Are you our next Citizens' Jury Coordinator? We're seeking an enthusiastic person to join our IPPOSI team to support the delivery of a 2024 Citizens' Jury on the use of Artificial Intelligence in Healthcare. Deadline of March 28th so get your CV in. ipposi.ie/ipposi-is-hiri…

Minister for Health Stephen Donnelly speaking at #RareDiseaseDay conference. 'Having a coherent national strategy is key for future proofing investment in this area'. IPPOSI Rare Diseases Ireland Health Research Charities Ireland - HRCI RARE Ireland EURORDIS-Rare Diseases Europe

The deadline of Monday Jan 22nd for applications for our new Training Project Coordinator is fast approaching. Make sure your application is in by then! #jobfairy

The NCAGL for Children & Young People is leading a project on the transition of care (TOC) for young people who move from child to adult health services. Please share the below HSE survey with young people (18-26) & families to capture their experiences of TOC .…

Many thanks for facilitating Suja. Some great feedback from the students. The chat function was melting.👍

Delighted to be asked to join the Steering Group to develop the New Rare Disease Plan for Ireland. #Universalhealthcare Sláintecare HSE Ireland Department of Health #patientsinvolved

Thanks for sharing Jim Elliott

'Involving patients in their digital healthcare journey will improve outcomes', convenience, and trust. Strong focus on patient and public involvement from Minister Ossian Smyth TD at #BetterTogether conference on Digital Health. 👏

Superb session on inclusivity of health research with Avril Kennan 🌍 , Fidelma dunne , Cliona Ni Cheallaigh, David Shaw and Noreen Doyle at the National Conference on Research Ethics in Dublin. #researchethics
HealthResearchBoard Health Research Charities Ireland - HRCI
National Office for Research Ethics Committees
HSE Research & Development
PPI Ignite Network Ireland
IPPOSI

Really insightful discussions at Health Research Charities Ireland - HRCI IHRF event this morning on #biobanking for research in Ireland. Uncomfortable truths aired and real passion to mobilize national level approaches. Maith thu.. #healthresearchmatters #patientsinvolved

As a hurler, I'd have to say ' yes, yes it is'...

INHED is delighted to announce that our 2024 annual scientific meeting will be held RCSI on January 24th & 25th!
The conference theme is Building Relationships in Health Professions Education and the call for abstract submissions is now open! inhed.ie/inhed2023asm/

Did you know only 0.1% of our DNA is different? This may seem like a small amount but it means that we can have 3 million variations in our 3 billion-letter genome. Want to continue the conversation about DNA & genomics? Join us for a workshop in November bit.ly/3FjeeWE

The PPI Ignite Network Ireland National PPI Festival is back! On 24 October from 1-2 p.m. we'll be hosting an event about our Patient Dragons' Den. Our Dragons' Den is a great example of embedding PPI in research and education, so please join us to learn more. bit.ly/45BvBgq

DASSL (Data Access, Sharing, Support, Linkage) proof of concept report launched today by HealthResearchBoard. The entire health information system is in the room. Heavy emphasis on improving data quality and value of public engagement. We can do this.. hrb.ie/funding/approv…

Did you know that IPPOSI co-chairs the HSE Ireland National Patient and Service User Forum (NPF) with @22q11_Ireland ? We attended the National Clinical Programmes Conference last October and thought we should try to host a National Partnership Conference.

The 2023 cohort of our Patient Education Programme is in Dublin today learning all about Health Technology Assessment (HTA) with NCPE. Special thanks to our peer mentors, Mandy Daly and Sorcha Boyle (both IPPOSI grads) for sharing their knowledge and expertise!

🤔 What are #patientorganisations and individual patient advocates' perceptions of and ideas about #AI applications in healthcare?

Last Spring, EPF set out a #survey on exactly this topic. Today, we share the results.

Have a look: bit.ly/3NMuFin

🌟1st MADE WITH PATIENTS AWARDS = 1 month | 140 submissions | 4 continents | 61 nominations | 44 initiatives | 8 expert jurors

🏆 Best tool implementation
🏆 Best engagement model
🏆 Collective Intelligence
🏆 Rising Stars
🏆Hall of Fame
🏆 Jury's Special Award

🤞 #ChangeAgents

Cervical Cancer is the 2nd most frequent cancer among women in Nigeria. Dr Maureen Umemuo stuns the room here with sobering stats - nearly all patients present at late stage, only 18 Rad Oncs in a country of 200 million, no screening and no HPV vaccine. #GCIG @Asco #ASCO2023