Hey #patientengagement #patientpartnership friends: does anyone have any examples of hospitals partnering with patients on policy creation? And any information on how theyโve gone about this? Julie Drury
The Patients Association and Patient Information Forum (PIF) have published a new report on removing barriers to shared decision-making. ๐ฃ
Based on a co-production project in Nottingham, the report outlines key findings and shares recommendations to support shared decision making. patients-association.org.uk/Blog/removing-โฆ
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488 applications from over 80 universities, from Canada and abroad...
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More than 80 group and individual interviews over the past few weeks...
โก๏ธ Here are our 30 finalists for the selection of our 2023 Scholars!
#PETFProud
Doctors and biologists working together to improve patient outcomes
#AdFeature with The ICR Breast Cancer Now
Take a look at Patients Association, Patient Information Forum (PIF) and NHS Nottingham and Nottinghamshire report on #SharedDecisionMaking for #patients on the #MSK pathway
#PatientPartnership
As part of the Patients Association #PatientPartnership week of events, we're tuning in this morning to hear from England's Patient Safety Commissioner, Dr Henrietta Hughes Patient Safety Commissioner & Rachel Power on why partnership means > patient safety.
I am extremely honoured to have spent the week with these amazing emerging leaders across so many disciplines. I am most grateful to have had the opportunity to raise awareness about the #RareDisease community and #PatientPartnership as a way to create new knowledge.
Gill Phillips Patients Association Patient Safety Commissioner Helen Hassell Yvonne Newbold MBE And to celebrate #PatientPartnership week, looking forward to publishing new podcast on Sunday: @whoseshoes chatting with fab Rachel Power re partnership, shared decision making, #coproduction (whatever you call it, just do it!) #JFDI โฟ๏ธ๐ณ๏ธโ๐Cristina Serrรฃo she/her ๐ช๐บ๐ต๐น๐ธ๐ณ๐ฌ๐ผ Patient Exp Library Aimee Robson (she/her)
Thanks to ME/CFS Quotes for boosting this message about the importance of #PatientPartnership in research. ๐
We did it! We had a great podcast conversation. Thanks Julie Drury Nadia Hillier Mathieu Jackson and most especially thanks Patient Critical Co-op for bringing us together! Stay tuned for the recording. #PatientPartnership #PatientEngagement #Disruption Jennifer Johannesen
Thank you Isabel Jordan (She/Her) and Dr. Christine Chambers for sharing perspectives on what we can DO to meaningfully engage in #PatientPartnership ! Weโve learned a lot and have so much room to grow our practices #MindingPain2022
Key message: Bring the voice of lived experience to the forefront. #patientpartnership #languagematters #ultraday2022 Isabel Jordan (She/Her) Dr. Katie Birnie ENRICH CCHCSP Diabetes Action Can. Canadian Islet Research and Training Network Diabetes Canada MICYRN
Our webinar on #VirtualWards will be on Patients Association website soon!
#NHS #PatientPartnership #PatientSafety
Patients Association Aimee Robson (she/her) Sam Finnikin Sally Peterson Thanks to all ๐๐๐๐
โฆ that was a really packed breakfast agenda & so many good approaches to #PatientPartnership
โค๏ธ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ accessible approach to getting public/ patient feedback on design โฆ literally just go out into street & ask people ๐
#RareDisease patients share their advice for navigating relationships and finding community.
#Sponsored by IpsenUS bit.ly/3LdEvIJ
Dr Grainne O'Kane describing her experience partnering with patients and their families to improve and drive research through development of protocols and raising awareness Grainne O'Kane CancerTrialsIreland ๐ Irish Cancer Society #patientpartnership
#Patientpartnership and #patientengagement folks of twitter! What are/who has great models/ examples for successful patient integration into governance levels? Feeling v.optimistic over here. Julie Drury sue robins (she/her) Heather Sutcliffe @helenbevan Hรฉlรจne Campbell ๐จ๐ฆ Leslee Thompson
Amazing 2 days learning and engaging in #EQPubSchool which included patient partners and researchers!
So grateful to have attended, thankful to the presenters, speakers, and fellow collaborators!
#AcademicPublishing
#PatientPartnership
#OpenScience
Not about us, without us!
Try thinking โhow must this feel for the community with an existing conditionโ rather than โbut they had a medical conditionโ. You might be surprised by the insight you gain.
#patientpartnership #patientperspectives
11/11
Great conversations at WYRPS between people (patients and pharmacists). Let's work together to understand what's important for each of our patients and support them to find what they need. Better Conversations Graham Prestwich Dr Justine Tomlinson Angela Burgin ๐ LTHPharmacyServices #patientpartnership
May 12th is #InternationalMEAwarenessDay .
Want to learn more about whatโs new in ME research? Save the date for these webinars from MEFM Society of BC. mefm.bc.ca/webinars
Interesting discussion on a virtual wards. This is some of the work we have done with our Frailty virtual wards for patients who live in care homes england.nhs.uk/long-read/caseโฆ
#noplacelikehome #aspirationalnurseleader #Communitynursing
Hospital at Home (Cheshire West) Dr Crystal Oldman CBE EdD RN RHV QN FRCN
Ann Keen RN NDN FQNI FAAN FRCN
.Sabrina Poirier (On Hiatus) is a member of the #MECFS Community Advisory Committee, assembled by Center for Solutions for ME/CFS. She recently addressed researchers across the NIH Collaborative Research Centers, urging them to partner with patients. cfsformecfs.org/2021/12/01/comโฆ Kathi Kuehnel Center for Infection & Immunity ColumbiaPublicHealth
A wonderful setting RCSI for this evenings Patient and Clinician Partnership in Cancer Care event. Mr Seamus Cotter speaking about the key role of patient advocates in clinical research. Beaumont RCSI Cancer Centre #PatientPartnership #survivorship
