We start the second day of the third European #PulmonaryFibrosis Patient Summit with a brief recap of Day 1, followed by a roundtable session on health policy. Let's hope for another engaging and educational day! #PFSUMMIT24
So wonderful to see the #ILD community and discuss ideas, future plans and how we can support patients with #pulmonaryfibrosis #PFsummit24
A powerful start to #PFsummit24 by Steve Jones CEO of EU-PFF with a minute’s silence to remember the 80,000 people with #pulmonaryfibrosis in Europe who sadly died in the last year. Steve shares his experience of symptoms of disease, inequity of care & delayed diagnosis!
Three parallel workshops on different topics – on #Oxygen access in Europe, on the role of patients in the design of #clinicaltrials trials, and on fundamental aspects of the organ of the lungs. Which workshop did you choose? #PFSUMMIT24 #PulmonaryFibrosis
We need a time bound patient care pathway and lobby to raise awareness. We need to raise our global voice for patients with #pulmonaryfibrosis . The time is now #PFsummit24
Excellent summary of PPF by Professor Francesco Bonella - PPF is not a diagnosis, it is a manifestation of disease. Aim to start antifibrotic treatment as soon as possible for patients with #pulmonaryfibrosis who are likely to have poor prognosis. Future is personalised medicine.
Researchers developed NZ-97, an inhalable drug that stimulates the growth of stem cells in the lungs, potentially repairing scarring in IPF. buff.ly/3y1MkOA #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness
Hello everyone! The 3rd European #PulmonaryFibrosis Summit is about to begin! Stay tuned with us here for real-time updates, feel free to comment, ask questions, and engage in discussions. Here's to an informative and enriching #PFPSUMMIT24 !
Great talks from all speakers at the #PFSUMMIT24 session focussed on supportive care #pulmonaryfibrosis
John Solheim chairs the session on navigating supportive care for #pulmonaryfibrosis - rightfully unapologetic about coughing 💪🏼 John compares AI understanding of supportive care versus the human touch #PFsummit24
Let the Summit begin! Join us for the opening session of #PFSUMMIT24 as we kick off the 3rd European #PulmonaryFibrosis Patient Summit! Together, we'll set the stage for three days of collaboration, education, and networking!
Great article in one of Ireland's national papers highlighting the unmet needs of #pulmonaryfibrosis patients ahead of ILFA Ireland appearance before the government's health committee EU-PFF #CurePF irishexaminer.com/news/arid-4138…
Matthew Cullen talks through his invisible illness and positive experience of finding ILFA Ireland. He talks fondly of his support group, his wife & carer, #PR tailored to people with #pulmonaryfibrosis and a special mention for ILD CNS & patientMpower and #homemonitoring
Tomorrow the 3rd European #PulmonaryFibrosis Patient Summit opens its doors - in Castelldefels & virtually on Swapcard. Over 3 days patients, researchers, clinicians & others will discuss, share knowledge & create synergies - and set the agenda for the coming years. #PFSUMMIT24
The 3rd European #PulmonaryFibrosis Patient Summit is getting closer! If you still have any questions, visit eu-pff.org/pfsummit24/ or contact our team at [email protected]! We look forward to seeing you - whether on site in Castelldefels or virtually via Swapcard!
Dr Maria Molina Molina explains pathogenic gene variants in familial #pulmonaryfibrosis - surfactant gene abnormalities, telomere related gene mutations (accelerated lung fibrosis), MUC5B predisposition to developing lung fibrosis. Need standardised protocols for genetic tests.
Bradley Price EU-PFF patientMpower Eamonn Costello Jenny Lynch-Wilson At dinner, a patient with #pulmonaryfibrosis was telling me about home monitoring & using an app. He told me the technology company really listened to him & cared about his views/thoughts. I asked what the app was called and was unsurprised when he said patientMpower
Breathing Easy Workshop: Understanding Your Lungs: Join Stefano Pavanello, member of our board, Dr Simon Hart and Elisabetta Balestro, for a hands-on workshop to understand your #lungs and how #PulmonaryFibrosis begins, how the organ is affected and how the disease develops. #PFSUMMIT24
IL20Rb, a cell-surface receptor that belongs to IL-20 family, aggravates pulmonary fibrosis through enhancing bone marrow derived profibrotic macrophage activation in vitro: doi.org/10.1016/j.phrs…
#pulmonaryfibrosis #macrophage #PharmacolRes #openaccess #Research #PharmaTwitter
