Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

One year apart
In the first photo, my 5 yo son standing proudly at the museum of flight. In the second photo, my 6yo son sitting in a specialized stroller, with a tube feeding him through his nose, completely paralyzed, and unable to speak.
This is DIPG.

One year apart
In the first photo, my 5 yo son standing proudly at the museum of flight. In the second photo, my 6yo son sitting in a specialized stroller, with a tube feeding him through his nose, completely paralyzed, and unable to speak.
This is DIPG.
#EndDIPG
#WeMissYouVictor
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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

Today is International Childhood Cancer Day.
Thinking of my little boy, Victor, and all the other kids we know who have suffered and died.
In the hope that with awareness comes more funding for research.


Today is International Childhood Cancer Day.
Thinking of my little boy, Victor, and all the other kids we know who have suffered and died. 
In the hope that with awareness comes more funding for research.
#WeMissYouVictor
#ChildhoodCancerDay
#endDIPG
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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

Feb 4th today is world cancer day.
We remember all the kids who have suffered and died from cancer. Too many to even count.
Victor, my beautiful boy.


Feb 4th today is world cancer day. 
We remember all the kids who have suffered and died from cancer. Too many to even count. 
Victor, my beautiful boy. 
#EndDIPG
#WeMissYouVictor
#WorldCancerDay
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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

8 yrs ago today. He had not been sleeping well. He looked tired. He was sensitive.
We didn’t know he was slowly dying.
We didn’t know we had less than a year with our beautiful boy.
I wish that day never ended.
That day, and all the days before.

8 yrs ago today. He had not been sleeping well. He looked tired. He was sensitive. 
We didn’t know he was slowly dying. 
We didn’t know we had less than a year with our beautiful boy. 
I wish that day never ended. 
That day, and all the days before. 
#WeMissYouVictor
#EndDIPG
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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

child?
And who would have thought anyone would say these words to me, about my own six year old child?
Until that moment, we were so unaware. So blissfully ignorant.

We miss you Victor. We love you. Always and forever.



child?
And who would have thought anyone would say these words to me, about my own six year old child?
Until that moment, we were so unaware. So blissfully ignorant.

We miss you Victor. We love you. Always and forever.
#WeMissYouVictor
#DiagnosticDay
#ChildhoodCancer
#DIPG
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Rick Hammerly(@RickHammerly) 's Twitter Profile Photo

Working @fordstheatre’s SILENT SKY step & repeat w/some rather extraordinary folks in celebration of Victor Shargai Day! (Rachel Zampelli, Holly Twyford, Felicia Curry, Rick Hammerly, Dar Gazder, Julia Singer & Peter Flynn). ❤️

Working @fordstheatre’s SILENT SKY step & repeat w/some rather extraordinary folks in celebration of Victor Shargai Day! (Rachel Zampelli, Holly Twyford, Felicia Curry, Rick Hammerly, Dar Gazder, Julia Singer & Peter Flynn). #VictorShargaiDay #WeMissYouVictor❤️ #dctheatre
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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

Early giving Tuesday fund raiser in memory of@my little boy.
You donate to research and we match that amount to two other causes:
Women's reproductive rights, and gun violence in the USA.




facebook.com/donate/1252726…

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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

Tomorrow my son Victor would be celebrating his 16th bday with cake and a brand new driver’s license.
Instead, we are sitting at his grave, remembering the beautiful boy he was.
Please help us fund research.




p2p.thecurestartsnow.org/1901

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Julie in the PNW(@SeattleColibri) 's Twitter Profile Photo

Imagine that. No treatment. No hope. No help. No time.We need to do more for our children.Please help us spread awareness. It is with awareness that comes funding.


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