I am pleased to be Faculty at the #2024ACCP Annual Meeting, Sept 8 – 10, 2024 as part of Hot Topics: Advancements in Antisense Oligonucleotide Development: Challenges, Strategies & Novel Approaches on 9/10/2024. Hope you can attend UMN Pharmacy UMN Experimental and Clinical Pharmacology Mila's Miracle IndoUSrare

Join us and build your own global network

Apply to be a speaker - bit.ly/bridge4rarespe…
🌐 Connecting the Global Rare Disease Community
🗓️ October 29-30, 2023
📍 George Mason University, Arlington, VA, USA
More event information at - indousrare.org/summit
#speaker #invitation #bridge4rare #bridgingrare

Thanks to all patient advocates, researchers and students for your active participation UMN Experimental and Clinical Pharmacology

Another engaging, informative RDD program UMN Experimental and Clinical Pharmacology

Congratulations Jae!!! 🎉🎉🎉UMN Experimental and Clinical Pharmacology

We have kicked off our UMN #RareDiseaseDay 2023 with a patient advocacy group breakfast hosted by the MN Rare Disease Advisory Council ⁦University of Minnesota⁩ ⁦UMN Pharmacy⁩ ⁦UMN Experimental and Clinical Pharmacology⁩ ⁦UMN CTSI⁩

👉 Join us for Rare Disease Day with Abbey Meyers Listen live to the legend who started the #RARE revolution with the US Orphan Drug Act of 1983 #indousrare #rarediseaseday #OrphanDrugAct #rarediseaselegend #art4rare #science4rare
- mailchi.mp/indousrare/rar…

On Rare Disease Day, join UMN Pharmacy's event to learn from a panel of experts who serve underrepresented communities living with #rarediseases , and listen to keynote speaker and genetic counselor Amy Gaviglio, MS, CGC. Register here. ➡️ bit.ly/3jsCBKu

Experience the power of art and the beauty of #rarediseases through children's eyes!
Last year, #Art4Rare by IndoUSrare brought together art submissions from all around the world.
These amazing works have inspired us to keep fighting for a better world.
bit.ly/art4rare2023

IndoUSrare is partnering with Ginkgo Leaf Rare Disease Family Care Center and Engage Health Inc. to better understand the motivators and deterrents for rare disease patients and their caregivers when considering participation in a clinical trial.

Click👉tinyurl.com/indousrare

Happy Pharmacists day to my colleagues ⁦UMN Pharmacy⁩ ⁦UMN Experimental and Clinical Pharmacology⁩ ⁦Minnesota Pharmacist⁩

📌Get your FREE tickets 🎟 here to see this production in collaboration with the UMN Experimental and Clinical Pharmacology Center for Orphan Drug Research 💊!

📌Upcoming Twin cities shows on October 8 and 10! Reena Kartha UMN Pharmacy

Register for the Motor Neuron Disease Day event cohosted by Indousrare, @NIMHANS and #MND Tust. #ALS #MOTORNEURONDISEASE

Best Practices for Patient Registries in the Indian Context

Free registration for all
bit.ly/mndday-indousr…
Spread the word

We hosted Rob Long from Uplifting Athletes UMN Pharmacy Center for Orphan Drug Research for EOY event of UMN @NORD Students for Rare club. Check out how they harness the power of sports to inspire #raredisease community Chloes Fight UMN Experimental and Clinical Pharmacology University of Minnesota #umnproud

Kudos to Siddhee Sahasrabudhe. Thanks Shen Cheng and Dr. Al-Kofahi for your support #gaucher EWGGD International Gaucher Alliance Stay tuned!

#UMNRareDiseaseDay

#UMNRareDiseaseDay #Rarediseases

🔔🔔🔔Call for papers! A new special issue 'Neutrophil Serine Proteases in Rare Diseases' edited by Dr. Brice Korkmaz Brice Korkmaz CEPR_Pathophysiology_Respiratory_Infections @UnivTours Inserm is CALLING FOR PAPERS!
👇👇👇
rdodjournal.com/journal/specia…

New publication alert from Kartha lab. Gaucher disease – more than just a rare lipid storage disease ⁦International Gaucher Alliance⁩ ⁦NGF Canada⁩ ⁦EWGGD⁩ ⁦Young researchers network EWGGD⁩ ⁦UMN Experimental and Clinical Pharmacology⁩ readcube.com/articles/10.10…