It's #EDSAwarenessMonth 🦓 & clearly Nicola Jeffery's cervical junction got the memo as several of her cranial nerves seem to be going haywire - causing dysphagia pressure headache & generalised maxillofacial neuropathy & discomfort. Or rather - she's got a pain in her neck 🙄

To give a rough idea of what topics are included in our online training 👇

More info available on our website (link in bio)

#SocialEnterprise

Stripy Lightbulb CIC ME Foggy Dog 💙 Excellent. So the history covers the associated stigma? That is such an important thing for people to really understand... the fear of engaging with medical situations of all kinds etc....

Had the privilege of writing an article for the launch of @TheChronicCollaboration website!

New long Covid study? Spoiler: it's more psychologising junk, with links to all the usual suspects.

Thanks Steve Topple and Nicola Jeffery for the chance to write it!
thechroniccollaboration.com/long-covid-stu…

Check out @TheChronicCollaboration's new website!!

Very happy that ME Foggy Dog and Stripy Lightbulb CIC are in the 'allies' list 🙏💙💪

Sign up to the newsletter so you never miss an update!

thechroniccollaboration.com

#PwME #MEAwarenessHour

We are a #SocialEnterprise .

Specifically, we are a Community Interest Company (limited by guarantee), the community we work for is the #MEcfs community in the #UK and internationally.

Basically, we are a not-for-profit business.

Check us out! - link in bio

Latest update.

This is why the M.E community needs medical staff at all levels to learn about M.E.

All of this distress to Carla and her family would have been avoided if staff knew what they were dealing with.

#NHS #MedTwitter

Can we push this really important open letter to 1,500 signatures in the next 90 minutes?

#SaveCarlasLife #BringMillieHome

1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome

Our response to the BBC re Dragon's Den.

*Correction* 3 million people watched the original screening on 18th January 2024. This makes a public apology and tackling the stigma even more important!

youtu.be/EYtY24k_mDM

#pwME #BBC #DragonsDen

Our response to the BBC re Dragon's Den.

*Correction* 3 million people watched the original screening on 18th January 2024. This makes a public apology and tackling the stigma even more important!

youtu.be/EYtY24k_mDM

#pwME #BBC #DragonsDen

Same nonsense, different continent.

The negative ripple effects of the #UK #PaceTrial are seemingly never-ending.

#pwME #Medicine

🚨 Westminster Hall debate on #MECFS 🚨

Our new Parliamentary Champion, Sajid Javid, will be leading a #WestminsterHall debate on Weds 1 May, 16.30 - 17.30 ahead of #WorldMEDay

Read the full article on our website to find out more
ow.ly/GBl550RoKJ8

#pwME #MyalgicEAction

This was a year ago today!

We were holding a F2F training event in Temple of Peace #Cardiff on #MEcfs .

Watch - youtu.be/VP6TO8YUM64

It was a very well received event that we hope to replicate in future.

Read - stripylightbulb.com/2023/05/18/suc…

#SocialEnterprise

#SaveCarlasLife #BringMillieHome some updates and what's been, and will be, going on...

Like we haven't got ENOUGH to deal with - the BBC Executive Complaints Unit has said 'no case to answer' over the #AcuSeeds scandal.

RIGHT.

We will redraft the template complaint we did for the community to Ofcom - and off we then go. We cannot let them get away with this as…

Are there any #SocEnt law firms who can offer legal advice for this ongoing issue? If any social enterprises are able to help with anything relating to this situation please get in touch.

Social Enterprise UK

- could you RT?

x.com/MEFoggyDog/sta…

#Health #NHS #Law #Legal

Just done a LinkedIN live re Carla to see if any of my connections can help @TheChronicCollaboration

*correction* West Middlesex Hospital

linkedin.com/posts/sallycal…

#pwME #MEcfs #SaveCarlasLife