🔥Patients with ILD experience delays in diagnosis. We interviewed patients and physicians to help understand why.

We need to advocate for:

- increased ILD awareness and education
-access to chest imaging
-earlier referral to respirology

bmjopenrespres.bmj.com/content/bmjres…
#curePF

Great session on patient centered endpoints in ILD trials going on…Deji Adegunsoye, MD, PhD at the podium now #CurePF #IPF

Myth-busting BAL in ILD! Come by hall E to learn more
- BAL lymphocytosis not correlated to HRCT GGO 😱
Kerri Johannson MD MPH #ATS2023 #curePF

Many thanks to all involved #pulmonaryfibrosis #CurePF

It’s out! “Patient and Physician Assessments of Clinical Status: a mixed methods study of ILD” in which we compare patient and physicians perspectives on clinical status before and after an inperson appt.
🧵
Kerri Johannson MD MPH #OACHESTpulm #curePF
chestpulmonary.org/article/S2949-…

New podcast out. Have a listen as Meena Kalluri answers questions about how to manage dyspnea in patients with pulmonary fibrosis.

Meena is clearly on of the thought leaders in the area. Insightful. Smart. Caring. Empathic.

#curePF #cureIPF

🚨 REGISTER NOW for our Online date Event: actionpf.org/news/www-actio…
📢Hear the latest news from our global researcher and patient community.🌍Zoom translate captions enabled.
#curePF ❤️

Los síntomas de #FibrosisPulmonar como disnea (dificultad para respirar) y tos también se presentan en otras enfermedades y puede retrasar la detección de la #FP
La confirmación diagnóstica debería ser realizada por un equipo multidisciplinario
💙
#PFMonth #BreathingLife #CurePF

Liam Galvin EU-PFF CEO chairs an exciting round table at the PF Summit on ‘clinical trials: exploring opportunities and insights’ with patient advocates, researchers and clinicians and pharma representatives. #pfSummit24 #curepf

Para personas con #FibrosisPulmonar es importante revisar antecedentes familiares
En #FibrosisPulmonar Idiopática se estima que el 10% de los casos tiene un componente hereditario, el asesoramiento genético ayuda a tomar decisiones informadas
#PFMonth #BreathingLife #CurePF #FPI

We discuss some of the challenges in design of an AE-IPF trial in this protocol paper for STRIVE-IPF study - an area of unmet need in #curePF and important considerations when developing novel adaptive trial platforms REMAP-ILD

bmcpulmmed.biomedcentral.com/articles/10.11…

Our research NIAAA News published Advanced Sci News “An Integrative Multiomics Framework for Identification of Therapeutic Targets in #pulmonaryfibrosis ” onlinelibrary.wiley.com/doi/10.1002/ad… #cureIPF #curePF

La rehabilitación pulmonar incluye diferentes actividades que permiten un mejor manejo de los síntomas de #Fibrosis Pulmonar
El ejercicio, estrategias de respiración y un cuidado nutricional son fundamentales para lograrlo
actionpf.org/information-an…
#PFMonth #BreathingLife #CurePF

If you can’t be in NYC to support #BroadwayBeltsforPFF , Pulmonary Fibrosis Foundation, you support all the efforts towards #curePF with family

#ATS2023 I’m ready. 👀 forward 2 meeting old friends & making new connections. If u want 2 chat #CurePF or ⁦REMAP-ILD⁩ I shud b easy 2 spot. ATS_RCMB⁩ ⁦American Thoracic Society (ATS)⁩ ⁦M. Patricia Rivera, MD, ATSF⁩ ⁦Kerri Johannson MD MPH⁩ ⁦Jeff Horowitz⁩ ⁦Naftali Kaminski⁩

🚨ERS elections reopened! And I made it to the ballot! I am so grateful for your support 🙌 if you deem I could be a good early career representative for the Assembly 12, please vote again for me. Visit my.ersnet.org/Elections/ #ILD #CurePF

Yes it is! Day in! Day out! No respite from it! Its exhausting! Its heartbreaking to watch a loved one struggle so much! 🥺
This is why we raise awareness!💜
#curepf #aroundtheworldwithtpfsg

What’s more delightful than chilling out with ILD friends at Milan on a nice Italian summer evening! 🫁

#RestandRelaxation #ERS2023 #PulmonaryFibrosis #CurePF

Quietly remembering more than 8,000 people in the UK who died of progressive pulmonary fibrosis in 2023, including my friend and fellow APF trustee Sarah Weir OBE. As the year comes to an end my thoughts are with them and their families.Action for Pulmonary Fibrosis #CurePF