenges with the use of #artificalintelligence when accessing #Healthinformation

Having great fun playing AI Hospital to consider the challenges, benefits & risks of using AI in healthcare with One Vision Health European Patients' Forum

Looking forward to session on AI literacy for patient advocacy with European Patients' Forum Fesca SRUK | Scleroderma & Raynaud's UK

It’s critical that we diagnose patients with PAH as soon as possible. So thank you Gergely Kovacs for all the important work you are doing.

Thanks Boehringer Ingelheim for the opportunity to discuss how we can improve the quality of the conversation between patients & physicians so we become proactive partners 🇪🇺 Ilaria Galetti 🇸🇩 Dr. Dinesh Khanna @profchrisdenton @

It was an amazing couple of days. So great to finally meet up with everyone in person in the beautiful Prague. Thanks to all our great speakers - patients, clinicians & researchers
World Scleroderma Foundation @vaclavpetr

Shockingly, rehabilitation isn't available everywhere in the UK.

Watch the #RehabLegends describe what rehab has meant to them.

Help us end this postcode lottery by signing the petition.

#RightToRehab

It is great to see the @DHSC Rare Diseases Action Plan reference the work we are involved in, to develop the evidence base for a NICE quality standard for rare disease #RareDiseaseDay #RAIRDaware

As high bills continue to threaten the health of those living with debilitating conditions like Raynaud's; SRUK is appealing to energy companies to provide financial assistance to them.

Find out more: bit.ly/3Td0vIX

#CostofLiving #EnergyBills #Raynaud 's

Great to attend the #RareDiseaseDay2024 event at the Houses of Parliament & hear Rt Hon Andrew Stephenson MP talk about the importance of improving treatment & care for rare disease patients SRUK | Scleroderma & Raynaud's UK RAIRDA Genetic Alliance UK

Many thanks to Joel James MS for sponsoring our RAIRDA event & to his team for all their help. Great opportunity to raise the profile of rare autoimmune rheumatic diseases SRUK | Scleroderma & Raynaud's UK LUPUSUK 💙 Vasculitis UK - In memory of John Mills MBE 💙💚 Sjögren's UK

Great to be here in the Welsh Senedd with Liz SRUK | Scleroderma & Raynaud's UK other patient representatives from RAIRDA to meet M

A most well deserved appointment for Dame Carol Black who works tirelessly to drive change to improve the health & wellbeing of so many people. Thank you for everything you do for our community.

I look forward to working with you all in 2024 to drive the change we need to #BloomTogether

Great piece of research led by Dr Melanie Sloan Cambridge University has shown the challenges patients with rare rheumatic conditions can face when they are not listened to The Times and The Sunday Times LUPUSUK 💙 SRUK | Scleroderma & Raynaud's UK Vasculitis UK - In memory of John Mills MBE 💙💚

Action for Pulmonary Fibrosis EU-PFF SRUK | Scleroderma & Raynaud's UK

💌 A heartfelt thank you to all speakers and participants for their time and expertise on how to drive change for #scleroderma patients through policy at our European Parliament event.

Together, we can help people with scleroderma find their light to bloom ✨