Stronger Together:
We are all smiles: Ali - The Survivor with Mama Malcolm and Malcolm The Believer.
#RareIsStrong #rarediseaseday2020
#RareDiseaseDay | 📢 Ajd c'est la Journée Mondiale Maladies Rares
3️⃣0️⃣0️⃣ millions de personnes vivent avec une maladie rare dans le monde : il en existe plus de 6️⃣0️⃣0️⃣0️⃣ !
RDV sur RAREDISEASEDAY.org pour en savoir +
#ShareYourColors #RareIsMany #RareIsStrong #RareIsProud
It's #rarediseaseday .
We are super happy to join the global movement from Nigeria that helps spread awareness for the 300 million people living with rare conditions, their families, and carers
#rareisstrong #rareisproud #pulmonaryhypertension #walk4PH
#YouSabiPH
#RareDiseaseDay in #Tanzania will be commemorated at Serena #DaresSalaam
Thanks to Ali Kimara Rare Disease Foundation and Tanzania Society of Human genetics.
#RareIsStrong
Raising awareness of #LennoxGastautSyndrome & #PURASyndrome on this #RareDiseaseDay2021 #ShowYourStripes 🦓 #RareIsMany 💜 #RareIsStrong 💙
#RareDiseaseDay2021 | Vidéo officielle de la Journée Mondiale Maladies Rares youtu.be/3bxaP9FJKnk
6 portraits 📸 6 héros 🏆 6 vies ❤️ Rencontrez Tristan, Angelina, Regina, Syafiq, Jon-Kristian & Harvey
+ d’info RAREDISEASEDAY.org
#RareIsMany #RareIsStrong #RareIsProud
RENCONTREZ-NOUS | Notre partenaire Pfizer France célèbre la Journée Mondiale Maladies Rares avec différentes associations de patients.
Nous avons le plaisir de participer à cet événement pour y présenter G&CTI !
#RareDiseaseDay #JMMR2021 #RareIsMany #RareIsStrong #RareIsProud
Rare #salivaryglandcancer patients may struggle to meet others. Research to improve understanding & patient outcomes, is desperately needed. We are addressing these needs & building an active patient-clinician research community. Join us? #RareDiseaseDay2021 #RareisStrong
We are looking forward to celebrating Rare Disease Day with you all tomorrow 🎉
#RareIsMany #RareIsStrong #RareIsProud
Nerve Tumours UK are supporting #RareDiseaseDay 2022
Thank you to the Genetic Alliance UK for their work throughout the year
#RareisStrong #RareisProud #RareisMany #RareDiseaseDay 2022 #NFAwareness
28 Days of RARE - In honour of #RareDiseaseDay this year Emma is immensely proud to launch our #SpotlightEdition of #RARE #diseases in the Middle East
#RareDiseaseDay 2021 #RARE Revolution #ShareYourRARE #CareForRARE #rareismany #rareisstrong #rareisproud #StrongerTogether
A disease is defined as rare in Europe when it affects fewer than 1 in 2,000 people 🌎
The lack of knowledge and information about rare diseases often leads to a delays in diagnosis or misdiagnosis.
Our Ring20 family is here to offer support, empathy, and advice. #RareIsStrong
I went to this fantastic historic/literary tour organised by Fondazione Città della Speranza and Vox Artes to honour #RareDiseaseDay .Palazzo della Ragione was illuminated and looked absolutely stunning! #UNIAMOleforze #RareIsMany #RareIsStrong #RareIsProud #ResearchMatters
Today is #RareDiseaseDay please share to support super heroes around the world. Those like my grandson Madden who at 4 years old is fighting an incurable disease called Battens #CLN2 #RareIsStrong #hopeishere #MaddensFight
It's #RareDiseaseDay2022 , a day to raise awareness of people with rare diseases like my beautiful daughter Lilia.
Lilia has a rare genetic disorder called STXBP1. Lilia is precious and unique & we celebrate having her in our lives ❤️
#RareIsMany
#RareIsStrong
#RareIsProud
Raising awareness of #fragilex and associated conditions on #RareDiseaseDay 2023 Please RT!
#fragilex syndrome
#rdd2023
#RareDiseaseDay
#careforrare
#shareyourcolours
#rareismany
#rareisstrong
#rareisproud
Genetic Alliance UK Rare Disease UK Animation Explainers
Zola fought for her life at 3 years young from a post op hemorrhage caused by undiagnosed connective tissue disorder(EDS). It’s our mission to raise awareness, advocate & save another family from the same complication.
The Ehlers-Danlos Society #RareIsStrong #RareDiseaseDay #zolaszebras
Today on #RareDiseaseDay , we celebrate those living with rare diseases and all others fighting to improve treatment and awareness. We know that #RareisMany , #RareisStrong , and #RareisProud .
In honor of Rare Disease Day, our team shares what rare is to them.