Mary Stanton(@Rarity_Courage) 's Twitter Profile Photo

The story behind my profile picture, is that we were at a event, but I had to lay down for hours in an attempt to calm down my symptoms of due to this . I look “normal”, but I was struggling to be upright.

The story behind my profile picture, is that we were at a #chiari event, but I had to lay down for hours in an attempt to calm down my symptoms of #intracranialHypotension due to this #CSFleak. I look “normal”, but I was struggling to be upright. #LEAKWEEK #becauseyourduramaters
account_circle
🐈‍⬛ Cheryl Lee 🐈‍⬛(@mindbodymoveuk) 's Twitter Profile Photo

I'm starting to document my experiences with & It's so *rare* my GP says it can't be happening. Phone diagnosis. If I'm having a leak event I don't want to travel to the GP. Lying horizontal is best.
Full video & story: m.facebook.com/story.php?stor…

account_circle
spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

How do you raise awareness when you’re profoundly affected by ? One patient shares her experience of how posting on TikTok helps her connect with others and tell her story.
spinalcsfleak.org/raising-awaren…

How do you raise awareness when you’re profoundly affected by #spinalCSFleak? One patient shares her experience of how posting on TikTok helps her connect with others and tell her story.
spinalcsfleak.org/raising-awaren…
#rarediseaseday #intracranialhypotension #becauseyourduramaters
account_circle
spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

Today is ONE MONTH til the Fourth Annual Cedars-Sinai Intracranial Hypotension Symposium—and this year's symposium is ALL VIRTUAL! Register now: cedars.cloud-cme.com/course/courseo…

Today is ONE MONTH til the Fourth Annual Cedars-Sinai Intracranial Hypotension Symposium—and this year's symposium is ALL VIRTUAL! Register now: cedars.cloud-cme.com/course/courseo…
#SIH #intracranialhypotension #symposium2021 #spinalcsfleak #becauseyourduramaters
account_circle
spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

REMINDER: This year's Symposium is Saturday Oct 2! To register for the all-virtual 4th Annual Cedars-Sinai Intracranial Hypotension Symposium, visit: bit.ly/CSFLeak

REMINDER: This year's Symposium is Saturday Oct 2! To register for the all-virtual 4th Annual Cedars-Sinai Intracranial Hypotension Symposium, visit: bit.ly/CSFLeak #SIH #spinalCSFleak #intracranialhypotension
account_circle
Carolina Iten-SpinalCSFLeak Awareness Switzerland(@CarolinaIten) 's Twitter Profile Photo

Very happy this study was done and published! due to a is a highly disabling disorder with severe impact in life quality! Thank you to the authors for this, this helps to raise awareness & understand beyond symptoms!
bmjopen.bmj.com/content/12/1/e…

account_circle