Listen here: youtu.be/phxHej5CHAI

“In a world full of stairs… create your own trails.” ~Victortheinspiration

#Victortheinspiration #SMA #SMA Awareness #SpinalMuscularAtrophy #CureSMA #RareDisease #DisabilityAwareness #FightSMA #SMA Community #SMA Research #SMA Hope #SMA Strength

#runforsma #curesma #battleagainstsma #everylifeisprecious #SMArtwarrior #SMAckSMA #SMAawarenessmonth #SupportSMARun #SaveSMAkidsLife #GovtSupportSMAKids #SMAFreeTelangana #smaawareness #savesmalives

Did you know the month of August is “SMA Awareness” month? ♿️❤️

Ways how you can support SMA: curesma.org/ways-to-give/

With SMA Song: youtu.be/phxHej5CHAI

#Victortheinspiration #SMA #SMA Awareness #SpinalMuscularAtrophy #CureSMA #RareDisease #DisabilityAwareness #FightSMA

Happy 12th birthday to my Angel baby in heaven. #smaawareness #childloss #Grief

“When people try 10X harder than you be the one who goes 50% harder.” #Victortheinspiration #SMAAwareness

“Believe in yourself, and the rest will fall into place.✨
Have faith in your own abilities, work hard, and there is nothing you cannot accomplish!”

❤️‍🔥

#faith #MultiversX #NFTs #ETH #Smaawareness #SMA #TogetherForVictor

Sharing the poignant #SMAjourney of 8.5-year-old Omprakash ,a Type 2 warrior from Tamilnadu. His battle highlights the urgent need for life-saving medication. Let's hope Omprakash gains access to the medicine he requires soon. 🙏 #SMAAwareness #MedicalAccess
#Risdiplam #Spinraza

All together. One goal.

Türkiye SMA Vakfı Spierziekten Vl Muskelsvindfonden SMA Finland ry SMA Ireland famigliesma spierziekten Spierfonds Stop SMA N.Macedonia Fundacja SMA APN Fundación Fundame Spinal Muscular Atrophy UK

sma-europe.eu/awareness2023

#IamUnique #SpinalMuscularAtrophy #SMAAwareness

#SMAawareness Month
Day 30: 🔍 Curious about Risdiplam? We've gathered and answered some frequently asked questions about this drug to help you understand it better. Stay informed and empowered! 💡 #RisdiplamExplained #MedicalFAQs
#BattleAgainstSMA
#SMAawareness

Take a moment to read our beautiful daughter Nafisa's story. Together we can win this #fightfornafisa #SpinalMuscularAtrophy #SMAAwareness #SMAWarrior #SMAFighter #SMACommunity #SMAAdvocate #NeverGiveUp #CureSMA #HopeForSMA #FightSMA #SMAAngels #StrengthForSMA #SupportSMA

Harshit's #SMAjourney : Born in Haryana, his first 6 months were joyful, but strength waned. Diagnosed at 8 months, he fought recurring infections. Prayers now echo daily for Harshit's selection in GMAP for #Zolgensma treatment🙏💪 #SMAawareness #HarshitsJourney
Novartis Gene Therapies

#SMAawareness : Today we have an insightful article by Dr. Nayana Patel, a renowned Gynecologist and IVF expert from Gujarat, discussing how PGD can assist parents who are SMA carriers. The advancements in this field are truly remarkable! #IVF #GeneticTesting #Parenting

#SMA awarenessMonth
Day 21: Discover the pivotal role of physical medicine and rehabilitation in managing #SMA . From enhancing mobility to optimizing quality of life, physical medicine and rehabilitation play a crucial role in the SMA journey !
#LongTermCare
#SMA awareness

#SMAjourney with #Evrysdi #Risdiplam :
🌟 Amazing progress for Visrutha, a 5.5-year-old from Tamil Nadu, thanks to Risdiplam! She's regained her crawling ability and is on a positive journey of improvement. Let's support and encourage this brave young princess. 🙌
#SMAawareness

What has your experience been with communication among your various healthcare providers? One patient advocate and his physician tackle ways to bridge the gap: bit.ly/3UC9bYO

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Our sweet precious girl has type 0 #SMA she has days to months to live but we will be supporting her every day along the way.

Prayers for her and our family are greatly appreciated fam.

#smaawareness

Huge news! 📣🧬 Our Call for Research nr. 12 is now open! 🔬 If you are interested to participate or share, please consult the full information on our website: sma-europe.eu/our-call-for-r… All together. One goal. 🙌 #spinalmuscularatrophy #raredisease #research #smaawareness

Raw footage, unedited and just be spontaneous

#Ainaashares done and dusted
#SMAawareness #spinalmuscularatrophy #spinalmuscularatrophy malaysia

Spinal Muscular Atrophy (SMA) weakens physical strength by affecting spinal cord motor nerve cells. It causes mobility, eating, and breathing loss. Sadly, it's the top genetic cause of infant mortality.

#SMA Awareness #SMA #Spine #IntegraHealthcare

'Defying expectations and showing that nothing can stop me from experiencing the wonders of our planet!

As I roll through historic sites and talk with important stakeholders, I prove that you can be a globe-trotting superhero.'

sma-europe.eu/awareness2023

#IamUnique #SMAAwareness