Spinal CSF Leak Canada Charitable Organization(@SpinalCSFCanada) 's Twitter Profile Photo

'Happy National Volunteer Week! We celebrate the incredible spirit of generosity and selflessness of our volunteers. Thank you for your invaluable contributions and for making a difference in the lives of sufferers from

'Happy National Volunteer Week! We celebrate the incredible spirit of generosity and selflessness of our volunteers. Thank you for your invaluable contributions and for making a difference in the lives of sufferers from #SpinalCSFLeak 
#NationalVolunteerWeek
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Keren Leah(@KerenLeah) 's Twitter Profile Photo

🆕️🔓Case report 🧠 Progressive superficial siderosis despite complete remission of intracranial hypotension symptoms following epidural patching.

✍️ Ian Carroll, MD MS & WouterSchievink

💚 SSRA | Living with SS
…adachejournal.onlinelibrary.wiley.com/doi/10.1111/he…

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spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

Today we’re proud to participate in AHDA’s 17th annual Headache on the Hill advocating for support for the Safe Step Act, NIH Clinical Trial Diversity Act, & robust funding for VHA Headache Disorders Centers of Excellence. You can help too! secure.everyaction.com/vM031iL9DkW64S…

Today we’re proud to participate in @AHDAorg’s 17th annual Headache on the Hill advocating for support for the Safe Step Act, NIH Clinical Trial Diversity Act, & robust funding for VHA Headache Disorders Centers of Excellence. You can help too! secure.everyaction.com/vM031iL9DkW64S…  #HOH2024
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Simy K. Parikh(@SimyParikh) 's Twitter Profile Photo

can be challenging to diagnose. Dr. Friedman walks us through overlapping clinical symptoms with , post traumatic headache, occipital neuralgia, and American Headache Society

#SpinalCSFLeak can be challenging to diagnose. Dr. Friedman walks us through overlapping clinical symptoms with #migraine, post traumatic headache, occipital neuralgia, and #POTS @ahsheadache #AHSAZ
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Merike 🇪🇪(@m3rike) 's Twitter Profile Photo

This bloody disease is progressing & trying to get emergency help yesterday failed. At this rate I'll be fully bedridden in a few weeks with no help in sight. For a mostly treatable disease doctors refuse to believe without positive imaging. Medicine in 2024.

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Jr Wei Wu, MD(@Bohemian_Wu) 's Twitter Profile Photo

I’m so excited to talk about the diagnosis and treatment of and at the 2nd Headache Master School of Headache society! Also, we hope our master school can improve the quality of care of patients!

I’m so excited to talk about the diagnosis and treatment of #IIH and #spinalCSFleak at the 2nd Headache Master School of #Taiwan Headache society! Also, we hope our master school can improve the quality of care of #headache patients!
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spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

Dr. Sharath Kumar's introduction to spinal csf leak started close to home. Read his inspiring story and learn about his Clinician Education Initiative grant experience here: spinalcsfleak.org/kumar

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WouterSchievink(@WouterSchievink) 's Twitter Profile Photo

Progression of spontaneous subdural hematomas in a young man over a 3 month period with an untreated lateral . Various barriers to receiving care. He requested surgical repair so he could travel overseas without worrying about the hematomas. ⁦spinalCSFleak

Progression of spontaneous subdural hematomas in a young man over a 3 month period with an untreated lateral #spinalCSFleak. Various barriers to receiving care. He requested surgical repair so he could travel overseas without worrying about the hematomas. ⁦@spinalCSFleak⁩
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CSF Leak Awareness Ireland(@csfleakaware) 's Twitter Profile Photo

Huge congratulations to the multidisciplinary team involved in the development of this guideline.

Hopefully, it will also provide a useful template for the diagnosis and treatment of here in Ireland.

jnnp.bmj.com/content/early/…

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