It's #Dazzle4Rare week—a time to raise awareness for people with #undiagnosed and #RareDiseases . The event is unique because it helps communities of all sizes share information, reaching more people in other communities. Where Do You Dazzle?
Zebra Strutters – supporting Ehler's-Danlos Syndromes & Pigmented Villonodular Synovitis. Advocating for multidisciplinary approach to medical healthcare so that patients can receive the type of care and treatments that they need. #dazzle4rare #dazzle4rare 2023
❤️🦓My heart is filled with love for our #Dazzle4Rare2023 dazzle4rare community #TeamDazzle #WeAreRareFamily 🦓 #StrongerTogether ❤️ #UnitedAdvocacy #RareDisease
As #Dazzle4Rare 2023 comes to an end, we want to thank everyone who shared our message!
We will continue to spread awareness for FOP and work towards finding cure #StrongerTogether ❤️
#FOPFriends #CureFOP #Dazzle4Rare
This #INSD , take a moment to reflect on the meaning of #NewbornScreening in 2023 and how it's evolved over the years.
🎧Join N. Garnier on #Signalise podcast as he discusses how these shifts also shape our work at #Screen4Care
signalise.podbean.com/e/ep22-nicolas…
#Dazzle4Rare #RareDisease
We are Thrilled to announce that RDGI is enthusiastically participating in this year's #Dazzle4rare Campaign and we cordially invite everyone to join us in raising awareness for rare diseases
#Dazzle4Rare2023
#RareDiseases
Congratulations - Featured in 2024 Winter #iPainLiving Magazine - #InternationalPainFoundation 's Top 2024 #RareDisease #Advocates include - عبدالله الحديثي Becky Sansbury Alfa-1 España APARDO Ataxia and Me CIO 1184030 Barby Ingle Official Cambridge Rare Disease Network (CamRARE) Cure Rare Disease dazzle4rare
🦓🦓🦓Trending #Dazzle4Rare2023 thank you Dazzlers 🦓🦓🦓 Thankyou for joining the Dazzle and if you haven't yet heard set your message up at dazzle4rare.net with all your social Media and join us. Let's elevate our voices and unite together. dazzle4rare
Our Vision as an Organization is to be the Leading organization for Health professionals, Patients, caregivers and researchers; serving as the voice and coordinating care for undiagnosed, genetic and rare diseases in Ghana
#Dazzle4rare
#RareDiseases
The first day of #RareDiseaseMonth is the perfect time to get back on this platform after a very long hiatus. How are all the wonderful zebras & zebra lovers doing?
Neena Nizar Erin Moriarty Wade Tina Aswani-Omprakash, MPH dazzle4rare RAREsies Rule Adam Johnson - DadVocate David Rose
Meet the people behind Dazzle4Rare, a global social media movement creating awareness and advocating for rare and associated conditions. Learn more about our evolving team and their valuable contributions to the rare disease community on our author page. #dazzle4rare2023
On Valentine's Day, a special podcast went out from #Dazzle4Rare that included our very own Heidi Edwards. Take a listen to hear her 'Love Letter'.
podbean.com/ew/pb-ykapt-13…
This week is #Dazzle4Rare 🦓
Today we are sharing information about Caring Hands Sarcoidosis Foundation
#sarcoidosis #inflammatorydisease #caringhands #granulomas #warriorstrong #dazzle4rare2023
It’s #Dazzle4Rare2023 week. Join us and 25+ different #RareDisease patients, advocates, organisations. Raising awareness of #raredisease
dazzle4rare Float Like a Buttahfly 🦋 Kerry Wong International Foundation for AiArthritis Alex The Leukodystrophy Charity Ataxia and Me CIO 1184030 Beacon for Rare Diseases CureMITO ausEE Inc.
DISORDER: The Rare Disease Film Festival Flutters and Strutters (Formerly FibroFlutters)
International Pain Foundation is creating synergy through RARE through a special focus on helping those with rare diseases w chronic pain! This is why we support #dazzle4rare ! #dazzle4rare 2023
This week is #Dazzle4Rare 🦓
Today we are sharing information about Flutters and Strutters
#dazzle4rare2023 #StrongerTogether #patientadvocacy #DiseaseAwareness #chronicillness #raredisease
#Dazzle4Rare 2023 #Sarcoidosis #Raredisease dazzle4rare Float Like a Buttahfly 🦋 Kerry Wong #patientadvocate
#Dazzle4Rare is a week to raise awareness for rare diseases. People from different disease communities share messages to help each other reach a bigger audience. 💜