With your help, #DecodeME has built the world’s largest data set on ME/CFS.

We are now welcoming data access applications from researchers who wish to use this in studies into ME/CFS and other diseases.

Find out more ➡️ shorturl.at/iBW78

Recruitment for our recent Mason-funded ME/CFS biomedical study in VIC, Australia is LIVE! Please get in touch if interested or have questions. Some more info: docs.google.com/document/d/1-2…

#MECFS #LongCovid #Victoria #Science

🚨 Reminder 🚨

Tomorrow, May 1, Sir Sajid Javid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30

You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs

Another autoimmune @dysautonomia.
'A novel mechanism of idiopathic orthostatic hypotension and hypocatecholaminemia due to autoimmunity against aromatic l-Amino acid decarboxylase'
S Blitshteyn MD, FAAN, Dysautonomia Clinic
pubmed.ncbi.nlm.nih.gov/38677008/

Royal College of Physicians Edinburgh online event on ME/CFS & #LongCOVID for clinicians & students

Tuesday 4th June 2024, 6.00pm – 8.30pm (BST)

Speakers include Dr Nicola Clague-Baker , It'sME(Jaime) , Putrino Lab & Danny Altmann

events.rcpe.ac.uk/rcpe-mecfs-and…

#MEcfs #PwME

Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance #MECFS

journals.physiology.org/doi/abs/10.115…

I'll also point out there's a lot of daylight between No PEM and Mild (50% impairment). This is a challenging population requiring special monitoring and education, because they feel lousy but are good enough at faking being well that we clinicians may assume there's no problem.

'Toward a Common Research Agenda in Infection-Associated Chronic Illnesses' by the US National Academies of Sciences, Engineering, and Medicine.

#MECFS #LongCovid #MultipleSclerosis #POTS
europepmc.org/article/nbk/nb…

🚨 Westminster Hall debate on #MECFS 🚨

Our new Parliamentary Champion, Sajid Javid, will be leading a #WestminsterHall debate on Weds 1 May, 16.30 - 17.30 ahead of #WorldMEDay

Read the full article on our website to find out more
ow.ly/GBl550RoKJ8

#pwME #MyalgicEAction

We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks.

Please help us raise awareness by sharing this tweet.
More info: weandmecfs.org/awareness

Donations help us liberate those affected. 🙏
#MECFS 💙

The story of frequent persistence of #SARSCoV2 in multiple organs after mild Covid keeps getting stronger, and correlates (odds ratio >5) with symptoms of #LongCovid
🆕The Lancet Infectious Diseases
thelancet.com/journals/lanin…

Dr. Grubb and colleagues recently published this review of the literature on autoimmunity in #POTS and #OH . They highlight the mounting evidence that autoimmunity plays a role in both conditions. See more details in comments below.

Read the article at mdpi.com/2075-4426/14/4…

I hope our op-ed in The Hill will raise awareness of the need for substantial funding for pre-pandemic ME/CFS. Treatments are needed for all infection-associated chronic conditions. thehill.com/opinion/461560…

We are grateful for Bernie Sanders leadership on #LongCovid . We enthusiastically support his Moonshot proposal, which we believe will greatly benefit the millions suffering with this condition.

We just sent his team our feedback, and wanted to share our thoughts with you all.

🧵

BMJ Rapid Response:

Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis

#MyalgicEncephalomyelitis

bmj.com/content/383/bm…

Introducing the 2024 *updated* entry for #MECFS in Australia’s
RACGP guide for General Practitioners: 👀 let’s review the changes 1/ 🧵
[TW: graded exercise therapy GET,
CBT, the PACE trial]

Last week I spoke with Guardian columnist George Monbiot about his scathing rebuke of the biopsychosocial brigades and their bogus research into ME/CFS and Long Covid, the so-called 'Science Media Centre,' etc. Here's an edited transcript of our convo: virology.ws/2024/04/23/tri…