Today is #severeMEday . In April, my sister Meredith was a software engineer, living a normal life, & thriving. This is her before she became ill with #LongCovid , and this is her now. She’s 32. As her sister, it feels like my heart has been ripped out of my chest. 1/

Behind this before-and-after photo lies the unyielding reality of #severeME - a debilitating condition that can silently steal your health and vitality. The contrast in appearance reflects my hidden battles.

#severeME day
#MECFS
#pwME

Wenn du mit Mitte 30 nochmal studierst, wählst du das Thema für deine Abschlussarbeit ganz anders als noch mit Anfang 20: Mit Bedacht, mit Hoffnung auf Veränderung und der Chance auf Aufklärung.
#SevereMEDay #MECFS #millionsmissing

Anil verteld hier over zeer ernstige zieke ME-patiënten. Die in donkere kamers liggen en geen prikkels kunnen verdragen. Voor hen ontbreek zorg vaak.

De hele video waar Anil van der Zee © verteld over #SevereME bekijk je hier: youtu.be/cInSsoxM0Zg

#SevereME Day #NietHersteld

#severeME day #mecfs #severeME #seid #severeME week
i don’t know who to credit.

Heute am 8.August ist #SevereMeDay . Ein Tag an dem wir auf die 25% der an #MECFS Erkrankten aufmerksam machen wollen, die ans Haus oder ans Bett gebunden sind.

Manchmal sind sie so schwach, dass sie mit einer #Magensonde ernährt werden müssen.

Leider habe ich auch #severeme :

My heart truly goes out to everyone who has any level of ME. But today it hurts for all those who are severe and worse especially. I am #SevereME #SevereME Day this has been my life for 2 years now. Trapped in this bed, suffering in isolation every day. I've lost everything +

Deutsches Ärzteblatt Wer lesen kann... Aber das kennen wir von euch ja. Euer Unfug trägt übrigens dazu bei, dass wir von Ärzten nicht oder falsch behandelt werden. Schämt euch!
#severeMEDay

For #severeMEday , a special fuck you to the quack researchers and doctors whose fraudulent science and abusive medical practice leads to the extreme abandonment, constant agony, malnutrition, starvation, and death of so many of us with severe ME 1/

On #SevereME day (Aug 8), I remember my friend Ruth Nolan from Glasnevin, Dublin who has spent 3 decades bedbound with #SevereME

For 14+ yrs she has had #VerySevereME :she's only able to have a few very short conversations & very little cognitive/mental stimulation☹️

#MEcfs #PwME

Heute zum #SevereMEDay erinnern wir weltweit an schwer und sehr schwer #MECFS Betroffene, die für die Gesellschaft unsichtbar geworden sind. Menschen, die komplett aus ihrem Leben verschwanden und isoliert in Dunkelheit und Stille vegetieren. Ungesehen und ungehört.

1/💙

Heute Nacht um 1.25 Uhr berichtet 3sat zum #SevereMEDay über #MECFS .

Herzlichen Dank dafür.

Wir brauchen umfassende Aufklärung zur Krankheit auf allen Kanälen #JETZT .

This is #SevereMEDay . For most of my 40+ years with #MECFS , my life was very limited but I could participate in advocacy and spend time with my family. Since January, 2022, I have been bedbound, grateful to make it to the bathroom and back. Calling from bed for serious research!

I am currently not severe, but I am still posting for #SevereMEDay . My whole adult life, I have been disabled and dealt w/ mild fatigue, until mold exposure in 2019. I have not been the same since - teetering between moderate and severe.

Remembering those we have lost to Severe ME. Holding on to one another online as we grieve and share our stories and demand the world sees us.

Check out our Severe ME Artists Project. We would love to hear what moved you.

#SevereMEDay #MyalgicEncephalomyelitis #pwME #MECFS

It's a really hard day to be on here. I'm glad #SevereMEDay exists. It's so very necessary. At the same time, as a new member to a club none of us ever wanted to belong to, it's heartwrenching to face the enormity and hopelessness of the situation.

#SevereMEday #Millionsmissing #Pwme

What do patients with #severeME say about their experience with health care ?

#SevereMEDay
Watch this video to understand some major challenges people in Aust face with severe #MECFS .
vimeo.com/manage/videos/…
Ask your federal MPs, Senators & staff to watch the video and to contact the Dept of Health & the Minister, to act on clinical guidelines.
#auspol

7 miles just now for Melanie Olk R.I.P #SevereMEDay

The saddest thing for me is I've been running 3-4 times a week for 8 years and have never run out of people to dedicate runs to 😔

🎥 Adam hat ein Informationsvideo zu sehr schwerem #MECFS veröffentlicht. #SevereMEDay
👉 youtube.com/watch?v=J9fQDX…