Facing #RenalMedullaryCarcinoma ? You're not alone. Passionate advocates & respected researchers are raising awareness and improving survival rates. Stay tuned as experts work towards doubling survival rates #RareCancers #kidneycancer
Christina Kyriakopoulou, Scientific officer at EUScience&Innovation🇪🇺 kicks off the fourth plenary meeting of #IDEA4RC Istituto Tumori in Milan
#RareCancers #HealthData #EHDS #RealWorldData #research Horizon Europe🇪🇺
Happy to meet my MD anderson alumni mentor, Razelle Kurzrock, MD
and a friend, Vivek Subbiah, MD at the TargetCancer Fdn Foundation Think Tank meeting. Appreciate of Jim Palma’s leadership in leading the organization advocating for #rarecancers .
Thanks for the photo in the early hours Shaun Murphy at Venue Cymru. Thanks for being so nice. Watching live snooker is one of my bucket list things ✅
The Onefourseven Snooker Podcast
#welshopen #snooker #shaunmurphy #bucketlist #livingwithcancer #rarecancers
Did you know 90% of Neuro-Endocrine Tumours (NET) are incorrectly diagnosed and treated ?
#RareCancers
'We must fix the postcode inequity for Australians with #rarecancers ' Tune into Christopher Steer @1130AEDST as he gives evidence to House of Parliament
aph.gov.au/Parliamentary_… Janet Rice Senator @louise_pratt #cancerequity #rarecancers
aph.gov.au/News_and_Event…
Great talk and noteworthy results presented by dr Elena Palassini today at #ASCO2023 #sarcoma oral abstract session.
Concurrent #chemoradiation in high-risk STS is feasible and effective
Italian Sarcoma Group GEIS Istituto Tumori
#ASCO2023 day 4 #rarecancers
Shared my experience of treating #rarecancers through #NCI MATCH and SWOG Cancer Research Network S1609 DART trials with various rare cancer experts at the TargetCancer Fdn foundation. We need to think outside the box especially when dealing with #raretumors . The Hope Foundation for Cancer Research NCI CTEP Clinical Research Lurie Cancer Center
Very special morning getting to show Senators Askew & Kovacic around ProCan & CMRI
Great to discuss our #proteomic research & challenges faced in #sarcoma , rare&young people cancer care&research 💛
Eagerly await Equity in #RareCancers
senate #enquiry report coming 16/5/24
Great news for 🇦🇺 #sarcoma patients
Trabectedin is now available on PBS for advanced #liposarcoma #leiomyosarcoma
Australia and New Zealand Sarcoma Association Rare Cancers Australia👇
Thank you @Richard_Vines CEO and Founder for Rare Cancers Australia Australia for advocating and working so hard to being precision medicine to patients
#HTAi2023 #HTAi2023 Adelaide #WeAreRare #RareCancersAwarenessDay
#IDEA4RC researchers have identified the legal and ethical requirements needed to deploy the pilot projects across the 11 clinical centres in the consortium
👉Read more about how they did so in the summary of the latest deliverable idea4rc.eu/2024/04/24/pil…
#RareCancers #HealthData
🎉 Today is #RareDisease Day Join us this month to raise awareness for those living with #ACC and other #rarecancers . #ACC is diagnosed in about 4 in 1 million people ea. year and impacts more than 200,000 patients. Share, post, tag #RareDisease #ShareYourColours #LightUpForRare
What a fantastic opening plenary by Prof Friedlander #COSA2023 . The recognition of the complexity of #ovariancancer and adapting to the ever evolving understanding and treatment options. Molecular testing is essential. Personalised care essential. Rare Cancers Australia
✉ The fourth issue of the #IDEA4RC #newsletter is out!
What are the challenges in navigating the shifting EU legal landscape about #HealthData sharing and re-use❓
👉 Read the complete issue our website
idea4rc.eu/newsletters/?i…
📥 Subscribe
idea4rc.eu/newsletter-sig…
#RareCancers
Today we are celebrating the 4th Anniversary of CURE ID! Thank you to everyone who has put time and effort into the success of CURE ID. We are also announcing the expansion of CURE ID to other therapeutic areas including #RareCancers , and Rare Genetic Disorders #drugrepurposing
🐇Our April Issue is available to browse🌺
📘Cover: Asbestos dust, exposure to which is a major factor in the development of mesothelioma, the focus of this Issue
👉Browse the contents
🔓buff.ly/3vJeoFN
#Mesothelioma #PleuralMesothelioma #CancerResearch #RareCancers
Wonderful presentation by Thomas Szabo Yamashita! Pushing the boundaries for #rarecancers . Great job! Nancy Perrier MD Anderson Cancer Center American Association of Endocrine Surgeons The future of endocrine surgery is bright🌟
