మైయోసైటిస్ అంటే ఏమిటి(What is Myositis)
#మైయోసైటిస్గురించి
#RareDiseaseCommunity #MyositisAwareness #MuscleHealth #muscleinflammationrelease #myositisindia

US overdose deaths decline slightly in 2023, CDC reports #RareDiseaseAware #RareConditions #RareDiseaseAware nessMonth #RareDiseaseAware nessWeek #RareDiseaseCommunity [Video] The CDC released data indicating a modest decrease in fatal overdoses in the… dlvr.it/T6xfNq

April is #StressAwareness month, a feeling that does not go unnoticed in the #RareDisease Community , where waiting for answers, uncertainties, and feeling invisible is common.

We see your strength and advocate for the battles unseen. 💙

#BehindTheMystery #RareDisease

Rebecca Alexander Recalls Progressive Vision and Hearing Loss Since Age 12 #RareConditions #RareDiseaseAwareness #RareDiseaseCommunity #RareDiseaseCure [Video] Rebecca Alexander New York City-based psychotherapist and sister of Weekend Today co-host… dlvr.it/T6zxzZ

Hunter Syndrome

#apnahomoeoccentre #apnahomoeocentre #RareDisease #RareDisease Day #RareDisease Awareness #RareDisease Warrior #HopeForRare #GlobalGenes #Undiagnosed #OrphanDisease #RareDisease Community #InvisibleIllness #ZebraStrong #CureRareDisease #RareDisease Research

Join us in raising awareness for those affected by rare diseases. Together, let's shine a light on their challenges and advocate for greater understanding and research.

#RareDiseaseAwareness #rarediseaseday #RareConditions #RareDiseaseCommunity #HopeForRare #invisibleillness

𝐑𝐚𝐫𝐞 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐃𝐚𝐲
Uncommon strength, Uncommon fight Striving for True Equality Worldwide

#RareDiseaseAwareness #ShowYourRare #CareForRare #RareDiseaseDay #HopeForRare #RaiseAwareness #RareDiseaseCommunity #ResearchForRare #prathima hospitals #prathima #PH

Whether you're a #RareDisease patient or a parent, this journey can feel isolating and frustrating. But on this #WednesdayWisdom , always remember: you're never alone.

#RareDisease Community #MCOPS12 #CureMCOPS12 #community

During #BrainAwarenessWeek , we highlight the importance of mental health within the #rarediseasecommunity .🧠 🧬

Refer to our guide, 'Navigating Your Rare Disease,' for psychological support, stress management, and more

Link in our bio. 🔗

#BehindTheMystery #RareDisease

We are thrilled to launch the IgG4ward! Online Community today and encourage you to check it out here: igg4ward.org/community/

#igg4rd #igg4relateddisease #raredisease community #raredisease #autoimmunedisease

#SYNTHEMA creating high-quality #syntheticdata for virtual patients in #RHDs 💪
Supporting the #rarediseasecommunity by highlighting the importance of research & resources close to #RareDiseaseDay 💔
#ShowYourRare #RDDay #horizoneu #AI

Such a special moment from @mamabearforrare and her daughter. A beautiful day for this incredible rare disease warrior and family. ☀️ 🧬 💙

#BehindTheMystery #CareForRare #RareDiseaseCommunity #RareDiseaseAwareness

Rare disease events around the world #January2024 🌍 🙌

💙 A Rare Affair 2024 – San Francisco
💙 Rare Kidneys Connect – South Florida

#BehindTheMystery #RareDiseaseEvents #RareDiseaseAwareness #RareDiseaseCommunity

Additional testing is often necessary, as many rare disease symptoms may not be revealed in a standard blood test.
To all the rare disease warriors undergoing testing: Share your advice in the comments below. 💪💙
#BehindTheMystery #RareDiseaseWarriors #RareDiseaseCommunity

Louisiana Teen Diagnosed with Rare Cancer in His Testicle #RareConditions #RareDiseaseAwarenessWeek #RareDiseaseCommunity [Video] When Ronal Salvador found a lump on his testicle at age 17, he knew something was wrong. He was diagnosed with a rare form… dlvr.it/T70D1m

#RareFactFriday : 95% of rare diseases lack FDA-approved treatment.
400 million affected by rare diseases, yet gaining treatment approval proves exceptionally challenging.
Together as a #RareDisease Community , we can make a difference! 💙
#BehindTheMystery #FDAapproval #RareDisease

This holiday season, we appreciate your invaluable support for the rare disease community. Here's to a bright year ahead, filled with ongoing collaboration, good health, and shared triumphs. 💙 🦓 🎄
#BehindTheMystery #RareDiseaseCommunity #RareDiseaseAwareness #MerryChristmas

Here's to a bright year ahead and a continued mission of going behind the mystery, sharing inspiring stories, and expanding our rare community. 💙 🦓

#BehindTheMystery #YearInReview #RareDisease #RareDisease Awareness #RareDisease Community

As climate shifts, a leafhopper bug plagues Argentina’s corn fields | U.S. & World #RareDiseaseAware #RareDiseaseAware nessWeek #RareDiseaseCommunity #RareDiseaseCure #RareDiseaseDay [Video] By Maximilian Heath and Matias ... dlvr.it/T6Xx01

👥 Today, we're amplifying the voices of those often unheard in research.📷 Meet Jackie, a powerful host for #TakeoverTuesday ! He speaks from his journey with his son, who has Arthrogryposis Multiplex Congenita (AMC). #ICTD #RareDiseaseCommunity