Great piece.
DecodeME the ME/CFS Study
#MyalgicEncephalomyelitis
channel4.com/news/worlds-la…

M.E is a neglected and stigmatised disease, leading to the negligent abuse of patients in UK hospitals right now.

#BringMillieHome
#MyalgicEncephalomyelitis #pwme

popsugar.com/fitness/mecfs-…

CFSME, more than just tired.
#CfsSunday
#chronicfatiguesyndrome
#MyalgicEncephalomyelitis
#CFS #CFS ME
#fibrosupportbymonica

In my 25 years of practice, I have never encountered another disease process where the patients have to convince their physicians of the genuineness of their illness, let alone a severe debilitating disease... #MyalgicEncephalomyelitis #LongCovidAwareness #LongCovidKids

#MyalgicEncephalomyelitis Please #BringMillieHome . #DontLetMEDie

twitter.com/i/broadcasts/1…

It’s one of those weird ME days where I’m *sure* I have a fever, so I take my temperature, and…

#PwME #MyalgicEncephalomyelitis #MyalgicWTF #ChronicIllness #Disability

We have an update from Karen's family. Karen is severely ill and being threatened with legal action if she doesn't move to a hospital unit with a strong psychiatric approach. Please sign and share her petition.

ow.ly/VRyH50RcpuG

#MyalgicEncephalomyelitis #VerySevereME

Lucy Mayhew who recently died from #MyalgicEncephalomyelitis was a journalist and wrote a piece in 2015 for Telegraph Breaking News
She suffered for nine more long years with #painful gastric issues. No effective treatments to elevate pain or symptoms #MEkills
telegraph.co.uk/women/life/liv…

Est 7500 patients and growing-yet it’s been
13years ie 4745days on the rollercoaster of fighting (mostly from our beds) for specialist services for #MyalgicEncephalomyelitis patients in N. Ireland & excruciating👀progress being made for other,less lengthy health campaigns, WHY?

Does anyone know what the theme is for this year's ME Awareness Day?

Because it needs to be 'Justice for #pwME ' or ' #pwME deserve healthcare' or something that calls urgent attention to the deaths and debility in our community.

#MyalgicEncephalomyelitis
#MEcfs

2/
Photo of Lucy Mayhew who passed away recently

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

What does it feel like to succumb to ME/CFS? In the introduction to my book Sustaining Leadership I described it as like waking up on a different planet I called Planet Fragile. #MyalgicEncephalomyelitis #meawarenesshour #MECFS

Matt Nisbet A GP running a marathon to raise money for ME Research UK 💙 #MyalgicEncephalomyelitis

Press Journal, Florida, US. 9th April 1991. Thirty-three years ago today. #mecfs #cfs me #MyalgicEncephalomyelitis #myalgice #chronicfatiguesyndrome #cfs .

#MyalgicEncephalomyelitis patients in the UK live in fear of needing hospital treatment. #MECFS #MedTwitter

Reminder that The Lancet still hasn't received the memo. 🧐 #MECFS #MyalgicEncephalomyelitis

FYI for those with #MyalgicEncephalomyelitis and #LongCovid or any other disease that affects blood sugar

Cognitive difficulties/realities of living with #MyalgicEncephalomyelitis

It took me a long while to work out the puzzles, that twixster wanted me to solve, to prove that I am a real Human Bean 🙈

PEM (Post Exertional Malaise) is not “just fatigue” but a myriad of symptoms

An expected consequence of not explicitly including #MEcfs in Long Covid Moonshot campaigning.

#MyalgicEncephalomyelitis