We are delighted to share that less than three weeks after IgG4ward! Founder Dr. Stone announced the foundation's goal to have April 4 designated as IgG4-RD Awareness Day, the State of Massachusetts has declared it so! #IgG4RD #IgG4relateddisease #IgG4ward #rarediseaseadvocacy
What #RareDisease do you advocate for? Let us know in the comments...
#RareDisease Advocacy #RareDisease Advocates
Join Unidos pela Vida to shine a light of solidarity, attention, and empathy on the 300 million people living with rare diseases. InstitutoVidasRaras Rare Disease Day #RareDiseaseDay #RareDiseaseAwareness #RareDiseaseAdvocacy
What Rare Disease do you advocate for? Let us know in the comments. #TuesdayTakeover #RareDiseaseNigeria #rarediseaseng #rarediseaseadvocacy #rarerevolutionmagazine
๐ Sunny โ๏ธโค๏ธ๐ฅ is doing a twitch stream of Rare Fair which you can view at twitch.tv/insomniadoodles #RareFair #RareDisease #RareDisease s #twitch #stream #rarefair2019 #rarediseaseadvocacy #advocacy
It was great speaking to the members of the Global Genes Foundation Alliance about using social media for rare disease advocacy ๐ do you want to hear my top tips!? Let me know in the replies! #RareDiseaseAdvocacy
The countdown begins now! Only 40 days left until Rare Disease Day 2022 ๐ฆ๐๐๐ค.
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#raredisease #raredisease s #raredisease awareness
#theraredisorderpodcast #raredisorderpod
#raredisease warrior #raredisease photochallenge #raredisease advocacy #raredisease family
Now that the kids are back in school, let's learn how we can better advocate for them. We recommend you checkout Everylife Foundation's Advocacy Tip Sheets. #rarediseaseadvocacy
I am so grateful for the opportunity to be a guest on the Because We Are Strong podcast! #raredisease #raredisease advocacy #raredisease wareness
open.spotify.com/episode/3BuPcbโฆ
๐ช๐ฎ๐๐ฐ๐ต ๐๐ต๐ถ๐ ๐น๐ถ๐๐ฒ ๐๐ฒ๐ฏ๐ถ๐ป๐ฎ๐ฟ: Financial Advocacy For ๐ฅ๐ฎ๐ฟ๐ฒ ๐๐ถ๐๐ฒ๐ฎ๐๐ฒ
Live link - youtube.com/watch?v=X9Jfxfโฆ
#raredisease advocacy #raredisease awareness #raredisease
Rare Disease Advisor invites you to join us in this empowering journey towards a future where no rare disease is left untreated.
โญLearn more about the diseases we cover at brnw.ch/21wGWjy.
#RareDisease Day #RareDisease #Zebra #CareAboutRare #RareDisease Advocacy
While #Diversity continues to remain a key topic of discussion in the #raredisease comm, recognizing & bridging gaps related to #culture & #genderequality cannot be ignored. SoniyaFit joins us to discuss her unique patient perspective. #raredisease advocacy #trf2022 #equalaccess
Australian rare disease patient groups in action! Today's workshop helped to ensure patient groups are integrated in the development of Rare Disease priorities in Australia. #RVA #RareDiseases #RareDiseaseAdvocacy #patientadvocacy
Andrew McFadyen wishing you SUCCESS at the Senate hearing 9/22/16! #MPS #RareDiseaseAdvocacy #AndrewMcFadyen #TheIsaacFoundation #HOPE
#rarediseaseday #raredeseaseawareness #rarediseaseadvocacy #raredeseaseday2021 more than 400 million people lives with a rare desease, rare deseases are not as rare as they seem
With #RareDisease Day just a little over 2 weeks away, what do you have planned for the big day? #RareDisease #RareDisease Advocacy
We are excited to share the Indo US Bridging RARE Summit Souvenir with you! Here are scenes from the unveiling of the souvenir at #BridgingRare Summit.
Access the full souvenir here:- summit.indousrare.org/#souvenir
#IndoUSRare #RareDiseaseAdvocacy #bridge4rare
Have you checked out our YouTube channel and subscribed yet? We have a variety of educational and inspirational videos to help support your journey with cancer.
youtube.com/watch?v=ITGTuIโฆ
#RareCancerResearch #RareDiseaseAdvocacy #RareCancerAwareness
