It is World M.E. Day today and I don't know how to put into words, how much Myalgic Encephalomyelitis has affected my life for the past 18 years. So here's my poem...please share this far and wide. #WorldMEDay #pwME #MEAwarenessDay

Thank you to Emily (Kara Jane sister) for sending in this video to be part of #TeachMETreatME #MillionsMissing . Kara Jane touched so many.

Please join in today. Info at millionsmissing.org.

Full video:
youtu.be/h_PlrK0Nprg?si…

#WorldMEDay #pwME

SELFIESSS HAPPY #WORLDMEDAY — CURE US SO I CAN SEE THE SKY MORE

K bye 🫶🏽😘

Once I was a happy mother, able to celebrate #MothersDay . #LongCovidKids #HappyMothersDay #MEAwarenessDay #WorldMEDay

U.K. #MEcfs peeps - Please copy & paste the letter linked below to your MP to demand #Justice4ME
#WorldMEDay #MEAwarenessDay

docs.google.com/document/d/1km…

My #MyalgicEncephalomyelitis child 10y ago. 5y into her battle. Now 15y. Functions 50% normal. 20+y 4 me. Developed private signal to leave dr. appt if dr. became abusive. She was 17. Medical trauma is pervasive & devastating for pw/ME. Even children. #MEAwarenessDay #WorldMEDay

Ich hasse es ! Vor #LongCovid #MECFS habe ich nicht mal IBU genommen … dieses ständige Pillen packen - Pillen schlucken… Ich bin es so leid !
#MEAwarenessDay #MECFS #LongCovid #WorldMEDay

Three peaks. Three causes. 24 hours? 🏔️⏱️

No problem.

Find out how our incredible #ThreePeaks team got on over the weekend of #WorldMEDay : ow.ly/hTEZ50RG6VE

The hiking may be finished, but the fundraising continues: ow.ly/gR3C50RG6JI

#pwME #MECFS #MyalgicE

It’s #WorldMEDay #SettlerSunday and Mother’s Day. I’m a fur baby mamá, and a 2S disabled reconnecting #IndigenousArtist who needs $650 to feed, clothe, keep cooking gas on for me, my love + our pets. #LongCovidAid

P: mayadavidgarcia
V/C mxmayagarcia
Art: mayasdivinedesignstoo.square.site

After #WorldMEDay yesterday Nicola is resting. Well, that's Steve's excuse anyway for donning yet another outfit of hers for today's #ZebraChallenge for #EDSAwarenessMonth 🦓😋🦓 this is a jacket believe it or not, and size 8 as well 😮

In Germany, Lying Demonstrations were organized in 12 cities. Mirame Arts was involved in the demonstration in Bielefeld, where they hosted discussions with members of the Federal Parliament. They also launched short film for #WorldMEDay #MECFS
buff.ly/4avbUt3

To everyone from the M.E community
Thank you all so much for your support ,cards, gifts & donations during my hospital stay .
I can't find the words to express how grateful I am for the overwhelming support.
You all helped me stay strong & positive 💙
#WorldMEDay
#ExposeMENow

My God! Look at that colour. It's been such a long grey Winter. I'm grateful to have gotten out in the sun this afternoon with my bestie.

I spend so much of my precious life indoors. Many #pwME are so severe they can't leave their bed at all. #WorldMEDay

#MEawarenessDay #MEawarenessWeek
#MEawarenessMonth #MEnotCFS #WorldMEday
#GlobalVoiceForME 💙
ME is a global health crisis...
I have been suffering with ME for over 24 years. It has stolen any chance of life I had(I was 14 when diagnosed). The way #PwME are treated is a scandal!

In Canada, The Montreal Tower was lit up blue thanks to the work of AQEM. They also launched the “PAEM Olympiques”, a series of stories to demonstrate the daily struggle people with ME face compared to professional athletes. #MECFS #WorldMeDay
buff.ly/3yCakbm

Dear World,

As a mother of a child with covid-induced severe #mecfs #longcovid , you're failing us. Feeling this deeply on #mothersday and #WorldMEday is extremely disappointing. Over the past 1.5 years, since my daughter caught this preventable yet extremely debilitating

This May marks the beginning of my 15th year with #MECFS and this June my wife @K_Lazell’s 5th with Long Covid. Here we are in 2010 hiking Mount Washington, and today. #MEAwarenessDay #WorldMEDay 1/4

I am:
A journalist
A girlfriend
A bereaved mother
A social media manager
A Taylor Swift fan
A lover of sushi
A wearer of bows
A person with ME

For me, it’s a big part of my identity. It’s changed my life. But I’m still me without ME 🤍

#WorldMEDay

On May 29th, MECVS Netherland will be hosting a symposium entitled “My House is My World” to mark World ME Day. You can still register to join in person or online! This event will be held in Dutch. #WorldMEDay #MECVS #MECFS #MyalgicE
buff.ly/3V9RbGD