May is Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders Awareness Month! Let's raise awareness and change lives around the world!

#TogetherWeDazzle #EhlersDanlosSyndrome #EDS #EDS Awareness #Zebra #Dazzle #ChronicPain #ChronicIllness #StrongerTogether
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I HATE THESE
I fall more often on these, and it throws off my gait which can throw off my hip and then cause me lasting issues for days. I'd rather walk in the street...
#TogetherWeDazzle #NEISvoid #DisabilityTwitter #edsawarenessmonth

Thanks to The Ehlers-Danlos Society and everyone celebrating EDS and HSD Awareness Month this May 🚀 Our own Head of Operations Sasha Burgoyne shares her insights on how she manages her HSD in her role. Read what advice she'd give to others: bit.ly/3OHjREe #TogetherWeDazzle

If you own a mouse, you will never turn off your computer again.

Incorporating our social skills of meeting people and listening with knuckles to nose and sit PAWSuccess 🐾 Zwink Elementary #togetherwedazzle

Making zebra striped ribbon for my EDS talk this evening.

#EDSAwarenessMonth
#togetherwedazzle

This is not how we build for All Ages & Abilities to have mobility freedom.

Today is International #DayOfTheZebra
I am a Zebra, ask me why! #TogetherWeDazzle #EDS #heds

FINAL DAY of our Charity event is now going live:

Finishing off with another wreck my build challenge with Donations!!!!

twitch.tv/theottergenera…

#zebrastrong #togetherwedazzle #TheSims4 #EDS #charitystream The Ehlers-Danlos Society EDS awareness page

I am constantly torn between: 'I can't let this illness ruin my life' and 'I have to listen to my body and rest'
#NEISvoid #TogetherWeDazzle #ZebraStrong #EhlersDanlosSyndrome

Today is day #1 Of EDS & HSD awareness month!! My name is Jackie Jennetten, Im am in the Chicagoland area. I am a Nurse and have been since 2011. #ehlersdanlossyndrome #ehlersdanlosawareness #myedschallege #togetherwedazzle

#EDS #MYEDSCHALLENGE #TOGETHERWEDAZZLE
Please sponsor me to walk 100 km throughout May, fundraising for The Ehlers-Danlos Society through the Walk and Roll Challenge 2023 via @Tiltify | tiltify.com/@sarahc/eds-ma…

We are #praying the #fibrinpatch on 2/25/21 will #finally give me some #relief from this unrelenting #pain , but in the mean time, I’m just doing my best to #keepgoing because #togetherwedazzle .
🤍🦓🖤
#spoonie #disabled #chronicillness #chronicpain

Thank you to everyone in the community who took part in this research! #TogetherweDazzle #EhlersDanlosSyndrome #Hypermobility

Patient Worthy I would love to join book club about #RareDisease and yet to read #hiddenstripes / #disjointed #TogetherWeDazzle #EhlersDanlosSyndrome Awareness month is May lifting 🫴 up one of contributors is
Hypermobility MD: Dr Linda Bluestein 🤝 Kimberly - Proud Mom & advocate;

Thank you to The Ehlers-Danlos Society Professor Lara Bloom & all the speakers at the #EDS Virtual2020 . I’ve learnt so much over the last 3 days. Well worth pulling all nighters for, 3 days in a row ☕️☕️. Can’t wait for Arizona!! 🦓🦓. #allnighters #EDS #vEDS #TogetherWeDazzle #EhlersDanlosSyndrome

We love our weekly lessons with PAWSuccess 🐾 Zwink Elementary #togetherwedazzle

May is EDS awareness month.

EDS is a connective tissue disorder that can effect individuals of all ages, genders, races and body shapes. EDS can affect day to day activities in school, at work and at home and negatively impact social relationships.

#togetherwedazzle 🦓💗

Raising awareness for my son #EhlersDanlos Syndrome #EhlersDanlos #hypermobilitysyndrome
#togetherwedazzle

Day 1:

I go by PurplePatoot as I am a streamer and I have Hypermobile EDS (hEDS). I am located in midwest USA! I hope to raise lots of awareness and money for EDS this month.

#MyEDSChallenge #TogetherWeDazzle #ZebraStrong

Fantastic to hear about the Spider symptom tool ⁦World Physiotherapy⁩ by our wonderful ⁦Ellen Ewer⁩ ⁦UCL Physiotherapy⁩ ⁦UCL Great Ormond Street Institute of Child Health⁩. Thanks to ALL who have helped ⁦Ehlers-Danlos Support UK⁩ ⁦HMSA Charity⁩ ⁦The Ehlers-Danlos Society⁩ ⁦Central Health Physiotherapy⁩

May is EDS & HSD Awareness month! 🦓✨

Did you know EDS is one of the underlying conditions of CCI?

Get involved ehlers-danlos.com/may-awareness

#eds #eds awareness #zebra #ehlersdanlos #TogetherWeDazzle #cci #craniocervicalinstability #chronicillness #rarediseases

I guess this is great timing for awareness month 🤣🖤🤍 Single IV attempt. Wasn't even in for a minute and no, those are not shadows on my knuckles😑 Please also excuse the dislocated finger. I did not punch a wall either🤣 #TogetherWeDazzle #HypermobileEhlersDanlosSyndrome