It can be hard to navigate the NICE guidelines when experiencing brain fog or too weak to read, so I have screen shots of relevant passages

These are for #pwVSME regarding hypersensitivities

#SaveCarlasLife
#ExposeMENow
#BringMillieHome
#DontLetMEDie
#pwME

This is a much-needed paper. We also need to adapt and expand speciality care to #pwVSME - which will require a willingness and creativity to overcome the usual requirements for in-office visits; video and home visits, mobile imaging, coordinating w/ home nursing, etc.

This is an excellent must read piece from Dr Speight about how people with Very Severe M.E. are treated in hospital

#pwME #pwVSME

Steve Topple thought you might be interested if you haven't seen this yet

冷麺のランチですぅ
#colopl_a colo.pl/pwvsmE

New Regency taps Milchan for production post (Variety) feedzil.la/pwVSMe

Love Finds You in Amana, Iowa (Kindle Edition) newly tagged 'kindle': Love Finds You in Amana, Iow... amzn.to/PWVSME

@TheChronicCollaboration Cambridge ME group Jo @envirobite Katy B Kirstie Sivapalan Billboards for LC/MECFS ME Foggy Dog 💙 Long Covid Support 🌍 Rachel Charlton-Dailey 💖💜💙 Could #MarthasRule be implemented?

Supposed to start April2024

Certainly there is plenty of anecdotal evidence from other #SevereME friends, proving that #pwVSME badly deteriorated following extreme ‘activities’ (light/sound/speech) forced in hospital

hughjames.com/blog/marthas-r…

#AClass #Mercedes Produksi A-Class, Mercy Gandeng Velmet j.mp/PWVsme

New Regency taps Milchan for production post (Variety) feedzil.la/pwVSMe

Schuttevaer.nl: ‘Frontrunner' Ronald Versloot wint Telematica Award 2017: ‘Nuchter… goo.gl/fb/pWVsMe

New Regency taps Milchan for production post (Variety) feedzil.la/pwVSMe

Katy B David Strain It is a shame Dr S still uses PEM rather than PENE/PESE.
Also agree with everything you have said. PWVSME are so much more low functioning.

Hello 2016. Let's do this. instagram.com/p/_-pwVSmE-u/

Goedemorgen! Tim Knol vandaag te gast bij Giel Beelen, 'May Take Long', de titelsong van 'Koning van Katoren', live! 3fm.nu/PWvSme #3FM