🎉 Exciting news: New #Teledermatology service for Beckenham Beacon patients!

Patients are being assessed and treated for #SkinCancer more quickly as specialists use high quality medical photographs to assess and diagnose skin conditions.

Read more ➡️ bit.ly/44kA4F6

#BreakingNews‌ MND Peer Support recruits 100 #Carers of individuals living with #MND . Huge #ThankYou to MND Association Marie Curie King's MND Centre The Walton Centre Royal Stoke ED UHNM Royal Devon NHS University Hospitals Sussex Swansea Bay NHS LOROS Hospice Lane Fox Clinical Research Unit Severn Hospice

✨Only 2 days left until the splash-worthy kickoff of a 'A Dip A Day in May'!✨Are you ready to dive in?

What dip will you do? 🥶🏊‍♀️🚿🛁🪣

mndscotland.org.uk/events/a-dip-a…

#ResearcherSpotlight 💡

Dr Younbok Lee is developing a new potential therapy for people with #MND #ALS who have a change in the FUS gene. 🧬

It is hoped the therapy could be used just 𝐨𝐧𝐜𝐞 to help prevent further motor neuron loss.

Learn more: mndassociation.org/research/our-r…

This is the news we have been waiting for. Our Alex had a FUS mutation. We pray no more families will have to go through such loss.

Super work Ali promoting both non-motor symptoms in ALS and the development of synthetic controls, amongst other things during the pandemic. Well done you can be proud of this work!

Congratulations to Ali Shojaie on passing his PhD viva today 🥳🍾 and thank you to Prof Simon Mead Simon Mead and Dr Tom Lambert for examining and Dr Ahmad Al-Khleifat and K Ray Chaudhuri for co-supervising.
#ALS #MND #nonmotorsymptoms

Enjoying the LifeArc Translational Science Summit, Breaking Barriers track. Good to see lots of familiar faces in #ALS #MND .

MND Association My Name'5 Doddie Foundation
MND Scotland
Paul Wicks Paul Wright UK MND Research Institute
#LATSS2024

Superb talk on involving people living with #ALS #MND as partners in research and development

Patients United2EndMND MND Association My Name'5 Doddie Foundation MND Scotland Paul Wicks LifeArc #LATSS2024

Doing my 5 year delayed inaugural lecture on Wednesday - not at all scary! - looking forward to seeing many old friends.

Tofersen is an effective therapy for the 2% of people with #ALS #MND who carry a genetic variation in their SOD1 gene. Whether it is available in the UK depends on a cost threshold and assessment by NICE. The system is outdated:
theguardian.com/society/2024/a…

UK MND Research Institute MND Association

🎈 HAPPY BIRTHDAY to our world-leading #MND / #ALS specialist Ammar Al-Chalabi, Professor of Neurology and Complex Disease Genetics King's College London and Director of King's MND Centre.

❤️ THANK YOU for your total commitment and relentless drive to further research into motor neuron disease!

📣 Participants needed! 📣

Researchers King's College London have designed a new online intervention to help people with long-term physical health conditions, such as #MND #ALS , to help manage low mood and depressive symptoms.

They want your thoughts ⬇️

mndassociation.org/research/get-i…

📸 To mark #Vaisakhi , members of the Sikh community at King's College Hospital, held a fruit distribution stall today.

People could learn more about this important religious festival for the Sikh community and receive a fruit gift!

#TeamKings l #Vaisakhi 2024

Congratulations to AviadoBio team. First Patient Treated in ASPIRE-FTD Clinical Trial Evaluating AVB-101 for Frontotemporal Dementia with GRN Mutations aviadobio.com/first-patient-…

Meet our ✨ new ✨ Pre-Fellow🥼

Heather Marriott is further investigating if people with #MND #ALS can be grouped based on shared biology.

This could help better predict disease progression and move towards personalised treatment options.

Learn more: mndassociation.org/research/our-r…

When your spouse dies you may feel judged for openly grieving for many years after their death. Just bc you are not out there moving mountains in their name does not mean you are not honouring them. Showing up for your kids every day may be all that you can cope with + that’s OK

We're sad to hear of the death of James Clarke & our thoughts are with his friends & family. James was a great supporter of ours & a Doddie Champion too.

His efforts to drive MND research were tireless & he accomplished a huge amount.

Full statement:
myname5doddie.co.uk/whats-on/artic…

James was a member of our #united2endmnd team & helped further both research and raising awareness. And as you will read below he raised a staggering amount of money quickly through his relentless enthusiasm. We are all shocked at this news. We will miss you James. Lee

#als #mnd

🧬🖥️🧬I am super excited to start working on developing machine learning models for ALS stratification using biological data from people with #ALS #MND with support from MND Association, MND Scotland and my wonderful mentors Ammar Al-Chalabi Alfredo Iacoangeli Prof Janine Kirby Dr Ahmad Al-Khleifat