Posted my spit sample to DecodeME today.

How about you? The clock is ticking. 😺

#ICYMI : We bagged a brace at last night's PRCA_Scotland #PRCADareAwards - bringing home both Launch of the Year and B2B Campaign awards! 🏆

Big thanks to The National Robotarium, Converge & @DecodeME for letting us tell their incredible stories & congrats to our extraordinary team 🥳

“All the big breakthroughs that have happened...it’s been because of a study exactly like this one. It’s the start of something, not the end.” shorturl.at/fwKM0 Thank you to Channel 4 News for showcasing #DecodeME and to The Real M.E. 👩‍🦽🦥♿️🏴󠁧󠁢󠁳󠁣󠁴󠁿📢 and all our other participants.

Nice little Thursday surprise!

My DecodeME the ME/CFS Study spit kit has arrived 🧬

#pwme #mecfs #decodeme

[NEW STUDY] Typing #MECFS by infection at onset

One of the hallmark features of ME/CFS is the onset occurred following an infection. There are no laboratory tests available to diagnose ME/CFS and no effective treatments exist. The DecodeME study is a large population-based study…

#DecodeME still needs more #mecfs (UK) participants for the biggest ever genetic study

Know someone with ME / CFS (or Long Covid)? Please ask them to sign up to DecodeME (decodeme.org.uk), the world’s largest ever study into the genetics of the illness. 1/2

DecodeME the ME/CFS Study #millionsmissing #mecfs #MEresearch #longcovid #MECFS

Well done to the lady on #C4News talking about #ME and #DecodeME . I didn’t catch her name but she should be proud.
The next 12 months can’t go fast enough.

Friday the 12th May is 'World ME day'. Thinking of the millions missing from their lives due to post viral disease. You are not forgotten.
#WorldMEDay #MyalgicEncephalomyelitis #DecodeME #MillionsMissing

Daniel Freeman Agree - difficult to have confidence there'll be major changes - but I recall Prof Jonathan Edwards posting on Science 4 ME website that a discovery via e.g. DecodeME could result in change in very short period of time.
Drug development is relatively easy - once you have a target

#decodeme study update

Watch DecodeME on Channel 4 news. We are passionate about raising awareness of #MECFS and the need for more research funding. Tune on Channel 4 today at 7pm.

“Apparently, DecodeME will be using the IOM criteria, which NIH has used here. That definition is perfect not just to prevent progress but to bury #ME , which is what the IOM definition was intended for and which is why NIH spent $1 million on it” 👇🤦‍♀️

■「過去最大規模」のME/CFS研究 英国でスタート！

“DecodeME”

・「この病気の一部が遺伝性であるか確認」

・「研究を拡大し、コロナ感染後に #MECFS を発症した人々のDNA5000サンプルも調べる」

・「研究はこの病気を理解し、治療法発見に役立つはずだ」

#コロナ後遺症

decodeme.org.uk

One of the slides shows the participation rates in #DecodeME .

I'm guessing signups includes people like me who signed up but were ineligible because we didn't live in the UK

#MEcfs #CFS #PwME

“This isn’t a problem to do with fatigue, this is a problem to do with compassion fatigue in the United Kingdom.”

#decodeME #ME

I've asked friends & family to put up DecodeME posters in public places: the local library, GP and a pharmacy. So far 6 posters have gone up- hoping to encourage others to do the same. Let's reach people who aren't on social media! DecodeME the ME/CFS Study
Action for M.E. #pwME #LongCovid

#pwme please send your #decodeme spit kits back in before Jan 31st 2024.

Let's make this the most successful research & get some answers.

Ahead of #WorldMEDay , if you are a #pwME or know someone with #mecfs , even if the dx results from #LongCovid , pls mention #decodeME to them. Their involvement could help unlock answers to this miserable illness & requires the absolute minimum of effort, by design, to participate.

This is what supporting #MECFS patients looks like. Thank you Professor Chris Ponting, principle investigator for DecodeME, the largest ever study of genetic factors in ME/CFS.