Who’s coming to #wisconsin ’s capitol #Madison to see HBO Documentaries #bleedout to #advocate and #support #patientsafety ? Join us on 2/23/22! Soojin Jun 전수진 National Patient Safety Board Advocacy Coalition David Mayer MD The Leapfrog Group MedStar Institute for Quality and Safety Institute for Healthcare Improvement (IHI) CMSGov CDC World Health Organization (WHO) Betsy Lehman Center @ismp_org @ECRI_Org ISQua

Joining us Friday at a post-film panel ReelAbilities Film Festival: New York will be a special guest, Gwen Petersen
Gwen Petersen, diagnosed with ALS at only 32. 'I don't look like Lou Gehrig,' Gwen says in the film. Hear Gwen's patient perspective on what we can all do to push this fight forward.

“When we connect the experience between the patient story and the reality of the disease ... we begin feeling differently [about] what is happening.”

Global Health Centre | Prof Tolullah Oni Dr Andriannah Mutheu | Dr Maria Neira | Clean Air Fund | Camilla Kingdon | Vital Strategies
healthpolicy-watch.news/air-pollution-…

Join the NCBRS Worldwide Foundation and over 20 other organisations, advocates and more and we #Dazzle4Rare in 2022… 🧡💚💙

#NCBRS #NCBRS Rare #GlobalNCBRSAwarenessDay #Dazzle4Rare 2022 #RareDiseaseAwareness #PatientAdvocates #PatientGroups #WorkTogether #StrongerTogether 🧡💚💙

Is there a cobra in your Cath Lab? There should be! This comfortable cuff helps prevent arm drift & reduces physician discomfort. Request A Free Demo Today!

The Patient Fireside Chat at the #AHSM2020 conference today, moderated by Austin Chiang, MD MPH

So honored to share experience about critical role of #patientadvocates in #lobular #breastcancer research and #HopeForOTHERS (previously called Rapid Autopsy) program. ESMO - Eur. Oncology UPMC Hillman Cancer Center Magee-Womens Research Institute & Foundation #GlobMob Adrian Lee

Want to make a difference for all cancer survivors? Join our Cancer Policy & Advocacy Team. No matter your expertise, your contribution matters. Learn more and get involved: CancerAdvocacy.org/CPAT
#CancerSurvivor #CancerAdvocacy #MakeADifference #SurvivorStrong

The DEA has released guidance on the new one-time requirement for 8 hours of training on the treatment & management of patients with opioid or other substance use disorders. #ASAM offers a variety of education that meets the needs of all prescribers >> ow.ly/bUu350Nu1rO

Happy to see interest from #lungcancer #patients and #patientadvocates in our study IASLC #WCLC20 . Full paper coming soon!

#MondayNightIBD Joseph Sleiman, MD Katie Dunleavy Romy Chamoun, MD Sanjeevani Tomar, MD Daniel J. Stein Poonam Beniwal-Patel, MD 1b.
Shout out 📣 to all of the amazing #IBD #PatientAdvocates who helped make this happen:

About IBD: Amber-Writer, Journalist, Podcast Host Natalie Hayden Melodie Narain-Blackwell Empowering Patients,LLC • Alison Tiffany Taft, PsyD GutlessandGlamorous IBD Nurse Kay Tina Aswani-Omprakash, MPH The Bottom Line IBD Kelly Issokson MS RD (she/her) Sneha Dave Lori Plung Danielle Marie Vitelli O’Connor

Do you know the risk factors for #UterineCancer ? Join us in sharing them widely this month! 💜

@esgo_society IGCS International Gyn Cancer Advocacy Network  #cancerrisk #patientadvocates #cancerpatient

Our new paper outlines the #patientvoice journey undertaken by Patient Voice in Cancer “Could you give us an idea on what we are all doing here?” the Patient Voice in Cancer Research (PVCR) starting the journey of involvement in Ireland doi.org/10.1186/s40900… #PPI

It was great seeing #patientadvocates on first #patientsafety #advocacy day of #wisconsin ! Thanks to State Rep. Christine Sinicki David Mayer MD Martin Hatlie, JD The Leapfrog Group Soojin Jun 전수진 for supporting the event today! And of course HBO Documentaries #bleedout Steve and Margo Burrows #WeStandWithJudie

Big thanks to Prof Sanjay Popat, BTOG esp Dawn & Gina for a great #BTOG23 . Special thanks to Liz Darlison for hosting the #PatientAdvocates mtg & @DRBLungs Dr Anne-Marie Baird Lavinia Magee for the great sessions. Fab to meet other patient advocates & come together for better outcomes

