Shiv Smith ๐
@shiv_smith
Macmillan Personalised Care Lead at Lister @enherts #PatientExperience #ProtectNurse #UKONSChampion #GPON
ID:2740630786
12-08-2014 08:03:11
80,1K Tweets
4,4K Followers
4,9K Following
Really exciting news for those of you who donโt know. Iโm really looking forward to the next few days. More to follow.
#kidneycancer #ikcc #globalsummit #actionkidneycancer #mentalhealth #presntations #seoul #SouthKorea
Andrew Gabriel Simon Lord ๐บ๐ฆ Paul Trevatt๐ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Guy's Urology News Issue for elderly too - my dad refused treatment because it involved at best a daily 2 hour round trip plus wait and treatment times and he just wasnโt /isnโt up to that. Hospital transport can add hours onto that too so issue even worse.
Paul Trevatt๐ Diane Murphy Andrew Gabriel Simon Lord ๐บ๐ฆ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Guy's Urology News Macmillan Cancer Support Reality for many more than most people realise!
MoiraBlack๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟโ๏ธโค๏ธ๐พ Diane Murphy Andrew Gabriel Simon Lord ๐บ๐ฆ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Guy's Urology News Macmillan Cancer Support This would feed into the need for a national English cancer plan that many of us have been nagging on about on twitter for a number of years now
Orchid Nurse Rob was honoured to lead a Roundtable on #PenileCancer at the EAU Congress in Paris on behalf of EAU Patient Information.
The session focused on 3 topics including improving support during and after treatment and Shared Decision Making.
Orchid Nurse Rob was delighted to catch up with Nurse Specialist Clare Akers at the European Association of Urology Congress in Paris.
Clare was the first person to set up a penile cancer support group in the UK which is still running after 7 years.๐
#penilecancer
Andrew Gabriel Simon Lord ๐บ๐ฆ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Guy's Urology News Thatโs horrifying & shouldnโt be happening in 2024
Simon Lord ๐บ๐ฆ Paul Trevatt๐ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Guy's Urology News We have seen patients choosing not to be treated because RT is too far for them, with no car and a job they can't do if on hospital transport each day. I think there's a good case for many RT satellite centres with LINACs locally, even if run remotely by a centre of excellence.
Simon Lord ๐บ๐ฆ Paul Trevatt๐ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Guy's Urology News I think you are both right. Massive inequity and quality of tx but also everywhere struggling/suffering with volume and complexity of work
Paul Trevatt๐ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Tony Collier BEM Real issue w healthcare access inequality here. Despite being dxd at a 3y centre & offered treatment there I had my surgery Guy's Urology News 2 hrs train journey but world class. Wld not hv be possible for many, but life-changing for me.
Alison Paterson ๐ Shiv Smith ๐ Paul Trevatt๐ Prof Alison Leary ๐#ProtectNurse Simon Lord ๐บ๐ฆ Tony Collier BEM I am not sure why anyone is surprised this is the reality for those living in rural areas and treatments such as radiotherapy situated in urban centres
Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Simon Lord ๐บ๐ฆ Tony Collier BEM So many cancer clinicians and cancer patients can see the need for a NHS cancer plan for England why canโt others ?
Alison Paterson ๐ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Simon Lord ๐บ๐ฆ Tony Collier BEM Cancer Postcode lottery alive and well in 2024
Paul Trevatt๐ Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Simon Lord ๐บ๐ฆ Tony Collier BEM It's awful that many people live several hours from treatment centres, meaning long commutes for treatment & essential tests such as PET scans. A cancer plan for England plus senior cancer nurses at alliance/NHSE level are needed.
Cancer care in the headlines again today Shiv Smith ๐ Prof Alison Leary ๐#ProtectNurse Alison Paterson ๐ Simon Lord ๐บ๐ฆ Tony Collier BEM (this headline could have been lifted from 1999 we didnโt have an English cancer plan then)
Shiv Smith ๐ Tyler Seibert MD PhD JAMA Richard Martin Caroline Moore Matt Cooperberg Hashim U. Ahmed Andrew Vickers Andreas Rรธder Matt Hobbs PCF Science Absolutely right Shiv. Persuading the powers that be is a different matter. Why donโt they listen to those of us living with metastatic disease?
Tyler Seibert MD PhD JAMA Richard Martin Caroline Moore Matt Cooperberg Hashim U. Ahmed Andrew Vickers Andreas Rรธder Matt Hobbs PCF Science Itโs absolutely certain that a screening programme using one off PSA testing or opportunistic testing is never going to be accepted even though it saves lives. Instead a systemised, risk based screening programme might be acceptable and thatโs where we should focus!
Two cycle rides this week training for Ride the Night. A local ride and a really enjoyable cycle along part of @sustrans Route 4 - quiet country roads, more hills than usual and strong winds ๐คฃ 70miles cycled and YTD 472miles for #NHS1000miles