“Days like this make me feel like I’m in a dystopian society and have to beg the fascist authorities for basic protections”

— Alice Wong 王美華 at Senior and Disability Action (SDA) Keep Masks in Healthcare action outside of SFDPH

Does anyone else struggle with grieving their old self?

One thing healthy people don’t understand about chronic illness is the fact that many of us have to do this.

Mourn who we once were.

Mourn that certain activities we loved, we may never be able to do again.

No one…

Teacher shortage?
Do something about Covid!

Endless Cycle of Sickness?
Do something about Covid!

High absences in schools?
Do something about Covid!

Shortage of Healthcare workers?
Do something about Covid!

Recognize the theme yet?

#Covid19 #NotMild   #Maskup …

The fight against long COVID is not just a medical one. It is a moral one.

Long COVID can have devastating consequences and too many people now face debilitating symptoms as a result.

How many Americans need to suffer before Congress acts boldly to address this crisis?

“Just forgetting about it, sweeping it under the rug is not an option,” Ziyad Al-Aly, MD told the Texas Observer. “We must have this national conversation. How are we going to deal with #LongCovid ?”

Open Medicine Foundation has launched StudyME, a global patient registry, to “connect those who want to participate in research studies to the researchers who conduct them.” Patients with #MECFS , #LongCovid , #Fibromyalgia and related #IACC #IACI , as well as healthy volunteers, can sign up (1/2)

With tens of millions of people suffering from #LongCovid around the world, I don't see how recommendations for exercise can be based on a trial of 62 participants (half were controls)
jamanetwork.com/journals/jaman…

Sometimes I think about the collective suffering that millions of us with #LongCovid are experiencing, and it kills me.

That society has abandoned us is unforgivable.

We’re at the stage of the pandemic where the mainstream media mocks behavior modifications to avoid an airborne virus that has injured or killed millions- calling it an irrational fear or anxiety issue- as World Health Organization (WHO) creates an unfounded threat level downgrade to support this position.

we need help: if you are a trans person (trans male or female) with #LongCOVID and you live in the NYC area, please reach out to our research team to help us further study the relationship between testosterone and Long COVID. You can reach us on [email protected] /end

This is a really good piece that breaks down the major issues with this terrible article. Thanks fizzy for sharing.

thegauntlet.news/p/disabled-peo…

This is such an abelist way to framing of how long COVID affects a whole family. Rather than highlighting the systemic issues that lead to CV families lives becoming smaller, it frames the risk aversion of an LC affected person as 'anxiety'
npr.org/2024/03/11/123…

1/🧵As a psychotherapist on the 🦠 conscious register, I’m grateful to the author of this piece.🙏🏾 SO MANY struggling privately w/these issues. I’d like to unpack a few areas that jumped out at me. ‘Wrestling with my husband's fear of getting COVID again’ npr.org/2024/03/11/123…

If you read nothing else today on this site, please let it be this three-tweet thread.

I’m tired of people telling me to just stay positive.

Here’s a reminder you don’t have to stay positive all the time with an illness that affects you so negatively 24/7.

Word on the street is that Nature Comms is publishing a big part of the ME intramural study on Wednesday. Here’s what you’ll find in it:

The thing with #LongCovid is that it's often not exclusively POTS or MCAS or microvascular inflammation or endothelial dysfunction or profound exhaustion or tinnitus or eye problems or neuropathy or constant pain... etc. It's often all of those things at the same time in 1 person

Thursday AM hot take: Due to regressive policies on both #guncontrol and #covid infection prevention/ #LongCOVID action, your personal safety in large gatherings cannot be assured in the US. This is not how governments in developed nations are supposed to protect their citizens.

If I had known what COVID could do to me I would have preferred to be a hermit forever and never leave my room again. Believe me, wearing a respirator is a sacrifice you would be willing to make if you knew what severe #LongCovid was like.