Does ANYONE (other than MND sufferer's, and families) “CARE” about potentially effective Treatments ?? Mirocals non release of Trial data is a SCANDAL 🤞🙏

We have had over 400 signings and messages so far supporting Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Marcus Stewart, partners and Geoff Burrow - Open letter to the Mirocals consortium. See all the messages here and perhaps add your voice?

united2endmnd.org/2024/04/30/wou…

#united2endmnd

Please take a look at this open letter addressing the very important issue regarding the lack of information around the results and data from the Mirocals trial. The reason it is so important is that we are being denied access to a potentially effective treatment, Interleukin 2.

To be very clear. Lives could be prolonged if #MND patients were given Proleukin. Commercial arrangements HAVE been prioritised over patient's lives. MIROCALS consortium must take immediate remedial action to get this drug to patients NOW. Please sign open letter use link below.

Please show your support for letter sent to MND Association King's MND Centre Neuroscience Institute SussexNeuro QM Neuroscience last Monday by Darby Rimmer MND Foundation Geoff Burrow Rob Burrow CBE Ed Slater on TRANSPARENCY on #Mirocals trial here united2endmnd.org/support-miroca… MotorNeuroneDisease Challenging MND Dodd1e5 Gr4nd S7am Team #MND

Last week Patients United2EndMND supporters Darby Rimmer MND Foundation Steph Houghton MBE Rob Burrow CBE Geoff Burrow Ed Slater & Jo, Marcus & Louise Stewart asked vital questions of 4 UK #Mirocals Consortium members. Pls go to united2endmnd.org/support-miroca… to read & sign to support our plea for transparency

Huge thanks Darby Rimmer MND Foundation Steph Houghton MBE Rob Burrow CBE Geoff Burrow Jo & Ed Slater Marcus & Louise Stewart for sending open letter requesting TRANSPARENCY on commercial contracts for #Mirocals to involved scientists & MND Association To show support please see united2endmnd.org/support-miroca…

Show your support by signing our open letter to the Mirocals consortium. You can sign the letter using the link below

united2endmnd.org/support-miroca…

MND Association it says something when your highest profile patients feel compelled to write an open letter. Patients want and deserve treatment with Proleukin. We have been BEGGING for 16 months. MIROCALS Consortium must answer patients and take action Darby Rimmer MND Foundation Rob Burrow CBE

Support Mirocals Transparency Request – We are United2EndMND – Changing the conversation united2endmnd.org/support-miroca…

2 years since #Mirocals trial ended and still no results and still no answers from Consortium members.

#attackmnd

Huge thanks Peter Ash #Corrie for supporting Darby Rimmer MND Foundation Rob Burrow CBE Geoff Burrow Ed Slater Marcus & Louise Stewart letter to MND Association Neuroscience Institute King's MND Centre BSMS Clinical Neuroscience QM Neuroscience asking for TRANSPARENCY on #Mirocals trial.
Pls support @ united2endmnd.org/support-miroca…

#mirocals trial ended nearly 2 yrs ago & we still await results! Typical survival once diagnosed with #mnd is just 2yrs! Something wrong here? If touched by #mnd please support Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater & Marcus’s OPEN letter to the consortium. BW Lee
#united2endmnd

Richard Evans MND Association Some may think a little harsh, but if you could engage with this ASAP it would be a fantastic start united2endmnd.org/support-miroca… We look forward to working with you. Good luck! Darby Rimmer MND Foundation Rob Burrow CBE Geoff Burrow Ed Slater

AKJK AKJK Interleukin-2 reduces the risk of death at 21months by 40%, while riluzole reduces it by 20%. (According to Mirocals)
While it is twice as effective as riluzole, I admit this still doesn‘t sound impressive when considered that riluzole only prolongs life by 2-6

razadu Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Here is the iltoo announcement of the mirocals consortium agreement in May 2023

iltoopharma.com/wp-content/upl…

Lee Millard Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Lee Millard I have one question: Mirocals is a trial conducted by Iltoo, right? And Iltoo is a French company or am I wrong there? So I was wondering if you are working together with French ALS advocates. I know UK is not part of EU, but if different ALS advocacies from Europe

Tanya Curry Daniel Boffey It's also vital Patients United2EndMND MotorNeuroneDisease challenge 'accepted ways' of accessing new treatments & demand transparency required of a taxpayer/charity funded trial like #Mirocals , especially when our lead charity is a member of Consortium. MND Association King's MND Centre SussexNeuro

David Kilgannon Please see this patient advocacy website that has a whole menu section on MIROCALS it may explain things more clearly. In essence patients are not been spoken to at all by ILTOO Pharma & on a limited level by the consortium. It really beggars belief! united2endmnd.org/mirocals/

MummywithMND razadu Let’s not forget the only commercial interleukin 2 available globally is Proleukin owned by iovance, as used in MIROCALS and IMODALS!

But to answer original question the combo is NOT at all proven nor even abatacept alone. (3/3)