The Sickle Cell Society and KCL are looking for a Research Assistant to work on a joint project. Part-time (2 days/14 hours per week) £30,600 pro rata. Fixed Term until 31 March 2025. Please send CV and covering letter to [email protected] before 28/03/2024.

#NSPKU would like to comment BBC_HaveYourSay
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Ppl with #PKU #Phenylketonuria would be affected by a reduced postal service as they send dried bloodspots to laboratories
It's likely Newborn screening of all babies across the UK may be affected as well.....

The bookend to our previous work has now been published! We developed a cross-professional competency framework for communicating genomic results - a crucial part of the testing process. The framework can be adapted to a variety of contexts
pubmed.ncbi.nlm.nih.gov/37965839/
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Thank you to our fantastic presenters Dr Tootie Bueser💙 Jane Chudleigh and hosts at BSMS Ethixbird Dr Rich Gorman for another great SERG meeting yesterday. To present at a meeting or get updates on meetings register via warwick.ac.uk/SERG

Are you a researcher interested in ethical, legal and social aspects of genetic/ genomic medicine? come and work with us- we are a friendly, productive interdisciplinary research team! #cels my.corehr.com/pls/uoxrecruit…

The Kids Online Safety Act will protect kids online from #socialmedia algorithms that promote harmful content that negatively impacts youths' #mentalhealth . Tell the Senate to advance the legislation. actionnetwork.org/petitions/pass… #OurKidsCantWait #KOSAnow

twitter.com/CFScreeningNGS…
Lorna Allen

Imagining Futures

Corinna Clark

Cystic Fibrosis Trust

We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected] @louisecmoody
@imaginingfuture

twitter.com/CFScreeningNGS… Jenny Agutter News Joanie 🤰&👨‍👦 Treacle Goblins Morgan ham Makayla☀️ itzaznsammie🔴Live Now🔴 Holly Brockwell Nathan A. Rodgers You Wear Fine Things Well ⚖️♿️💛🐝 Annabelle💘 Kyah ♿️ Robbie Random SID ︀𝐀♈︎ Nikki. ★ eras tour paris n3 & n4

We would love to hear from parents who have a child with a CFSPID designation:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected] @louisecmoody
@imaginingfuture

twitter.com/CFScreeningNGS…
Ellie Russo Jacqui Cowlard ERS publications Scott Bickel Joanne Osmond

#cysticfibrosis twitter.com/CFScreeningNGS… cf/Aware Cystic Fibrosis Trust

#cysticfibrosis twitter.com/CFScreeningNGS… cf/Aware Cystic Fibrosis Trust CF Trust Youth

twitter.com/CFScreeningNGS… CF Trust Youth Fans of CF Trust

We would love to hear from adults with #cysticfibrosis or who are CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected]

twitter.com/CFScreeningNGS… York Hull Adult CF Centre Wessex Adult CF Service Lucy Wadsworth Leicester Adult Cystic Fibrosis Centre Jamie Stephenson 🦜🦜😇😇 ♥️♥️ Jack Byrne Liam Mc Hugh Barbara

twitter.com/CFScreeningNGS… NHS Lothian Dietitians Lucy Wadsworth

twitter.com/CFScreeningNGS… Teesside Cystic Fibrosis Centre York Hull Adult CF Centre Blackpool Adult Cystic Fibrosis Service Cystic Fibrosis Unit NUH @CFadultsNI Cystic Fibrosis Tracey Daniels CF inpatient unit -Pearce ward - MFT CFAdultNewcastle @SWolf335 CF Exercise Network UHB CF Physios Bristol Adult CF Heather Rachel ACPCF ACPCF research Sarah Rand @DrDamianDowney Alex Horsley

twitter.com/CFScreeningNGS… Dr Aaron Brown rebecca thomas Andrew Prayle Laura Kinsey Jane Davies Helen Douglas Robert Gray CysticFibrosisCanada Cystic Fibrosis Foundation European CF Patient Registry Cystic Fibrosis SA CF Ireland SAUDI CF Community Foundations Australia FHFT Research and Innovation ManchesterCFResearch

twitter.com/CFScreeningNGS… York Hull Adult CF Centre Wessex Adult CF Service @lucywads