Known as the Portable Mobility Aid for Children, this harness system is unlike traditional body weight support systems. See how: bit.ly/3UHrgF5

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A range of genetic mutations associated with SMA were linked by researchers to abnormal immune system activation in fly models of the disease. bit.ly/3UxOzRB

In terms of one SMA gene therapy, researchers acknowledge that “some gaps in its safety profile still need to be investigated.” bit.ly/4bib97l

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Researchers note that, while treatments have expanded, there exists a “persistent need for validated biomarkers” to measure individual responses. bit.ly/3UQFzIJ

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For Mike Blakey, “maximizing what your body allows” is a big part of living well with SMA. How do you define wellness in your life? bit.ly/3UftiMc

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The table’s tilt put pressure on an already-compromised chest cavity, but researchers say pre-surgery imaging may help prevent the issue going forward. bit.ly/3wiAjEc

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The treatment allowed the girl to sit alone and play with her toys for two minutes after seven months of therapy. Explore how: bit.ly/3Up7ldx

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Brianna Albers considers stepping back from social media and exploring alternate ways to be a disability advocate. bit.ly/4brzqYy

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Catch up on the #SMANewsToday Column of the Week here: bit.ly/4dfd2nj

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Explore how the rarity of this type of mutation can result in diagnostic delays: bit.ly/4dD71B5

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After living with SMA for three decades, Kevin Schaefer has learned to live well with his disease, not fight against it. If you’re trying to do the same, these tips might help: bit.ly/3Wo41SK

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While the biomarker decreased in response to Spinraza treatment for some, it didn’t change as much as other muscle damage biomarkers. bit.ly/3UHkn7O

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The Passy Muir Valve helps with voice and speech production and improves swallowing. How has it helped you?

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A modified version of the SMN protein deficient in SMA, was more effective than normal SMN when delivered by gene therapy, per a mouse study. bit.ly/44qaQVG

While most SMA families said their physical needs were being met, only a small percentage reported adequate emotional support. bit.ly/3UIPwrh

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By targeting a protein involved in suppressing muscle growth, apitegromab aims to boost muscle strength and motor function. Explore current therapy data here: bit.ly/3UIt6GF

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Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/3HSpf2D

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The past couple of years have forced Brianna Albers to build her muscle of persistence, but her “dogged stubbornness” has paid off. bit.ly/3JzyWUD

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If SMA begins to affect muscles involved in breathing, a pulmonologist or respiratory therapist can help. Explore how: bit.ly/3wkM1Op

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