Newborn twins fight rare genetic disease, family says itll costs millions of dollars to save their lives #SpinalMuscularAtrophy #SMAAwareness #SMAAwareness Month #SMAAwareness Week #SMACommunity [Video] New parents are fighting to save the lives of their… dlvr.it/T6Btx9
The past couple of years have forced Brianna Albers to build her muscle of persistence, but her “dogged stubbornness” has paid off. bit.ly/3JzyWUD
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Catch up on the #SMANewsToday Column of the Week here: bit.ly/4dfd2nj
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
For Mike Blakey, “maximizing what your body allows” is a big part of living well with SMA. How do you define wellness in your life? bit.ly/3UftiMc
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
If SMA begins to affect muscles involved in breathing, a pulmonologist or respiratory therapist can help. Explore how: bit.ly/3wkM1Op
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/3HSpf2D
#SMANews Today #SMANews #SMAResearch #SMAAwareness #SMACommunity
After living with SMA for three decades, Kevin Schaefer has learned to live well with his disease, not fight against it. If you’re trying to do the same, these tips might help: bit.ly/3Wo41SK
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
In his latest vlog, Michael Morale weighs in on if he thinks insurance companies will pay for a combination therapy using apitegromab.
Check out our SMA vlogs here: bit.ly/3RKFmWl
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Looking for a new SMA specialist? Our locator tool helps you find providers conveniently near you. Check it out: bit.ly/4aY0tuK
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
The Passy Muir Valve helps with voice and speech production and improves swallowing. How has it helped you?
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Catch up on the #SMANewsToday Column of the Week here: bit.ly/3Qfczre
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Specialized equipment can make navigating daily life and even symptoms easier. Explore how you might benefit: bit.ly/3UF2dTY
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/3HSpf2D
#SMANews Today #SMANews #SMAResearch #SMAAwareness #SMACommunity
Columnist Alyssa Silva considers how her changed attitude toward her voice amplifier has been a way of redefining progress. bit.ly/3y6qrxN
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Have you thought about setting specific goals for your appointments? You may find it helps you get the most out of them. bit.ly/3UBfJHl
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Feeling uncertain about the future? Unsure how to cope with changing physical abilities? A mental health provider can help. See how: bit.ly/3UoWEYO
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Hugo, who lives with SMA type 3, discusses the part he plays in coordinating his care team: bit.ly/4daWVH3
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
A new Kohl's has come to DeAnn Runge's town, but is it accessible? She takes us along to find out.
Check out our SMA vlogs here: bit.ly/3RKFmWl
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Listen to one mother explain what she looks for in physicians or other providers caring for her son, who lives with SMA. bit.ly/4b8NQg6
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
The world of accessibility has improved by leaps and bounds over the past several decades, but DeAnn Runge wonders if we might be slowing down. See why in our forums: bit.ly/3U33McV
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
