Applications for Progress at the Heart close on May 24! Apply for funding that supports initiatives addressing disparities in treatment access and care in the rare neurological disease community. harmonybiosciences.com/funding-progra…
#ProgressAtTheHeart #RareDiseases #FragileX #SleepDisorders
The @Harmonybio & RECONNECT study team is committed to creating & deepening ties within the Fragile X community.
Read more about the message from the Harmony team & the RECONNECT study here: hubs.ly/Q02wKlCg0
#fragilex #nfxf #nonprofit #research #fxsresearch
Today, we share with you the 7th episode of 'A Day with Ben', a book to tell about FXS. With the help of Fraxi, a small blue puppet, we will better understand some common behaviours that children with this condition usually have. #fragilexawareness #togethermakingadifference
Understanding Fragile X Syndrome
What is anxiety?Why do people with Fragile X Syndrome suffer from anxiety?Watch the video and find it out!
To help FraXI achieve its vision,go to fraxi.org and donate.
#didyouknow #fragilexawareness #understanding #contextadaptation
Thanks to the Barcelona Centre Universitari for including Connecta Therapeutics, based at Parc Científic de Barcelona, in the latest Talent Guide 23/24 to facilitate the arrival of international students in #Barcelona . Amazing!
Download: bcu.cat/wp-content/upl…
#science #biotech #FXS #FragileX
We had a fascinating day of talks today at our Cerebra Network workshop: Anxiety in Rare Genetic Syndromes organised by Hayley Crawford . Thanks to everyone who presented Kayla Smith Jo Moss Jane Waite Jess Mingins #geneticsyndromes #anxiety #fragilex
OmG!!! Karen’s Guest mix is out of this world! Also new music from #globalgoon #ossa #fragilex #bitcloudy #abandonedtoys #yegods #dragonandjettenbach #nujumi #fieldswefound #stereominusone and much more in this cookie jar! Hollow Earth Radio 3pm Pacific! Here’s Karen’s tracklist!
CONNECTA Therapeutics, Centre for Genomic Regulation (CRG), HMar Research Institute and @i3ptt receive €2.7 M from the Spanish Ministry of Science and Innovation to begin Phase IIa trials for #CTH120 in #FragileX Syndrome .
Learn more: bit.ly/3uvHQhQ
#FragileX #CNS #RareDiseaseDay #NextGenerationEU
A mix for Tak Tent Radio by The Ephemeral Man
featuring The Prodigy Andrew Falconer The Leaf Library Kemper Norton Röyksopp Warp Brothers bvdub UNKLE #FragileX Daft Punk The Ephemeral Man Leigh Wright
LISTEN HERE>> taktentradio.com/?p=2906