G&CTI - Gene & Cell Therapy Institute(@GCTI_France) 's Twitter Profile Photo

| 📢 Ajd c'est la Journée Mondiale Maladies Rares

3️⃣0️⃣0️⃣ millions de personnes vivent avec une maladie rare dans le monde : il en existe plus de 6️⃣0️⃣0️⃣0️⃣ !

RDV sur RAREDISEASEDAY.org pour en savoir +

#RareDiseaseDay | 📢 Ajd c'est la Journée Mondiale Maladies Rares

3️⃣0️⃣0️⃣ millions de personnes vivent avec une maladie rare dans le monde : il en existe plus de 6️⃣0️⃣0️⃣0️⃣ !

RDV sur RAREDISEASEDAY.org pour en savoir +

#ShareYourColors #RareIsMany #RareIsStrong #RareIsProud
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Walk4PH(@Walk4ph) 's Twitter Profile Photo

It's .
We are super happy to join the global movement from Nigeria that helps spread awareness for the 300 million people living with rare conditions, their families, and carers


It's #rarediseaseday. 
We are super happy to join the global movement from Nigeria that helps spread awareness for the 300 million people living with rare conditions, their families, and carers

#rareisstrong #rareisproud #pulmonaryhypertension  #walk4PH
#YouSabiPH
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G&CTI - Gene & Cell Therapy Institute(@GCTI_France) 's Twitter Profile Photo

| Vidéo officielle de la Journée Mondiale Maladies Rares youtu.be/3bxaP9FJKnk

6 portraits 📸 6 héros 🏆 6 vies ❤️ Rencontrez Tristan, Angelina, Regina, Syafiq, Jon-Kristian & Harvey

+ d’info RAREDISEASEDAY.org

#RareDiseaseDay2021 | Vidéo officielle de la Journée Mondiale Maladies Rares youtu.be/3bxaP9FJKnk

6 portraits 📸 6 héros 🏆 6 vies ❤️ Rencontrez Tristan, Angelina, Regina, Syafiq, Jon-Kristian & Harvey

+ d’info RAREDISEASEDAY.org
#RareIsMany #RareIsStrong #RareIsProud
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G&CTI - Gene & Cell Therapy Institute(@GCTI_France) 's Twitter Profile Photo

RENCONTREZ-NOUS | Notre partenaire Pfizer France célèbre la Journée Mondiale Maladies Rares avec différentes associations de patients.

Nous avons le plaisir de participer à cet événement pour y présenter G&CTI !

RENCONTREZ-NOUS | Notre partenaire @Pfizer_France célèbre la Journée Mondiale Maladies Rares avec différentes associations de patients.

Nous avons le plaisir de participer à cet événement pour y présenter G&CTI !

#RareDiseaseDay #JMMR2021 #RareIsMany #RareIsStrong #RareIsProud
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Salivary Gland Cancer | Charity(@SGCancerUK) 's Twitter Profile Photo

Rare patients may struggle to meet others. Research to improve understanding & patient outcomes, is desperately needed. We are addressing these needs & building an active patient-clinician research community. Join us?

Rare #salivaryglandcancer patients may struggle to meet others. Research to improve understanding & patient outcomes, is desperately needed. We are addressing these needs & building an active patient-clinician research community.  Join us? #RareDiseaseDay2021 #RareisStrong
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Ring20UK(@Ring20UK) 's Twitter Profile Photo

A disease is defined as rare in Europe when it affects fewer than 1 in 2,000 people 🌎

The lack of knowledge and information about rare diseases often leads to a delays in diagnosis or misdiagnosis.

Our Ring20 family is here to offer support, empathy, and advice.

A disease is defined as rare in Europe when it affects fewer than 1 in 2,000 people 🌎

The lack of knowledge and information about rare diseases often leads to a delays in diagnosis or misdiagnosis.

Our Ring20 family is here to offer support, empathy, and advice. #RareIsStrong
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Kathi’sRoadTrips(@kathistacey) 's Twitter Profile Photo

Today is please share to support super heroes around the world. Those like my grandson Madden who at 4 years old is fighting an incurable disease called Battens

Today is #RareDiseaseDay please share to support super heroes around the world.  Those like my grandson Madden who at 4 years old is fighting an incurable disease called Battens #CLN2 #RareIsStrong #hopeishere #MaddensFight
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Christine McClements(@Chris_McClem) 's Twitter Profile Photo

It's , a day to raise awareness of people with rare diseases like my beautiful daughter Lilia.

Lilia has a rare genetic disorder called STXBP1. Lilia is precious and unique & we celebrate having her in our lives ❤️



It's #RareDiseaseDay2022, a day to  raise awareness of people with rare diseases like my beautiful daughter Lilia.

Lilia has a rare genetic disorder called STXBP1. Lilia is precious and unique & we celebrate having her in our lives ❤️

#RareIsMany
#RareIsStrong
#RareIsProud
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•britkayy_____•(@BRiT_KaY927) 's Twitter Profile Photo

Zola fought for her life at 3 years young from a post op hemorrhage caused by undiagnosed connective tissue disorder(EDS). It’s our mission to raise awareness, advocate & save another family from the same complication.
The Ehlers-Danlos Society

Zola fought for her life at 3 years young from a post op hemorrhage caused by undiagnosed connective tissue disorder(EDS). It’s our mission to raise awareness, advocate & save another family from the same complication.
@TheEDSociety #RareIsStrong #RareDiseaseDay #zolaszebras
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Premier Research(@premierresearch) 's Twitter Profile Photo

Today on , we celebrate those living with rare diseases and all others fighting to improve treatment and awareness. We know that , , and .

In honor of Rare Disease Day, our team shares what rare is to them.

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