We are presenting the Foundation in Spain next November 7th!!! #ushersyndrome #retinitispigmentosa #ush1B #nonprofit #becauseofyou #savesightnow #savesightnow europe
This is wonderful news for #UsherSyndrome awareness. Well done to the team at Cure Usher Mark Jordon Laura Norton uk.style.yahoo.com/eastenders-hea…
Tonight’s the night BBC EastEnders introduce #ushersyndrome to their cast, looking forward to watching & the conversation that will follow, fab awareness m.facebook.com/story.php?stor…
01 Marc. Wen
#Cassper Musa Khawula #KiernanForbes #UsherSyndrome #March2023 #noxologrootboom #Grootboom #Zuma #RHODurban #Daily Maverick
Taking my daughter to Moorfields Eye Hospital NHS Foundation Trust for Prof Mariya Moosajee clinic on Friday for the first time. Extremely nervous about the results. #ushersyndrome #ushermummyworries Cure Usher
#Eastenders tonight features a new storyline of a character diagnosed with #UsherSyndrome
Well done to Cure Usher for working with EastEnders on the storyline.
We'll be tuning in to watch, let us know if you watch it too.
metro.co.uk/2024/04/15/eas….
Despite being a relatively #RareDisease affecting ~400k, #Ushersyndrome is the most common cause of genetic #deafblindness .
By Caroline Junker ASBMB
asbmb.org/asbmb-today/sc…
EastEnders is taking a great step in raising awareness with a new health storyline as a character is diagnosed with Usher Syndrome in upcoming scenes. #UsherSyndrome #DeafblindAwareness
metro.co.uk/2024/04/15/eas…
We look forward to seeing #UsherSyndrome reach #EastEnders fantastic awareness & tomorrow lots of conversation be sure to tune in big thanks to Cure Usher Mark Jordon Laura Norton m.facebook.com/story.php?stor…
Blindness is definitely different for everyone and how they see the world. As for me, it be like bottom left corner. Crazy, eh?
#RPAwarenessMonth
#RetinitisPigmentosa
#UsherSyndrome
#BlindnessIsASpectrum
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Let's Light Up the World with Awareness. 💙🕯️ Today, on Usher Syndrome Awareness Day, we stand together to shed light on the challenges and hopes of those living with this rare condition. Together, we can make a difference. 💪 #UsherSyndrome Awareness #HopeInSight #UsherSyndrome
Usher Syndrome is getting some air time thanks to a major EastEnders storyline. Like me, the character has the type 2 variety. I suspect the storyline will be short-lived, but at least more people will know about it. ok.co.uk/tv/eastenders-…. #DeafBlind #UsherSyndrome #EastEnders
Today is #RareDiseaseDay and we want to raise awareness for people living with a rare disease.
In our team we are committed to rare retinal dystrophies research.
#InheritedRetinalDystrophy #retinitispigmentosa #ushersyndrome #choroideremia
#CureUsherBall2023 @hiltonmanchester 🪩
Proud patrons Mark Jordon Laura Norton said, 'What a room! It was lovely to meet you all and be in the presence of such inspiring and generous people. And this is only the beginning...'.
Watch this space for updates!
#UsherSyndrome