Today is #HPVAwarenessDay and a reminder of the role of #patientadvocates #PPI Laura's legacy continues with her family Kevin Brennan and the #LauraBrennanAward recipients Roberta Horgan 🇮🇪 🇺🇦 Kim - Get the HPV Vaccine 💉 Jacqueline Daly ISGO #OneLessWorry #ThankYouLaura

And, that’s a wrap for #SABCS2022 ‼️If all goes well, see you next year SABCS! #bcsm #patientadvocates #EmpoweredByKnowledge #research #MetastaticBreastCancer

Professor Sanjay Popat opens #BTOG23 dinner ceremony Belfast Titanic. He says, BTOG is like a family.

Great to be here with all the fellow #lungcancer #PatientAdvocates 🤍

Great #firesidechat this evening by Patient Voice in Cancer in conjunction with Precision Oncology Ireland on #biobanks and #patientparticipation Trinity St James's Cancer Institute RCSI Research and Innovation UCD Conway Institute #patientadvocates #CancerResearch

Truly an honor to be able to join these amazing #patientadvocates and Austin Chiang, MD MPH for today's insightful discussion. #AHSM2020 Brooke Abbott aka The Crazy Creole Mommy Doug Lindsay KD Richardson

Very happy to talk about Decentralized trials at the #EURORDISOpenAcademy 2023 with such an engaged group of #RareDisease #patientadvocates !

Excited to be w this group of Bladder Cancer Advocacy Network #patientadvocates to #BCANAdvocacy tomorrow in DC

MYTH: ALS is disease of the elderly

Gwen is one of many women under 35 dx'd w #ALS .
Join her Friday night for premiere of #Documentary #NoOrdinaryCampaign talking about how #patientadvocates have changed the disease.

ReelAbilities Film Festival: New York #NewYork

No Ordinary Campaign
Her ALS Story
#EndALS

Excited to join NCCS - National Coalition for Cancer Survivorship & #PatientAdvocates in DC tomorrow for #CPAT23 to #MakeaDifference , support #CancerPolicyAdvocacy & #CancerSurivorship . On my agenda, visits w/ Rick Scott, Senator Marco Rubio, Rep Rep. Vern Buchanan, & Rep. Michael Waltz.
#bcsm
#metastaticbreastcancer

Another Tweetchat on #FoodSafety Day focused on #AMR & the impact on foods we eat!

Everyone welcome, incl #PatientAdvocates , #ConsumerAdvocates & professionals working in this field!

Co-hosted by Natalie Vestin from CIDRAP-ASP & myself from The AMR Narrative

#theAMRnarrative

Thx to all involved Peter Mac Cancer Centre & #lungcancer #patientadvocates Lillian Leigh Lisa Briggs for your poster of real world data w/survivorship concerns & unmeet needs of the current patient #survivors . IASLC #lcsm #WCLC20

While the #healthcare professionals discuss complex #patient cases in their RDWGs, the #patient advocates are holding their #ePAG meeting! #ERNeu Juergen Grunert @HevasNederland CMTC-OVM The_lympha Manuela_L de linfa bindweefsel.be Association Belge du Syndrome de Marfan, ABSM asbl HHT España NLNet pic.twitter.com/BbK07c9hek

If you are a #Patient engaged with #Guidelines and or know #patients , #caregivers or #patientadvocates please help with filling out this survey. Thank you! GIN Member Cochrane Consumers ACP IDSA Lelis Jim Pantelas Thank you!

Massive thanks Éidín Ní Shé for your work in pulling together the story of this epic journey with wonderful #patientadvocates 👏Ramon Whelan Mary Staunton FoodAllergyAwareIE 𝙅𝙤𝙝𝙣 𝙒𝙖𝙡𝙡 Irish Cancer Society Marie Keating Foundation Mater Foundation Liam Gallagher Wigworld Waterford Precision Oncology Ireland

When should patients, caregivers, or patient advocates be engaged with in the guideline development process? Complete MuSE Guidelines survey to give your opinion: surveymonkey.ca/r/NWM9QSK

Please join us this Friday ESMO - Eur. Oncology Breast 2023 session on 'Bringing the patient voice to cancer research (GRASP session)' Julia Maués Rosa Olmos Dr. Steffi Oesterreich

Fri, 12.05.2023
14:45 - 16:00 (Berlin)
Room: Frankfurt Hall
OncoAlert