Thanks himanshi dhawan TOI India 4coverin d plight of Rare Disease Parent. Patient Cure SMA Foundation of India 🇮🇳 r waitin 4 lifesavin treatment #Risdiplam #ZolgenSMA #Spinraza Office of Dr Mansukh Mandaviya Devendra Fadnavis (Modi Ka Parivar) Narendra Modi CMO Maharashtra PMO India #SMApatient r dyin plz help #BattleAgainstSMA
Thank you The Times of India for covering the plight of Rare Disease community #Curesmaindia #BattleAgainstSMA
This is a very big step towards the betterment of rare disease patients. Wish to draw the concerned authority’s attention towards Spinal muscular atrophy patients of the state. Help access the medicine #risdiplam #BattleAgainstSMA CMO Odisha NHM Odisha H & FW Dept Odisha Cure SMA Foundation of India 🇮🇳
Heartfelt gratitude to vinod kumar menon @Midday 4 coverin our #BattleAgainstSMA patients & parents Cure SMA Foundation of India 🇮🇳 r requesting CMO Maharashtra Devendra Fadnavis (Modi Ka Parivar) PMO India Narendra Modi Ministry of Health to help us save precious lives #Risdiplam #Zolgensma #Spinraza
Today, on #RareDiseaseDay , CureSMA India stands with all those affected by rare diseases like #SMA . Together, let's raise awareness, promote research, and support one another in our journey towards a cure. Every voice matters in the fight against rare diseases! #BattleAgainstSMA
Pls support #RunforSMA #BattleagainstSMA Awareness Event on 6.08.23,@Jalavihar, Hyderbad. pls register and join us #FightagainstSMA Cure SMA Foundation of India 🇮🇳 KTR, Former Minister harish rao Telangana CMO CHFW & NHM Telangana KTR
Cure SMA Foundation of India 🇮🇳 Ministry of Health Public Health Foundation of India (PHFI) National Health Authority (NHA) Ministry of Ayush PMO India Dr Mansukh Mandaviya (मोदी का परिवार) Department of Biotechnology Biotechnology and Biological Sciences Research ICMR Novartis Gene Therapies #Zolgensma is a hope for #smawarriors .it restores SMN protein production and helps preserve essential muscle function. Motor neuron cells that would have died without treatment can survive and be maintained, stopping the progression of #SMA . #genetichealth #BattleAgainstSMA #SMA
Cure SMA Foundation of India 🇮🇳 Ministry of Health National Health Authority (NHA) Public Health Foundation of India (PHFI) National Health Portal Department of Biotechnology ICMR PMO India Dr Mansukh Mandaviya (मोदी का परिवार) Nirmala Sitharaman (Modi Ka Parivar) Amit Shah (Modi Ka Parivar) #Risdiplm is the only drug which can daily at home in liquid form by mouth or by feeding tube.it is the only #smatreatment approved by India.it giving slowly muscle improvements. #BattleagainstSMA #smaawareness month #smaawareness
Alpana Sharma MangeshChivate Cure SMA Foundation of India 🇮🇳 Office of Dr Mansukh Mandaviya Narendra Modi CMO Maharashtra PMO India Eknath Shinde - एकनाथ शिंदे Devendra Fadnavis (Modi Ka Parivar) Ministry of Health Dr. Tanaji Sawant - डॉ. तानाजी सावंत Kindly help us fight our #BattleAgainstSMA ..
We trust on leaders to help us 🙏
Thanks for ur kind nd immense support for #Battleagainstsma Soumya Swaminathan Cure SMA Foundation of India 🇮🇳
Cure SMA Foundation of India 🇮🇳 Kerala Government | കേരള സർക്കാർ CMO Kerala Novartis Gene Therapies Dept. of Health & FW, Govt. of Kerala NHM Kerala-Arogyakeralam Veena George Kerala Governor BJP KERALAM PIB in KERALA Dr.UR Rahul Glad to hear that u have remarkable progress with help of #Zolgensma . Best of luck and lots of prayers for you dear Angel Gouri. May God bless you with complete recovery, Ameen.
#smaawareness #SMAawarenessmonth #battleagainstsma #mediclemiracles #smatreatment
Cure SMA Foundation of India 🇮🇳 CMOTamilNadu Edappadi K Palaniswami - Say No To Drugs & DMK @DrTamilisaiGuv News18 Tamil Nadu BJP Tamilnadu IndiaGlitz - Tamil National Health Mission - Tamil Nadu News7 Tamil Health Directorate of Public Health & Preventive Medicine Udhay Happy to see you Visrutha.happy to knowing about u have amazing progress with the help of #Risdiplm .Ur journey is #inspiring . God bless u dear.All the best for ur health and bright future. #smaawareness #smaawareness month #battleagainstSMA #Risdoplmsuccess Roche Roche Pharma India
This is very disappointing…. No patient should ever face the unfortunate situation where they have to discontinue treatment which is life saving #BattleAgainstSMA #save SMAwarriors PMO India Ministry of Health Chief Minister Assam CMO Odisha Cure SMA Foundation of India 🇮🇳
Where you live sudnt determine if you live, SMA has a definitive treatment our patients Cure SMA Foundation of India 🇮🇳 r being denied fundamental right to live MangeshChivate CMO Maharashtra PMO India Narendra Modi #BattleAgainstSMA mid-day.com/mumbai/mumbai-…
Cure SMA Foundation of India 🇮🇳 Pinarayi Vijayan Dept. of Health & FW, Govt. of Kerala Veena George Kerala Government | കേരള സർക്കാർ CMO Kerala Kerala Governor Congress Kerala BJP KERALAM The Hindu Dr.UR Rahul NHM Kerala-Arogyakeralam News18 Kerala Asianet News Heartfull Thanks to #Kerala government on fulfill the commitment toward #RareDisease and hearty congratulations for #KARE scheme's success.
#KareForRare
#BattleAgainstSMA
#right2live
#right2health