Avril Kennan 🌍(@AvrilKennan) 's Twitter Profileg
Avril Kennan 🌍

@AvrilKennan

CEO, Health Research Charities Ireland - @HRCIreland (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her

ID:221407296

linkhttp://www.hrci.ie calendar_today30-11-2010 15:52:03

4,0K Tweets

2,8K Followers

2,8K Following

Health Research Charities Ireland - HRCI(@HRCIreland) 's Twitter Profile Photo

Exciting news! We've just launched the Report & Recommendations from the Nov 2023 Irish Health Research Forum, delving into the future of biobanking in Ireland. Find the report and one page snapshot here hrci.ie/biobanking-in-…

Exciting news! We've just launched the Report & Recommendations from the Nov 2023 Irish Health Research Forum, delving into the future of biobanking in Ireland. Find the report and one page snapshot here hrci.ie/biobanking-in-… #HealthResearchMatters
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Health Research Charities Ireland - HRCI(@HRCIreland) 's Twitter Profile Photo

Today we acknowledge the incredible women driving impactful change in health, medical, and social care research! From researchers to PPI Representatives and staff in our research-focused member charities, your contributions are invaluable. Thank you! πŸ™ŒπŸΌ

Today we acknowledge the incredible women driving impactful change in health, medical, and social care research! From researchers to PPI Representatives and staff in our research-focused member charities, your contributions are invaluable. Thank you! #HealthResearchMatters πŸ™ŒπŸΌ
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Avril Kennan 🌍(@AvrilKennan) 's Twitter Profile Photo

Congrats to the HealthResearchBoard for their very significant support of . Many of those supported are gathering today at the Rare Disease Clinical Trial Network, Ireland, 2024 event to discuss how to address the unmet needs of patients & families, through research & collaboration.
Health Research Charities Ireland - HRCI

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Brian Lynch(@brianmlynch) 's Twitter Profile Photo

Honoured to be the new Chair of Health Research Charities Ireland - HRCI, an organisation making a real difference in championing health research - and giving voice to some 45 member organisations, representing 2m people in Ireland.

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Avril Kennan 🌍(@AvrilKennan) 's Twitter Profile Photo

Debra Regier, Children's National Hospital πŸ₯ talks about the heart & soul at the centre of rare disease research, as well as the importance of communities of practice. At the Rare Disease Clinical Trial Network, Ireland conf.
Note the tiny zebra she brought with her. πŸ¦“


Debra Regier, @ChildrensNatl talks about the heart & soul at the centre of rare disease research, as well as the importance of communities of practice. At the @rare_trial conf. Note the tiny zebra she brought with her. πŸ¦“ #ShowYourStripes #RareTrial24 #RareDiseaseDay2024
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Debra - The Butterfly Skin Charity(@debraireland) 's Twitter Profile Photo

Today, on the eve of , Debra’s Head of Advocacy, Research and Policy Sinead Hickey along with Deirdre Callis, Head of Family Support Services, and Dr Rosemarie Watson, Debra Board member and former Director of EB Services in Ireland, presented the need for

Today, on the eve of #RareDiseaseDay2024, Debra’s Head of Advocacy, Research and Policy @SSineadHickey along with Deirdre Callis, Head of Family Support Services, and Dr Rosemarie Watson, Debra Board member and former Director of EB Services in Ireland, presented the need for
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Rare Disease Clinical Trial Network, Ireland(@rare_trial) 's Twitter Profile Photo

What is ? What does it involve? Learn this and more during a Meet & Greet chat at the Rare Disease Clinical Trials Conference! Join @cassandradinius of Rare Disease Clinical Trial Network, Ireland Dylan Keegan of UCD Clinical Research Centre and Ger Halpin of PPI Ignite Network Ireland

REGISTER: forms.gle/sozhmyvjQowL8N…

What is #PPI? What does it involve? Learn this and more during a Meet & Greet chat at the Rare Disease Clinical Trials Conference! Join @cassandradinius of @rare_trial Dylan Keegan of @UCDClinRes and Ger Halpin of @PPI_Ignite_Net #RareDiseaseDay REGISTER: forms.gle/sozhmyvjQowL8N…
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Health Research Charities Ireland - HRCI(@HRCIreland) 's Twitter Profile Photo

Thank you PatientView for highlighting the importance of patient-focused groups like us and our member organisation, CF Ireland, in health research. There is so much wisdom in our community.

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Avril Kennan 🌍(@AvrilKennan) 's Twitter Profile Photo

Such a stunning video telling the story of Fighting Blindness. A story close to my heart as my career started in a Fighting Blindness-supported lab.
Creator: Laura Finnegan

youtube.com/watch?v=f1Emn8…

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Avril Kennan 🌍(@AvrilKennan) 's Twitter Profile Photo

Sad to read about the passing of John Ryan.
'Tributes paid to Irish health official β€˜central’ to EU Covid-19 response.' irishtimes.com/health/2024/02…

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Jim Elliott(@Drakesyard) 's Twitter Profile Photo

This seems like a good initiative that all medical journals should follow. Can't vouch for how accessible the Plain Language Summaries are for this journal but 'full marks' for doing this (haven't yet taken the time to read a bunch of them carefully)

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Avril Kennan 🌍(@AvrilKennan) 's Twitter Profile Photo

Great to see this. Huge credit to Les martin, Rare Diseases Ireland, IPPOSI and others for keeping it on the agenda. Children not yet born will have very different lives because of it.

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