Experts are calling for ‘urgent action’ to improve children’s health and wellbeing in the first five years of life Academy of Medical Sciences NIHR Southampton BRC
southamptonbrc.nihr.ac.uk/post/urgent-ac…

3 weeks to go until #RareDiseaseDay 2024 !

The simplest thing you can do to help raise awareness is share our posts and use the hashtag #RareDiseaseDay to get the community trending.

#StoriesBehindTheStats

Discover how our research is transforming healthcare across the lifecourse at our summer BRC Open Day, featuring Fergus Walsh. 👩‍🔬🏥

Are you a researcher or partner at University of Southampton, University Hospital Southampton 💙 and beyond? Or would you like to get involved? Register now!

eventbrite.com/e/nihr-southam…

Celebrating #ChineseNewYear2024 🐲 🎊🎆with K Zhang who made us beautiful dumplings and gave us treats to share at our #PCD team meeting. Thank you Kewei ❤️ from us all Prof Jane Lucas 💙, Lee Baker, Gemma Fryatt, Janice Coles Katie Horton Jana Hueppe in University Hospital Southampton 💙 Southampton Medicine

Join us on Zoom for 'Paediatric PCD Clinical Cases'!

Wednesday 21st Feb at 5:30 PM CET.

Register for this interactive session via the BEAT-PCD (ERS CRC) website ➡️ beat-pcd.squarespace.com/events

Yin Ting Lam #PCD

We're excited to have signed an MoU with the Korea Brain Research Institute to further its commitment to finding new treatments for neurological conditions.🧠

Professors Suh and Carare lead this collaboration, combining clinical expertise & technology for innovative treatments.

1/So our preprint (not peer reviewed yet) on barriers faced by people likely to have #LongCovid but haven't managed to access healthcare yet is out. This work was co-produced from start with people who had lived experience of LC.

So what did we find? 🧵
medrxiv.org/content/10.110…

#Attenborough and the Giant Sea Monster airing once more on BBC 1 tomorrow at 3 PM!

University of Southampton NXCT - National X-ray Computed Tomography The Etches Collection

bbc.co.uk/programmes/m00…

University of Southampton University Hospital Southampton 💙 We are also researching ways to diagnose and cure #PrimaryCiliaryDyskinesia Rare Lung Diseases matter Southampton Medicine PCD Support UK Diana Baralle John Holloway Dr Claire Jackson 🔬 Janice Coles Katie Horton Dr Katie Dexter

Presented today my work on PCD diagnosis and AI at DIGITAL HEALTH AI + DATA during the session « AI in clinical imaging and diagnostics, progress so far » #AIDATA23 Royal Brompton and Harefield NHLI Intel UK

We often hear that people with PCD may experience infertility or subfertility, but what do we really know?

Join us on Weds 1st at 5pm as Prof Ying Cheong & Dr Lydia Newman explain what we know, and what we're doing to find out more.

eventbrite.co.uk/e/pcd-live-fer…

#PCD #fertility

Huge thanks to Ailis Moran, Laura Louzao-Martinez, Dominic norris Dominic P Norris, and Dorien Peters for their help with putting together a #cilia #ciliopathy compartmentalisation review article, focused on #IFT , ciliary gating, LIFT and ciliary EVs. 😊😊
nature.com/articles/s4158…

It is a myth that only adults attempt and/or die by suicide.

The statistics show that we lose 200 schoolchildren to suicide every year. Suicide does not discriminate and can affect anyone.

Visit our website to learn more about youth suicide myths.❤️

ow.ly/cuz050PGj4U

Day 16 of 5k every day. Still going!!! Follow my daily updates here: gofundme.com/f/emergency-fl…

Delighted to be here chatting about #PCD today at #RARESummit23 .

Come and say hi! 👋

PCD Support UK Cambridge Rare Disease Network (CamRARE)
#PrimaryCiliaryDyskinesia #DareToThinkRare

Dr Claire Jackson 🔬 presenting at the NIHR Southampton BRC forum today. Updates on the PCD team work on transcriptomics and model cell lines. Southampton FC #pcd

Theme co-lead Tom Wilkinson is introducing our Respiratory and Allergy theme. 🌟

Next, we will hear from four researchers who are improving diagnosis, treatments and care for people with a range of lung conditions.

Learn more: southamptonbrc.nihr.ac.uk/respiratory-al…

#SotonBRC2023

Great to see Dr Claire Jackson 🔬 presenting at the NIHR Southampton BRC event today on PCD and transcriptomics

#PCD #PrimaryCiliaryDyskinesia #SotonBRC2023 PCD Support UK

Great summary of phenotype-genotype studies in #PCD by Myrona Goutaki during this expert talk Katie Horton BEAT-PCD (ERS CRC) ECMC
What's to consider:

Join our next expert talk on hot topic genotype-phenotype association in #PCD
with our experts Myrona Goutaki & Hannah Mitchison

Register 👉
beat-pcd.squarespace.com/events

BEAT-PCD (ERS CRC) Katie Horton UCL ISPM Bern PCD research group at ISPM Bern