No one should have to face cancer alone. Every member of the RCA Patient Support Team is dedicated to providing quality, timely and personalised information, support and guidance to anyone impacted by rare cancer #youarenotalone #rarecancer

👇Important investigator-initiated work for patients with #AdrenalCancer . Congratulations on seeing this hard work to the finish line! #RareCancers

Chelene’s aggressive ovarian cancer has spread to her groin and lungs. She’s asking for any help so she can spend more time with her family: bit.ly/3TOXFJ0

When cancer treatment is finished, there can be an adjustment period while you get used to life without a busy appointment schedule, and decide where to direct your energy. Our Looking Ahead booklet has some tips: bit.ly/3VD9C47 #RCSG #cancersupport

A recent study by Olga Husson and colleagues
The Netherlands Cancer Institute presented at #ESMOSarcomaAndRareCancersCongress24
ESMO - Eur. Oncology showed that in the Netherlands #RareCancers patients experience considerable diagnostic delays (1/4)🧵👇
#WorldHealthDay2024 #MyHealthMyRight
esmoopen.com/article/S2059-…

Exciting advancements in KRAS-specific therapies! There remains a need to advance therapies for #rarecancers . With your generous support, we continue to fund #appendixcancer research with the goal of finding a cure. mdanderson.org/cancerwise/wha…

The power of community was strong when the Bega Oncology team took out the Corporate Cup for their fundraising at our #kosichallenge last month.

We welcome the news that yesterday the LIBE Committee Press and ENVI Committee Press have accepted the politically agreed text of the European Health Data Space #EHDS  Regulation!
⌛️The plenary adoption of the EHDS is scheduled for the 24th of April.
#HealthData #RareCancers

Very special morning getting to show Senators Askew & Kovacic around ProCan & CMRI

Great to discuss our #proteomic research & challenges faced in #sarcoma , rare&young people cancer care&research 💛

Eagerly await Equity in #RareCancers
senate #enquiry report coming 16/5/24

1⃣Almost 25% of the 1,541 #RareCancers patients waited more than 3 months for referral to hospital following their first primary care consultation.
2⃣Almost 15% waited more than 3 months after the first hospital physician appointment to receive their diagnosis (2/4) 👇

Know the symptoms of #oesophagealcancer and see your doctor immediately if you’re concerned. About 1,700 Australians will be diagnosed this year. #rarecancer #oesophagealcancer awarenessmonth

Congratulations to the Crossman family and Dani’s Dynamos, who took out our #kosichallenge team fundraising title last month! 🏆️

Join us live at the SD Convention Center for our poster presentation today! Certis will present “A Multi-Targeted Approach to Evaluate Therapeutic Selection and Efficacy in Preclinical GBM Models.' Learn more: hubs.la/Q02nstzd0. #AACR24 #GBM #RareCancers #FightCancer

It’s not too late to support our Kosi Challenge teams, like the crew from Boehringer-Ingelheim completing their virtual Kosi Challenge! Visit: kosichallenge.com.au

The CDMRP Rare Cancer #research Program supports research of #rarecancers that the active-duty #Military population. LTC Brett Theeler, M.D., discusses the importance of multi-institution #collaboration . #cancerresearch Full video here: youtube.com/watch?v=acEVDH…

3⃣The initial diagnosis was not correct in 32% of patients, and indeed, 45% of these patients received treatment for the incorrect diagnosis. One contributing factor to this scenario is the limited availability of extensive, high-quality #data (3/4)👇 #RareCancers #MyHealthMyRight

Lack of basic #Cancer treatment equipment ‘embarrassing’, inquiry told, by Mariella Attard. Senators were told access to treatment isn’t great, even if you live in the city, and much worse if you don’t. healthservicesdaily.com.au/lack-of-basic-… #rarecancers #healthservices

Lack of basic #Cancer treatment equipment ‘embarrassing’, inquiry told, by Mariella Attard. Senators were told access to treatment isn’t great, even if you live in the city, and much worse if you don’t. healthservicesdaily.com.au/lack-of-basic-… #rarecancers #healthservices

🐇Our April Issue is available to browse🌺

📘Cover: Asbestos dust, exposure to which is a major factor in the development of mesothelioma, the focus of this Issue

👉Browse the contents
🔓buff.ly/3vJeoFN

#Mesothelioma #PleuralMesothelioma #CancerResearch #RareCancers