Great news Millie has another ME diagnosis, also great news she has had an assessment from a psychiatrist.
I really hope she can be given the support she needs to go home as is normal for people with #verysevereME

#SevereME #VerySevereME #BringMillieHome #DontLetMEDie

Triggerwarnung #Suizidversuch #verysevereme #MECFS #Verschlechterung #Immunadsorbtion
Werde nie vergessen, wie ich mich in dem Moment gefühlt habe. Die Fahrt nach Berlin zur Immunadsorbtion. Das Wackeln des Autos, die Reize trotz Schutz, die Angst vor der Immunadsorbtion

Und das von einer Betroffenen mit #verysevereme ? Ich fall langsam vom Glauben ab.

For my dear friends Els, Sophie, Retha, Céline & Ingeborg (and many more) who all died of ME in recent years 💙. Still miss you every day! 😪

#MEAwarenessDay #WorldMEDay #ExposeMENow #VerySevereME #SevereME #MyalgicEncephalomyelitis #MillionsMissing #pwME

Latest update from yesterday (4/04/24)

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#MilliesevereME #verysevereME
#pwME #saveMillie

#VerySevereME & unnecessary, extra suffering in English hospital…. #MEAwareness #SaveCarlasLife

The #MECFS community are very grateful to Carol Monaghan MP 🏴󠁧󠁢󠁳󠁣󠁴󠁿 🇺🇦
for her consistent advocacy. #MEAwarenessDay #VerySevereME #MedicalAbuse #MedicalNeglect #DontLetMEDie #MEKills #MillionsMissing2024 #MedicalEducation #TeachMETreatME
#BringMillieHome #SaveCarlasLife #DontLetMEDie #pwME

Days, weeks, yrs in bed. No talk, no light, no sound, constant #pem and #livinghell I miss my kids💔🥀 #mecfs and #cci took it all away. #deathwithoutdying is all what is left. Love/A
#verysevereME #pwME #Millionsmissing

How* do you call the extreme crashes like the ones you think you might die?
#verysevereme #pem #mecfs

#MEcfs #MyalgicE #MyalgicE ncephalomyelitis #pwme #severeME #verysevereME #MedicalScandal #MedicalCorruption #MedicalNeglect #MedicalAbuse #iatrogenesis #DisabilityDenial #Gaslighting   #ScienceNotStigma #PsychAbuse #PsychologisingIllness #ExposeMEnow #DontletMEdie #MillionsMissing

Please sign & share these two petitions for Millie & Karen!!

Both are in hospital, being harmed & mistreated, because their doctors don't believe in Myalgic Encephalomyelitis.

Millie ow.ly/xKYa50QIj44

Karen change.org/p/save-karen-g…

#VerySevereME #MECFS #pwME #MEAwareness

Thank you Dr. Sabine Hermisson for your powerful and effective presentation of extreme and very severe ME/CFS. 💙

#UniteToFight2024 #cfsme #mecfs #verysevereme #globalvoiceforme #millionsmissing #meawareness #MEAwarenessWeek

Das ist Folter. 😔

#MECFS
#SevereME
#VerySevereME

12th May M.E. Groundhog day

#myalgicencephalomyelitis #pwME #MillionsMissing #MECFS #MEwarrior #SevereME #VerySevereME #MEawarenessmonth

#SaveCarlasLife  
#ExposeMEnow #DontletMEdie #MEcfs #MyalgicE #MyalgicE ncephalomyelitis #pwme #severeME #verysevereME #MedicalScandal #MedicalCorruption #MedicalNeglect #MedicalAbuse #DisabilityDenial #Gaslighting #ScienceNotStigma #PsychAbuse #PsychologisingIllness

Alice turned 20 today, this is her 9th Birthday bedridden with #verysevereME
Alice finds it hard to fathom how she’s 20 when she still feels like she should be 11. Age 11 was the last time she was “living” #pwME #dontforgetME #Meawarenessday #ME #MyalgicEncephalomyelitis

Alice F:
'Alice ist heute 20 geworden, das ist ihr 9. Geburtstag, bettlägerig mit
#verysevereME
Alice kann kaum begreifen, wie
sie 20 sein kann, wenn sie sich
immer noch fühlt, als müsste
sie 11 sein. Mit 11 Jahren hat sie
zum letzten Mal ,,gelebt' #pwME
#MyalgicEncephalomyelitis

#DontForgetME
#MEAwarenessWeek
#UniteToFight2024
#MyalgicEncephalomyelitis
#ExposeMENow
#SevereME
#VerySevereME