#PBCSummit : Mo Christie of the PBC Foundation explains her idea of having a one stop shop PBC Website for all, whether you are a patient, a provider, or a researcher. 'We as patients want to own that website and we want to own that content.' - Danielle Alstat
We had a wonderful time learning from the patients and advocates at the #PBC Summit . It was inspiring to connect and engage with the community and discuss the needs in #PBC . Thank you to the PBC Foundation for organizing the event and for the opportunity to share Mirum’s mission…
At the #pbcSummit we joined advocates from around the world working to improve the lives of people with #PrimaryBiliaryCholangitis . Their passion and ideas inspired us and we left with lots to consider for our work ahead. Thank you PBC Foundation for leading this impactful event!
#PBCSummit : The focus for day 4 of the summit is patient advocacy groups. Eddy Draws is shown here working on a mural of the conversation. Today, we as patients are working on action plans from patient perspectives. - Danielle Alstat
PBC Foundation
Until next time. ありがとう, gracias, bedankt, Благодаря ти, grazie, tapadh leat, tack, Дякую, תודה, tak skal du have, danke to this amazing group of people.
#pbcSummit
The background may look like some strange Scottish dancing tradition🕺🕺at our PBC International Summit in Edinburgh but it is just a change of speaker. 😂😂
#pbcSummit
A couple of the breakout sessions where ideas become actions on how to improve the patient experience for the #PBCCommunity #pbcSummit
#PBCSummit : 'Whether it's one patient or a million, patients living with PBC and their families deserve their needs met.' - Rajni Rallan from Mirum Pharmaceuticals. Here Rajni is meeting with Gema Iribar, of Albi España. - Danielle Alstat
PBC Foundation
8.30 am and here we have another full room EASL Education #EASLCongress - this time a rhink tank on autoimmune liver disease. Looking forward to Cynthia Levy, MD speaking about normalisation of labs in #PBC . Another reminder of how important and current the #PBC Summit is and was.
#pbcsummit We are glad to be a part of this collaboration with other PBC advocacy groups, represented by executive committee member Thomas Draime
Just amazing 💜💜💜💜
It was truly an honour to meet you all, the passion in the room was incredible and you all spoke direct from the heart #pbcSummit
The countdown is on 💜💜💜 honoured to be part of this amazing event! #PBCsummit #PatientsAreTheAnswer
PBC Foundation Conversation heating up nicely. We have time to find concensus.
So much to do. #pbcSummit
PBC Foundation Association Albi Albi España American Liver FDN Leverpatiënten Fundación Sayani Global Liver Institute HepActive Team Hepatitis Hilfe AT Hetzliver Liver Patients International (LPI) PBCers Organization Canadian PBC Society NGO SLAP Macedonia Proud to have the Leverpatiënten as part of this amazing group #advocacy #friendship #cooperation #PBCsummit #livertwitter PBC Foundation Liver Patients International (LPI) ERN RARE LIVER