Doug Lindsay
@Doug_Lind_Say
Personal Medical Consultant | Keynote Speaker | Making unlikely things happen
ID:4751362395
http://lindsaycenter.com 09-01-2016 05:28:44
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Eric Topol
physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Dysautonomia Intl.
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Brian Wallach
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Hannah Davis
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Mark Lewis
Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
This week I'm on the CBS News podcast #UnsungScience ! David David Pogue has authored or coauthored over 100 books & he helps me tell the story of the dog surgery that gave me back my life! Take a listen!!!!! #RareDisease #spoonie unsungscience.com/the-podcast/se…
It’s #RareDisease Day . A chat with @doug_lind_say
@pcori
@tsctalks_jill
Alexis Snyder
@Rhodes_cj
Rare Patient Voice
Adriana Mallozzi
Morgan Gleason
Marni Cartelli
Shiri Ben-Arzi
Power of Patients
Rebecca
Rare Disease Day
NORD
RDLA
#RareDisease #SDOH
#RareDisease is a community 25 million strong in the US. Together, we are a COMMUNITY. We must be recognized as a 'Health Disparity Group' or we will continue to suffer needlessly & invisibly! #equity #SDoH #RareDisease Day health-hats.com/pod159/
Biggest lesson to MDs on #RareDisease Diagnosis: 'Rare' doesn't mean 'Never.' If smart docs struggle, throw up a flag🚩This might be a rare disease! health-hats.com/pod159/
Great piece in the NYT Health on #LongCOVID . A strong summary & overview, plus links & resources to people & sources generally respected in the #postviral , #MECFS & Long COVID worlds! nytimes.com/interactive/20…
Love how Doug Lindsay saved himself and now helps other people solve their own mysteries. That's some potent #PeerHealthAdvice - lending people the courage to try people.com/human-interest…
Today is my 1st day working on a project funded by National Cancer Institute.
The best part is, the study is focused on a condition I am living with.
1st order of business:
Re-writing the entire aims page so other patients like me can better understand what the study is about.
#patientresearcher
Reminds me of what I read about Rhode Island hospital before they committed to a healthy hospital culture instead of a fear box. God bless and good luck, KD Richardson