I’M MAD, I’M SAD, I’M FRUSTRATED, I’M ANNOYED were my 8yo Elita’s words today about her feelings, her INability to walk, to move her legs, to move her hands. I told her I am not mad, I am PISSED OFF! WHO wouldn’t be MAD SAD FRUSTRATED ANNOYED! #FUCKCANCER #ENDDIPG #NotRareNotFair

Team supporting #EndDipg #DipgAwareness 💛💪🎗

Didn’t know it then but only 24 hours left with you when this was taken. #slowdowntime Happy 8th Birthday 💛 Miss you so much baby girl 💛
#dipg #enddipg #rallyforraegan
#beatbraincancer #ChildhoodCancer #DMG #curechildhoodcancer #researchmatters

god is good. little man has had no tumor progression and is stable!💓 please keep prayers out for this sweet boy and his family, the fight is just beginning❤️ #beckhamstrong #enddipg

Today marks 30 months since Gavin was diagnosed with #DIPG . Last week he rec’d his 50th #CARTcell infusion! His tumor is still stable, no symptoms. This is what #HOPE looks like. #GavinsGuardians #CARTCellTherapy #VitanzaLab #BrainChild03 #CureDIPG #EndDIPG #KickChildhoodCancer

Had a great time competing at the Avery Huffman DIPG Foundation event this weekend. Thanks to Team PALA and @coach_OFFA for the platform to showcase myself. Cyprus Pirates Football Powerhouse Training - UT Brandon Huffman @bangulo Coach Kofe BJ Gary Howard -Scout #EndDIPG #AveryStrong

When you’re trending on Instagram is always a good time to remind people to donate to childhood cancer research #EndDIPG

This is Oscar. He is almost 4. Today he met his two heroes Minnie & Mickey in Disneyland thanks to Make-A-Wish Ireland 💖His reaction was one of the most beautiful but heartbreaking things I’ll ever see thanks to DIPG. Please RT to raise awareness #EndDIPG #DIPGAwarenessDay

8-year-old Clare was diagnosed with #DIPG 6/18/18. She knows what she likes, is wildly funny & happy to do her own thing. Clare has been through radiation and 3+ years of chemo. She continues to fight DIPG with her bright & bubbly spirit. #CCAM #HonoringOurHeroes #EndDMG #EndDIPG

In memory of Aubreigh Nicholas, MCDA participated in the Lemon Face Challenge! Happy Birthday, Aubreigh! you will always be in our hearts! You're up next Mobile Sheriff ! #endDIPG #WeAreAubreighsArmy #RiseUp #LemonFaceChallenge #MCDAsupportsthefighttoendDIPG .

Please take a minute to read this. Today is the start of #ChildhoodCancer AwarenessMonth

It won't happen to you... until it does.

#DIPG #Cancer #ChildhoodCancer #BeatDIPG #EndDIPG #UnbeatableEva

I am honored to officially proclaim today as Devin Suau Day. We miss you today and every day, Devin, and continue to support a future where no family will ever need to fight against DIPG again. #WhyNotDevin #EndDIPG

OFFA’s Elite 7on7 Team Pala in collaboration with Brandon Huffman and The Avery Huffman DIPG Foundation would like to Present the 1st Team PALA Avery Strong 7on7 Tournament here in UTAH..Limited Spots Available..Register your team now! #AveryStrong 💝 #TeamPALA #EndDIPG #OFFA

When you go to a celebration of life for a dear patient who loved pink and sparkles, and you see a crown making station, you participate. It’s the #pedshemonc way. #iunderstoodtheassignment
#endDIPG #neurooncology

The fight against DIPG brain cancer remains. We MUST find a cure for our children.

#AveryStrong
#WorldCancerDay
#EndDIPG
#KeepSayingHerName
#KeepSayingTheirNames

Donate: averystrongdipg.org/donate

Today is International Childhood Cancer Day.
Thinking of my little boy, Victor, and all the other kids we know who have suffered and died.
In the hope that with awareness comes more funding for research.
#WeMissYouVictor
#ChildhoodCancerDay
#endDIPG

Today is the day you died...
In my arms, just you and me...

Missing you the Stars and back Talin...
Plus a little bit more...

11 years and it is never easier...

#DIPG #Pediatrics #BrainCancer #Cancer #Grief #Child #Child ren #DefeatDIPG #EndDIPG

October 19, 2022- Today would have been Avery’s 14th Birthday. Today, we honor and celebrate our fighter and our hero averystrongdipg.org/blog/october-1… #AveryStrong #brAvery #EndDIPG

Always a fulfilling & productive time talking life, lab science, and clinical trials with the incredible humanist and researcher Matt Dun, PhD 🇹🇼🇺🇦🇦🇺🕊. I can’t believe I even naturally called you “mate” at one point!! Look forward to seeing a lot of you in 2024 my friend! #EndDIPG

Incredibly honored to join leading researchers around the world and the newest cohort of the ChadTough Defeat DIPG Fellowship Grant recipients to accelerate a cure for DIPG. #EndDIPG

Read more about what this grant means to me here: pathology.med.umich.edu/phd-program/ar…