Enzi Aruna Johanis, seorang anak yang sedang berjuang melawan sakit Lennox Gastaut Syndrome membutuhkan bantuanmu. Mari beri dukungan untuknya dengan berdonasi melalui:
rumahberkat.com/campaigns/bant…
#rumahberkat #bagiberkat #sobatberkat #sedekah #bantu #sakit #lennoxgastautsyndrome
Two more days! After a seizure she is back with the yoga. She’s loving training for her walk for LGS research. Thank you for cheering her on and for donating. 💚💜🙏
Savannah’s Walk ‘n’ Wheel for LGS Research LGS Foundation
lgsfoundation.salsalabs.org/2024walkforlgs…
#LennoxGastautSyndrome
Lennox-Gastaut sendromu, nörolojik bir bozukluk olup çocukluk çağı epilepsilerinin nadir ve ağır bir formudur. Genellikle 3 ila 5 yaşlarında başlar, ancak herhangi bir yaşta ortaya çıkabilir.
#LennoxGastautsendromu #LennoxGastautsyndrome
Empire State Building is purple, green, blue and pink for Rare Disease Day! Picture from my living room window. #curescleroderma #scleroderma #cureepilepsy #lennoxgastautsyndrome
International Lennox Gastaut Syndrome Awareness Day (# 2 out of 2) on 1st Nov
Click: wp.me/PaZ4x4-1TQ
#InternationalLGSAwarenessDay #Lennox GastautSyndrome AwarenessDay #Lennox GastautSyndrome #LGS #Lennox #Gastaut #Syndrome #AwarenessDay #November #EVENT #TelegramTips .
Very excited to present our work on my brother’s epilepsy, #LennoxGastautSyndrome Caregiver Perspectives at my first #AmericanEpilepsySociety annual meeting! Proud to represent CureSHANK #AES2023 Check out the full paper here: epilepsybehavior.com/article/S1525-…
Empire State Building is purple, green, blue and pink for Rare Disease Day! Picture from my living room window. #curescleroderma #scleroderma #cureepilepsy #lennoxgastautsyndrome
Today is World #RareDiseaseDay - meet our #PURAPerfect daughter, Megan. Meg was in the first group of 11 individuals to be identified as having an anomaly in their PURA gene in 2014. Meg also has a rare epilepsy known as #LennoxGastautSyndrome , so we say she is “doubly rare”! 💜💚
#HIE is the leading cause of #NeonatalSeizures , and a leading cause of the rare epilepsies like #InfantileSpasms & #LennoxGastautSyndrome , in addition to common types of #epilepsy .
Every person who loves and cares for someone with HIE should be #SeizureFirstAid trained.
Learn
And we’re back. Training for her walk for LGS research with a little yoga.
lgsfoundation.salsalabs.org/2024walkforlgs…
LGS Foundation
#Walk4LGS
#LennoxGastautSyndrome #epilepsy #intellectualdisability #autism #Disability #Ability
We were very proud to participate in the LGS Foundation 2023 Meeting of the Minds this week! It is great to see such a talented group of people come together with the common goal of advancing clinical research in #LGS ! #lennoxgastautsyndrome
Rochester, NY - pictured here lit up in purple & green for #LennoxGastautSyndrome awareness day on November 1st 💜💚 #EpilepsyAwareness
#LennoxGastautSyndrome is a severe epilepsy syndrome that develops in children and leads to lifelong disability.
To go #BehindTheMystery of LGS, visit TheBalancingAct.com/rare. 💜 🧬
#BehindTheMystery #RareDiseaseDay #RareDiseaseDay 2024 #UnveilingTheMystery #InspiringHope
Today is National Rare Disease Day
#rarediseasecommunity #rarediseaseday #nationalrarediseaseawarenessday #2023 #undiagnosed #lennoxgastautsyndrome #blind #deaf #gjtube #epilepsy #hypotonia #sleepapnea
