Emily Johnson (@emily_rj on Mastadon) PolyBio Amy Proal, PhD I get what you're saying, but I'm also responding specifically to you doubling down on a comparison with HIV that HIV+ folks are telling you is insensitive. You said 'you are part of the postviral community' and yet... where are the HIV+ folks in our movement?
Alisontomyradio KarenPhysioCoUk Ah thanks if only it was that simple everyone with postviral.problems would be better
Congenital #TTP can present at any number of points in life including #neonate , #postviral , during or post #pregnancy but is extremely rare 1:1,000,000 #TTP Aston23 TTP Network #RareDisease
'a risk that persists even in relatively healthy people long after the illness has passed.' #postviral
publichealth.jhu.edu/2022/covid-andβ¦
There is still very little funding dedicated to finding a cure or even an approved treatment for #MyalgicEncephalomyelitis . With more people developing #PostViral illnesses than ever, this is relevant to everyone, worldwide. (6/8)
ME/CFS Research Long Covid on the short Jeff Wise Adam W Gaffney Ippokratis This kind of research operates in the mist.
No exclusion biomarkers like 2-day CPET.
We (prob.) have different illness / fenotypes / phases β Postviral/LC/ME/CFS (?) β
And it Obstructs Biomedical π¬ leaving large bulk of non-responsive (more severe) patients in the dark
:-| cummunism (well-dressed Marxist city kid) pjsππ Sure, thatβs true of basically all viruses. Thankfully LC incidence is also declining although it wonβt ever hit zero; ideally you get something closer to the normal rate of postviral syndromes, which are not ideal but basically manageable.
Gishu_boy MOPRESπ¦ Sammie Manini That's a postviral cough.
We manage it with antihistamines and cough syrup suppressants
AM Christou Hey you oblivious duck did you not know thereβs a history of Postviral illnesses?
Crocker on my Rocker ππ©πΌβπ³ + π¬π + ππ= π»π» Christian Schneider (γ―γͺγΉ) T. Ryan Gregory All true enough - although even mild viral infections can cause postviral syndrome so it's a bit of a double edged sword
Denyse Lake π₯ Here you go, from 1988, a LONG time before COVID!! ncbi.nlm.nih.gov/pmc/articles/Pβ¦
πΈοΈDr.T, PhD I @remissionbiome IMO the ways of getting medical treatments approved implemented in most of the countries are highly problematic for the approval of medications (especially as combinations) for diffuse chronic illnesses like (postviral) #MECFS , fibromyalgia, #FQAD etc.
Most contemplable API 1/x
Dr Elisa Perego AsociaciΓ³n MadrileΓ±a de Covid Persistente- AMACOP Dr Alison Twycross RN @[email protected] beatrice LongCovidNurses&MidwivesUK ππ #TeamLCNMUK #FBLC Amali Lokugamage Long Covid Kids - [email protected] David Steadson #NAFO π¦πΊπΈπͺπΊπ¦πͺπΊπ TorontoBikeMama Ben King π HT Burbridge Tom Andrews Thank you for your kindness and inclusionπ₯Ή And thank you for what you have done for my children and all children. We would be nowhere without you π
Following back x
#LongCovidKids #PostViral #MECFS #PIMS #PoTS #MCAS #PANS #StrongerTogether
βEnterovirus related metabolic myopathy: a postviral fatigue syndromeβ, was able to demonstrate an association between lactate accumulations during exercise and enterovirus sequences in the muscles β but the bloom was definitely off. #TheAcidTest
healthrising.org/blog/2021/07/2β¦
Deb (parody) #LeagueOfDifficultWomen ππ₯π¦ Chris Palmer, MD aure Bhupesh K Prusty CVB seems vastly underestimated in ME & MECFS. pubmed.ncbi.nlm.nih.gov/14570830/
ncbi.nlm.nih.gov/pmc/articles/Pβ¦
healthrising.org/blog/2021/02/2β¦