Five years of memories, from tears to laughter 🙃
#UnexpectedJourney
#OurStory
#CysticFibrosisLife
#VihaanKrishna
FRIDAY 16 JUNE - WEAR YELLOW DAY
Cystic Fibrosis Trust
#cysticfibrosis #cf #cysticfibrosis awareness #cf awareness #roses #cysticfibrosis fighter #cf warrior #curecf #chronicillness #cysticfibrosis foundation #cysticfibrosis warrior #trikafta #justbreathe #cf irl #cysticfibrosis life #cf life
FRIDAY 16 JUNE - WEAR YELLOW DAY
Cystic Fibrosis Trust
#cysticfibrosis #cf #cysticfibrosis awareness #cf awareness #roses #cysticfibrosis fighter #cf warrior #curecf #chronicillness #cysticfibrosis foundation #cysticfibrosis warrior #trikafta #justbreathe #cf irl #cysticfibrosis life #cf life
Cystic fibrosis patients' weight gains on Kaftrio were largely driven by changes in fat and low-density muscle, a study found. buff.ly/4awCVwS #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
A report by Novotech, a consulting service for trials and drug development, assesses trends in the CF research and treatment landscape. buff.ly/4aPtIPW #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
Highly effective CFTR modulators may ease low iron level signs in some CF patients, but low levels persist in about a third of those treated. buff.ly/3TSHRFm #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
The Phase 3 clinical trial ARRIVAL tested Kalydeco in multiple groups of children with CF younger than 2, including 7 babies 1-3 months old. buff.ly/4aTZzPQ #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
Bravery comes in all sizes, and my little warrior proves that every time he smiles through his tests. 💪❤️
#CysticFibrosisWarrior
#SmileThroughChallenges
#BraveHeart
#Inspiration
#VihaanKrishna
#cysticfibrosislife
#livinglifewithcysticfibrosis
Columnist Lara Govendo struggled with anxiety before her recent appendix removal surgery, but the experience offered an important reminder. buff.ly/4arzzLE #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
Cake cheskovadam asala easy task kadu naa lanti vallaki😅 fat calculation must vihaan kosam😇
#cfmom #cysticfibrosislife #pancreaticinsufficiency
#chocolatecake #airfryerrecipes
The Cystic Fibrosis Foundation will present ResearchCon, a free virtual event that will explore advances in CF treatments, disease's future. buff.ly/49xBBbZ #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
New hope for kids with CF
#differentdream #specialneedsparenting #cysticfibrosis #cysticfibrosis life
cff.org/community-post…
Night antha padkoledu Blocked nose , cold , comfortable ga ledu
Appointment schedule ayindi repu doctor ni kalvadaniki .
Ee lopu cough start avthe antibiotic start cheymani chepparu.
#cysticfibrosis #cysticfibrosis life
A U.K. report on effects of Trikafta/Kaftrio for 12 children found stability in lung function more likely than dramatic gains of its trials. buff.ly/3vM96JH #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
In a laboratory, researchers identified rare CFTR mutations that could be responsive to CFTR modulator therapies. buff.ly/4aFYIln #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
Repatikosam prepare chestuna vadili Movie potha ani ,crowd ekva unna place ki velladdu vadu anduke tiskapovatle repu, oka 10 days ala ayyaka tiskeltham movie ki vadni😇.
*husband chuskuntadu nen ochevarki vihaan ni 😊.
#proudmom #cfmomlife #cysticfibrosislife
#BroTheAvathar
WHO WOULD WANT ONE!?!?!! ENTER BY MAKING A DONATION TO MY VENMO/Paypal/Cashapp - BEFORE CHRISTMAS AS I CONTINUE TO COLLECT FOR CF RESEARCH!
Message me for the link to donate to enter! Winner will be picked DECEMBER 26th!
#LETSGETLOUDER
#CYSTICFIBROSISLIFE
Fish On First any…
Marcus Lemonis Camping World I’d love to travel more during the summer but the fear of germs and having to lug about all his equipment keep us home. An RV would make things so much easier and we could keep it clean unlike hotel rooms! #CysticFibrosisLife #CampingWorldSummer
Better safe than sorry is columnist Kristin Entler's motto as their family figures out how to avoid COVID-19 during a busy tourist season. buff.ly/4amPTxk #cysticfibrosis #cfwarrior #curecf #cysticfibrosis life
We'd like to wish a very happy Diwali to everyone in our community who are celebrating ✨✨✨
This year, Swapnali tells us about her daughter Aslesha’s diagnosis, life with CF, and how they celebrate Diwali.
cysticfibrosis.org.uk/news/we-celebr…
#cysticfibrosislife #diwalicelebration
