Attending #KidneyWk in Philadelphia? Visit Poster 593 today between 10 a.m. and noon to hear more about Prepare-NS. We’re working with the FDA to develop a patient-reported outcomes (PRO) measure for fluid overload in nephrotic syndrome. Devin Peipert
#kidneydisease #PRO

10 days until the 5K to benefit lung cancer through a fantastic organization, LUNGevity! I'm proud to run the race with this organization because they generate and support research that matter for people with lung cancer. Please donate!
do.nr/64uut5 via DonorDrive

Check-out this awesome write-up about our Prepare-NS project!

linkedin.com/posts/john-dev…

Hello Friends! I'm running the 2023 Life Time Chicago 5K to raise money for lung cancer research. All the money will go to LUNGevity. I'm raising $500 by September 30th for this cause. Please help our team with a contribution!

fundraise.lungevity.org/index.cfm?fuse…

Hot off the press📰

In a paper published yesterday in Nature Medicine, BRC researchers including Mel Calvert & Lee Aiyegbusi, co-leads of our Patient Reported Outcomes research theme, present a new tool they've developed to improve #PPI in health research: birminghambrc.nihr.ac.uk/new-resources-…

A useful paper evaluating the readability of PROMs including SF-36 and PROMIS but misses prior work (e.g., pubmed.ncbi.nlm.nih.gov/27599978/) showing the importance of item-level estimates. pubmed.ncbi.nlm.nih.gov/37368975/ #Spine #PROMs #HRQOL

FDA COA-CCT workshop Session 1 workshop starts now, moderated by OCE’s Erica Horodniceanu with panelists Gita Thanarajasingam Devin Peipert Madeline Pe Selena Daniels Cheryl Jernigan
You can still register to join: fda.gov/news-events/fd…
#OCEOutcomes23

Join us now for a day of discussion about capturing cancer treatment side effects with PROs!

Check out our poster on PRO-based comparative tolerability estimands at #psiconference2023 linkedin.com/posts/john-dev…

Assessing Fatigue in Patients Receiving Kidney Replacement Therapy Using PROMIS Computer Adaptive Testing

bit.ly/3AHVgHi

Junayd Hussain Devin Peipert Dr Susan Bartlett istvan mucsi Ajmera Transplant Centre UHN School of Epidemiology and Public Health

#VisualAbstract

Excited to take a listen to Northwestern Feinberg School of Medicine Northwestern MSS Chair Emeritus Dr. David Cella describe how to deploy patient reported outcomes measures in NEJM Catalyst catalyst.nejm.org/doi/full/10.10… Dr. Cella is a pioneer and shaped the creation and development of the field of outcome science.

Exceptional library of #PRO resources to support ECOG-ACRIN Cancer Research Group investigators and to center the #patient experience in #oncology trials!

#NCTN #NCORP #SurvOnc #SuppOnc

Patient-Reported Outcome Measure to Assess Symptoms Associated with Cataract Surgery and Intraocular Lens Implants #PROM #cataracts #ISOQOL pubmed.ncbi.nlm.nih.gov/37055289/

All papers are summarised briefly in the editorial.

Table 2 gives a brief overview across the papers in the special section and their focus.

#HRQL #Psychometrics

We are convening a panel to advise research in @NIHRBhamBRC. This is an opportunity for people to be involved for 18 months in a study about making patient-reported outcomes #research inclusive.
Please see below for more info! Institute of Applied Health Research Medical and Dental Research (UoB) Uni of Birmingham

Are you interested in the potential use of #PROs in #AI ? Have a look at our most recent publications discussing the use of PROs in trials and how PROs can be embedded in AI systems. Links below 👇

CPROR Mel Calvert Xiao Liu Dr Sarah Hughes Alastair Denniston

Time for a new approach to outpatient management in the #NHS ? Is digital #symptom monitoring a solution? Check out latest paper👇Lee Aiyegbusi Dr Sarah Hughes Devin Peipert Liv Schougaard Roger Wilson CBE NHS England @NIHRBhamBRC CPROR Steve Barclay

Congratulations to Betina Yanez and Rinad Beidas on being recently elected as Fellows in the Academy of Behavioral Medicine Research!

Psychometric validation and testing of the 10-item pediatric daily chest-related electronic patient reported outcome (ePRO) diary dlvr.it/ShTl3K

‼️🎇NEW PUB Alert🎇‼️
From Siteman Cancer Center to Lurie Cancer Center, I have advocated for bidirectional partnerships between Urban Comprehensive Cancers and Rural communities to improve #rural health. With a team from Washington University in St. Louis, I led the discussion of this process.
pubmed.ncbi.nlm.nih.gov/36595213/