点滴後まだまだ回復を実感！
IVIGを多くいれると私には効果があるみたい。
このまま全快までいってほしいな
#CIDP

It's #PlasmaDonationWeek , so if you can, please consider signing up to donate plasma. Plasma is used in the treatment of many people with #GBS #CIDP and other conditions, and your donation may change someone's life. To find out how to donate visit blood.co.uk/plasma/how-to-…

A great story here highlighting the importance of plasma donation to people with #CIDP and other inflammatory neuropathies bbc.co.uk/news/articles/…

It’s been a while since I’ve been in here. In town to talk #GuillainBarreSyndrome #CIDP and rare conditions as part of the #IAmNumber17 campaign #ElevateCareForRare

Please share or donate plasma if yous can , it’s life changing for me. If not for this treatment I would certainly be in a wheelchair 🫶🏻💙 #cidp #Plasmadonation

Is Sjogrens a neurological illness? Why are all these random patients have #Myasthenia #CIDP #POTS #sfn #NMO with Sjogrens and nobody cares to mention it often enough??
No Sjogrens is not dryness, took me 15 yrs of CNS & PNS involvement to get dryness

Living with #CIDP or another chronic variant? Looking for support? Join our video chat on Zoom today at 2pm for peer to peer support. Head to our website to find out how to join:
gaincharity.org.uk/virtual-branch…
#MADSAM #POEMS #PDN #MMN #CB

Hon Sakaja Arthur Johnson how difficult is it in making nairobi work yet you have CECMs,Chief officers,sub C admin,Ward admins,city inspectorate team,monitoring & evaluation team,Environmental officers,among others. Do they submit reports? I thought CIDP was to provide a roadmap?

難病受給者証の話。書類整理中にもしかして「高額かつ長期」に該当するんじゃないかと思って保健所に問い合わせ。したら該当するので今月中に申請したら来月から適応になるとのこと。いや今月ってもう平日は3日しかないし　ってことで保健所までドライブしてきた。いや遠いのよ毎回。 #cidp #難病

Chronic inflammatory demyelinating polyneuropathy (CIDP) may have resulted in changes to her daily routine, but Jamilah continues to find joy in her hobbies. Jamilah provides a glimpse into her diagnosis journey and shares advice for others living with CIDP.

#TogetherWeDiscover

CIDP in an Adolescent After Pfizer-BioNTech COVID-19 Vaccination - Practical Neurology practicalneurology.com/articles/2023-…

個人的な感覚として、肉体的疲労よりも精神的疲労、ストレスがCIDPに悪影響かなと。忙しくなって何かと気を遣った4月はとかく全身倦怠感。穏やかにいきたいものです。 #CIDP

予測値には社人研推計(出生中位・死亡中位)の月毎按分値を使用することにしました

twitter.com/search?q=from%…
→

Check out the latest blog post: 'Largest CIDP Trial Offers Promising Results for Drug Combo' on MDedge News. 70% of patients improved with efgartigimod plus rHuPH20 in the largest CIDP trial to date. Exciting findings! Read more here: ift.tt/K2GYFPC

Largest CIDP Trial Offers Promising Results for Drug Combo medscape.com/s/viewarticle/…

#AAN2024 : Compared with patients with #CIDP who received placebo, those who received #efgartigimod PH20 showed a decreased risk for clinical deterioration. ➡️brnw.ch/21wJ5kD @aanmember #NeuroTwitter

People affected by chronic inflammatory demyelinating polyneuropathy need close follow-up so that the medical team can ensure they receive the most appropriate therapies or medical interventions to prevent irreversible axonal degeneration. 📚Authorea

brnw.ch/21wJe2l

いつもの点滴&診察

今回は3週間保てる
まあまあ調子が良い
とは言っても握力26

G.W年無しに備える

アザニン50mg

#cidp
#難病
#年無し

4月１日から入院してグロブリンをいつもより多くいれてもらい現在体感７５％くらい回復してる感じ
そして今日また一日のグロブリン点滴！
これでどこまで良くなるかと期待だが自分としてはもう少し待って５日間のグロブリンをして全快を目指したいが先生は同意してくれない。
#CIDP

パヤパヤ ６０万人はこういう根拠で発言していると思います。
agora-web.jp/archives/24031…