🚨Publication🚨
Today we publish the largest ever study of conflicts of interest and the European medical device industry
• Between 2017-2019 medical device companies disclosed €425 million in ‘education’ payments
• This is likely the tip of the iceberg
sciencedirect.com/science/articl…

Get your views heard on how the duty of candour is being implemented by responding to the government review's call for evidence gov.uk/government/cal…

Check out my latest article: Its important! Arts, Community, Culture and Inequality. linkedin.com/pulse/its-impo… via LinkedIn

The Post Office Public Inquiry is examining the treatment of employees. The media coverage and public involvement is extraordinary. Rightly so.

The Muckamore Abbey Hospital Public Inquiry is examining the largest abuse case ever in the NHS. The public involvement is almost nil.

Latest (Feb 2024) NHS England waiting lists data out today. What are the waiting times for the treatments you need at Trusts near you? Find out here: patientlibrary.net/waitinglists
#PatientExperience

Kate 💙 🇪🇺 Stephanie deGiorgio If systems are correctly set up there should be an inbuilt delay of at least two weeks so serious problems can be discussed with patient first.

Wow - we have had such an overwhelming and cool response this week to our #AIRights Initiative and it's only been a day.

Thank you all for being wonderful!!!

#BeLikeLight

What do #mesh #victims want?

Victims and their relatives want to know why potential safety warnings about the #mesh products were ignored

#regulatoryreform #publicinquiry Patient Safety Commissioner Maria Caulfield MP Victoria Atkins Jeremy Hunt

We are delighted to announce our newest project!

Health AI is changing medical care. You have a right to be heard.

Please share your comments on our DRAFT by May 8!
#BeLikeLight

lightcollective.org/patient-ai-rig…

Calling all patients over 18!

We invite you to participate in a 10-15 minute online survey focused on your use of online technologies and your thoughts on issues like privacy and policy.

Please share with your communities. 👏

#BeLikeLight

jh.qualtrics.com/jfe/form/SV_3H…

Don't miss out on your chance to register for our free conference! They're always fascinating and spaces book up fast 😃

Join us on 17th April for this in person and online event as part pf #Seth ’s Legacy: Seeing & Supporting People in Palliative & End of Life Care' eventbrite.com/e/seths-legacy… especially important for those involved in end of life care and experience of care

😱 #Primodos 👉 The German Federal Ministry of Health has announced it will launch a review into the pregnancy test drug Primodos, which is alleged to have deformed babies. Sky News report by Jason Farrell, followed by ... 👇 i.mtr.cool/zqwkkgqure

Patient Exp Library invited me to write this piece for their latest publication. I can’t get my childhood health records back but hope by raising this more widely change will come… #patientrights #advocacy #healthcare

Access the full publication here: patientlibrary.net/cgi-bin/downlo…

Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net/?243200

'When government prioritises industry over patients, they effectively silence the voices of those they are meant to serve. But we – the victims of manufacturers of pelvic mesh – refuse to be silenced.'

Kath Sansom of Sling the Mesh - page 4 here: pexlib.net/?243200

'Nothing about us, without us'. 👏 Patients are & should drive the research agenda & lead the research.

A great article featuring outstanding #LongCovid & #MECFS patient advocates, such as Lisa McCorkell & Hannah Davis
from Patient-Led Research Collaborative, & It'sME(Jaime) from #MEAction Network. 👏

A Government consultation into transparency of industry payments to the healthcare sector shows a lackadaisical attitude towards the concerns of patient voice and of people suffering mesh complications #transparencynow pexlib.net/?243200

'My childhood medical records have been wrongfully destroyed without my knowledge or consent… This sets a precedent for children’s health rights everywhere'. Find out why transparency in healthcare matters to Dr Liza Morton, Healing Hearts & Minds – page 3 here: pexlib.net/?243200

Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net/?243200