#MEAction Network
@MEActNet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing
https://t.co/JhhNZoFYJi
ID:2501259470
http://meaction.net 17-05-2014 10:54:10
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Hannah Davis
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Janet Dafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
It'sME(Jaime)
Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
ME/CFS News
News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
We have $2000 left of our match from a generous donor. Please give today and your gift will be matched! #MillionsMissing #TeachMETreatME need your support! meaction.net/donate
Thank you!!!
#pwME #LongCovid #MECFS #MyalgicEncephalomyelitis
Attention all-exciting news! 🌟We heard your feedback! We've made some changes to make our CURE ID #LongCovid case report form faster, smoother and more user-friendly. Share your treatment experience today!
#LongCovid Awareness
For #MillionsMissing 2024: #TeachMETreatME we are asking the community who would like to to submit a quick video recording to be featured during the campaign week.
Instructions: docs.google.com/document/d/1JK…
#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid
The week of #MillionsMissing and #TeachMETreatME is coming soon - May 3- 12th. We have a Show Up From Home Toolkit with actions you can take based on energy levels. Thank you to Beth for sending us this photo we can share for an example of ask number 3! bit.ly/HomeMM2024
We will be focusing our online #TeachMETreatME #MillionsMissing on the week of May 3rd- May 12th.
Show Up From Home Toolkit bit.ly/HomeMM2024
We organized actions by energy levels as summarized in this graphic but check out the toolkit for lots more details!
#pwME
Thrilled to see #MEAction Network's #TeachMETreatME home toolkit now available ahead of #WorldMEDay !
With actions laid out by energy level, you can choose how to take part in this brilliant and powerful campaign from our member organisation.
#MillionsMissing
buff.ly/3UmXqXd
NHS hospitals must do better! #SevereME patient, 23 year old Carla, is deteriorating rapidly in hospital. Doctors have cancelled vital referrals, ignored experts’ instructions & caused MORE pain.
See @TheChronicCollaboration for live protest info.
#SaveCarlasLife #ExposeMEnow