Legislative Conference with RDLA and EveryLife Foundation at the Ronald Reagan Building & International Trade Center!
#RareDiseaseDay #EDS #POTS #ChronicPain #chronicillness
EDS Awareness The Ehlers-Danlos Society Ehlers-Danlos Support UK Professor Lara Bloom Hypermobility MD: Dr Linda Bluestein
Bendy Bones & Stretchy Skin is NUMBER 1 for e-books on chronic pain. 😮😮😮 #bestseller #BookTwitter #debutauthor #AwardWinning #childrensbooks Professor Lara Bloom The Ehlers-Danlos Society Wise Ink Publishing Mom's Choice Awards
Today there are 13,400 signatures on the petition created by EDS UK. Getting to 100,000 signatures by November seems impossible unless something changes. Please sign and share. It HAS to get better. The Ehlers-Danlos Society EDS awareness page Professor Lara Bloom
Bendy Bones and Stretchy Skin has officially hit bestseller status in ALL its categories, including chronic pain and nonfiction social issues! #ehlersdanlos #ChronicPain #disability #BookTwitter Professor Lara Bloom The Ehlers-Danlos Society
Great attending the The Ehlers-Danlos Society #GLC2023 - hearing about all things #hEDS , meeting up with the Irish cohort and representing Medics4RareDiseases and NIRDP
Professor Lara Bloom Anand Saggar
Anne Micks ןǝɥɔɐᴚ ɥɔuʎ˥ Dr Alan Hakim
At the weekend I wrote a letter to Santa.
I didn’t ask for presents,I just asked that Ehlers-Danlos Support UK The Ehlers-Danlos Society NikkiEDSUK ,Professor Lara Bloom & BendyBrain: Dr Jessica Eccles & everyone that helps us zebras have a nice Christmas,I also asked for help & hope for all zebras out there #EnoughIsEnough
Character designs by yours truly! Bonnier Books UK Dee Benson | Pre-order Work It Lara Bloom #GlowUp #LaraBloom
Happy World Afro Day!!!
To celebrate, enjoy these book covers showing Afro hair. I'm still giddy at my novel being one of them #LaraBloom
Thank you Tọlá Okogwu Jennifer Hayashi Danns Tracy Deonn - Updates Only Natasha Bowen & Dhonielle Clayton Updates! for your books.
Great friends and get together TheMarfanFoundation #chicagoconf2023 Professor Lara Bloom Katie Melissa L Russo Ophie1980
Christina Brookman discusses life with Ehlers-Danlos Syndrome and her new podcast. Dr. Lara Bloom, CEO- Ehlers-Danlos Society shares her own story of EDS. Ep113 bit.ly/3XTYHVf The Ehlers-Danlos Society CSAVR NCRTM Professor Lara Bloom CNN NationalRehabAssoc OSERS Rick Sizemore
Home after attending my 6th The Ehlers-Danlos Society Global Learning Conference in Dublin. Huge thanks to Professor Lara Bloom for introducing me to this wonderful community six years ago. Met so many amazing patients, practitioners & colleagues these past few days. Collaboration is key.
Professor Lara Bloom ask and you shall receive! Loving my time virtually attending the The Ehlers-Danlos Society #GLC2023 !
Excited to share patient leaders' collective work to catalyse the global patient movement towards inclusion in all health decision-making💪Professor Lara Bloom Brian O Mahony Derick Mitchell Yann Le Cam Jennifer Austin (she/her) Nicola Bedlington Stefan Gijssels Nicholas Brooke @NHcouncil IAPO #ODRD2024
Professor Lara Bloom The Ehlers-Danlos Society Genetic Alliance UK It’s rare disease day and the question for parliament is so What's Up, Doc?
Thank you for trying to get answers Professor Lara Bloom on #RareDiseaseDay & every day.
Thank you to everyone at the The Ehlers-Danlos Society #glc2023 who voted for my drawing in the #ZebrasGotTalent competition. I woke up this morning to find out I received 2nd place! Professor Lara Bloom could you tell me who came first? Im sorry… I fell asleep at 3am sydney time
Yep #ehlersdanlos Awareness month starts this week
The Ehlers-Danlos Society Ehlers-Danlos Support UK EDS awareness page Professor Lara Bloom Diana Driscoll, OD
#EDSECHOEmergencyCare
Still quite poorly today with OI. Dusty 😻and I are loving all we are learning today. Thank you The Ehlers-Danlos Society and Professor Lara Bloom for organising another outstanding summit ❤️ only hope I won’t need to go back to the ED soon …🤞(after being there yesterday! )
