Please help us reach parents/guardians of children with Dystonia 🏥 Alder Hey 💙
CUBRIC UCL Queen Square Institute of Neurology Hamro Foundation Gemma Stevenson Fiona Rawlinson
Sarah Fisher 'The Dystonic Musician' Niranjanan Nirmalananthan Queen Square Neurosurgery Lydia Wilkins Tim Adlam Joanne Hillis Steve Petherbridge🇮🇪🇪🇺🇺🇳
cardiff.onlinesurveys.ac.uk/understanding-…

Baby born from three people's DNA in UK first bbc.co.uk/news/science-e…

Lovely to be in beautiful Belfast for the first time, for #ABNINA23 .

Plenty of time for neurology but first exploring a bit of the city.

I'll buy anyone who can tell me where this is a drink.

Workforce is the biggest challenge in the NHS and addressing that requires a focus on retention. This is a really clear data thread from the always excellent John Burn-Murdoch.

What is the point of doing routine 4ATs in the ED?

Most of us will miss delirium and memory problems on brief reviews if we don't do some specific testing.

You might think you're good at just spotting delirium. But you're probably not. (Neither am I)

We're launching a new course - 'FND: A Healthcare Professional’s Guide' in collaboration with FND Hope UK. Taught by experts from University of London, this course covers FND symptoms, diagnosis, management, and patient communication. Enrol now at 👉 bit.ly/3TPpKQ4

🌟New report out today-a review of the epilepsy care of adult patients attending hospital with a seizure: ncepod.org.uk/2022epilepsy.h… SUDEP Action Epilepsy Society Epilepsy Action Royal College of Emergency Medicine Association of British Neurologists National Audit of Seizure Management in Hospitals Royal College of Physicians RCGP Royal College of Physicians & Surgeons of Glasgow RCPEdin Healthcare Quality Improvement Partnership

We’re sorry to hear that Doddie Weir OBE has died.

Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND.

Our thoughts are with Doddie’s wife Kathy, his 3 sons, family and friends.

Signed our petition calling on the government to #BackThe1in6 ? Share this link now and tell friends, family and colleagues why you #BackThe1in6 people in the UK with a neuro condition tinyurl.com/BackThe1in6 Thanks!

The new Fatigue Management resource for people with Neuromuscular Conditions is out now: musculardystrophyuk.org/get-support/ev…
Thanks to Muscular Dystrophy UK and the working group for making this project a reality!

We are excited to attend the APPG for the Muscular Dystrophy roundtable tomorrow to discuss the potential of integrated care systems to improve neuromuscular services. If you would like to virtually join the discussion, please contact us on [email protected]

Patient registries are a great way to find out about clinical trials for your condition! If you are living with a #neuromuscular condition, check out the registries we run from JWMDRC here: bit.ly/JWMDRCREG
#RareDisease #NMD #ICTD2022 #ICTD22 #ClinicalTrialsDay